- bio: Chase these cloud shadows on the road with me. Live&Breathe.
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The 18th will always be a crazy, mindjobbled day. 3 months post transplant today. However, I'm not in bed all day depressed and #BetterCallSaulWillBeInApartment15 So ironically enough, I am waiting too, on this day.
This is my last night at this transitional apartment the hospital put me in. I'll be moving in with two very amazing people. I am so stoked! I'm also cleared to start working... it's been years... OMG I am so excited! And I'm going to University of Arizona next January. I plan to be a biochemist. Let's start this life back up again, ya'll. It's been a long 6 years of being too sick. This double lung transplant was by far the best decision of my life. Looking back, everything I went through to get here, gawd it sucked. It really did. But I love who it's turned me into. I'm getting myself back. I lost her a while ago, and now I'm back to laughing so hard I'm crying everyday, and joking and dancing. It's amazing. You can make your life great, I promise.
In a little over a week, it will mark my 2 months after transplant! So far, everything has looked perfect. Exercising has kicked my butt!! No matter what guys, if you are bed bound on o2 and sick, just doing the smallest leg and arm exercises and trying to walk anytime you can, will SAVE YOUR LIFE even when it seems so pointless in the moment. I can be your perfect example for that, take my word for it... everything turns to mush after surgery so anything you have to work with, is gonna help you! #transplant #doublelungtransplant #cysticfibrosis #cf #justbeatit
So in a month or two, I think I'm gonna need a #personaltrainer !!!!
Monday will be a month since surgery, and I'm so excited by how I am feeling. It's so strange not dealing with mucous or lung infections or breathing treatments constantly. I take pills at 9am and 9pm and check my temp and that's it. I haven't even needed to use my feeding tubes. Although I'm sore and some days are hard, it's nothing compared to what it was. I think about my #donor everyday of this life. And next year, I'll get to hear all about their #life
#doublelungtransplant #newairbags #cysticfibrosis #cf #transplant #postsurgery
Surgery didnt work, and it looks like I'll be here for a lot longer than planned. My lung doesnt seem to want to stay up on its own, not sure what the team is thinking. Transplant docs are coming to talk to me. Needless to say, living states away from my family is a lot harder than I expected. Im really being tested in every way these past few weeks. I wish I were home.
#surgery today! #pleurodesis #rightlung #cf
I forgot that I could still have a lung collapse in the future... but not on my right side... ever again. This still is fantastic news, because who needs that in their lives?! Haha this is just some minor things before #transplant happens. ♡
My chest tube is out, which basically feels like a wire scraping inside your lung, but they gave me something for the anxiety and it helped a lot. I am hopefully going home really soon, maybe today, tmro or monday! My lung is staying inflated and I hope it continues to stay that way! I am talking to the transplant doctors before I leave, so they can discuss all my options for the future incase this were to happen again. I'm missing my doggie and cooking and I can't wait to get back to my domestic duties! Thank you all for the thoughts and prayers, it means so much. ♡ ♡ ♡