Help Gibson Fight PANS/PANDAS!
Donation protected
My cousins' 7 year old son is sick.....
Jon and Amanda Tanner started noticing a change in their son Gibson after a light cold. They first noticed a few small changes in schoolwork and some little tics, but attributed it to kid quirks. Then it hit, strong & fast. Extreme anxieties and fears. Gibson developed OCD and Tourettes symptoms. A multitude of tics and rituals developed; vocal/verbal, breathing/huffing, counting, cleaning, pacing, light switches, OCD about clothing, bedding, toy placement. Some of the tics are self harmful. Their extremely intelligent first grader went from doing 4th grade long division and multiplication to barely being able to add and subtract single digits, and it’s a FIGHT to do that. Not to mention the slew of other symptoms including random bouts of jerky movements/loss of motor skills, dilated pupils, anger/aggression (ODD), short term memory loss, and problems sleeping. It’s terribly hard, and terrifying for them to see this happening to him.
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There is a rare syndrome out there called PANDAS or PANS , and their sweet boy has developed this. They do not know why yet. They are working hard to find out, but this comes on seemingly out of nowhere.
.
In the last several weeks their lives have flipped. They are now a family with a child who has multiple doctors. Their conversations revolve around appointments, medications, treatments, insurance, specialists (very few in the US), and trying as best they can to sooth their son when he’s experiencing these symptoms. It’s surreal. They are going through the motions of it all, but are still in disbelief that this is happening to them.
Their goal is to get him to a doctor in NJ who is said to be the best of the best. But, he's not covered, and not cheap, and they are going to need lots of support. The travel from Michigan for their family, and initial appointment alone are extremely costly, and that's just to get on the correct path with a doctor who knows how to diagnose and treat this illness. With treatments and follow up visits the costs will quickly exceed the goal I have set for this campaign. They need your help to get him there ASAP!
They are scared. This all happened so fast, and processing it has been hard. This disease is very intense, and is a lot to navigate and research. I (and they) will update on Gibson's condition as they learn more. Raising awareness is very important to them as many children with this disease are misdiagnosed. I will share some links below that will help explain what Gibson (and they) is experiencing.
Please, send their guy good vibes & prayers, and if possible, please help them to offset the costs of specialists/treatments as they are NOT covered by health insurances, and are entirely out of pocket. Getting him to someone who knows this devastating disease is their top priority.
https://vimeo.com/159385789
http://www.pandasnetwork.org/
Jon and Amanda Tanner started noticing a change in their son Gibson after a light cold. They first noticed a few small changes in schoolwork and some little tics, but attributed it to kid quirks. Then it hit, strong & fast. Extreme anxieties and fears. Gibson developed OCD and Tourettes symptoms. A multitude of tics and rituals developed; vocal/verbal, breathing/huffing, counting, cleaning, pacing, light switches, OCD about clothing, bedding, toy placement. Some of the tics are self harmful. Their extremely intelligent first grader went from doing 4th grade long division and multiplication to barely being able to add and subtract single digits, and it’s a FIGHT to do that. Not to mention the slew of other symptoms including random bouts of jerky movements/loss of motor skills, dilated pupils, anger/aggression (ODD), short term memory loss, and problems sleeping. It’s terribly hard, and terrifying for them to see this happening to him.
.
There is a rare syndrome out there called PANDAS or PANS , and their sweet boy has developed this. They do not know why yet. They are working hard to find out, but this comes on seemingly out of nowhere.
.
In the last several weeks their lives have flipped. They are now a family with a child who has multiple doctors. Their conversations revolve around appointments, medications, treatments, insurance, specialists (very few in the US), and trying as best they can to sooth their son when he’s experiencing these symptoms. It’s surreal. They are going through the motions of it all, but are still in disbelief that this is happening to them.
Their goal is to get him to a doctor in NJ who is said to be the best of the best. But, he's not covered, and not cheap, and they are going to need lots of support. The travel from Michigan for their family, and initial appointment alone are extremely costly, and that's just to get on the correct path with a doctor who knows how to diagnose and treat this illness. With treatments and follow up visits the costs will quickly exceed the goal I have set for this campaign. They need your help to get him there ASAP!
They are scared. This all happened so fast, and processing it has been hard. This disease is very intense, and is a lot to navigate and research. I (and they) will update on Gibson's condition as they learn more. Raising awareness is very important to them as many children with this disease are misdiagnosed. I will share some links below that will help explain what Gibson (and they) is experiencing.
Please, send their guy good vibes & prayers, and if possible, please help them to offset the costs of specialists/treatments as they are NOT covered by health insurances, and are entirely out of pocket. Getting him to someone who knows this devastating disease is their top priority.
https://vimeo.com/159385789
http://www.pandasnetwork.org/
Organizer
Gibson Tanner
Organizer
Flint, MI
