Simone: a survivor's story

by Ed Maximus
Simone a survivor's story
ED MAXIMUS

TEAM CREDITS:

Creative Director & Photographer: Ed Maximus // www.edmaximus.com // @edmaximus

Director: Sonia Malfa (Good Company) // www.goodco.tv/creatives/sonia-malfa // @sonsoll

Cinematographer: Lisa Rinzler // @rinzlerl

Model & Talent #1: Simone Awor // @simoneawor

Fashion Editor: Yety Akinola // www.yetyakinola.com // @yetyakinola

Executive Producer: Trevor Potts // www.goodco.tv // @goodcopix

Producer: Gisell Cabrera & Maki Sonobe

Production Designer: Rebekka Fellah // www.rebekkafellah.com // @rebekkafellah

Art Director: Chloe T. Nelson

Makeup Artist #1 (Motion & Still): Tara Lauren // www.taralauren.com // @taralauren

Makeup Artist #2 (Motion): Geeta Khanna // www.geetakhanna.com // @makeupbygeeta

Manicurist: Riwako Kobayashi

Gaffer: Moe Larena // @moemoneymayhem

Movement Director: Roya Carreras // www.royacarreras.com // @royacarreras

Motion Director: Roya Carreras

Photographer Assistants: Noah Bility & Poochie Collins

1st Assistant Camera: Sidney Gomes // @frvnce

Styling Assistants: Ellie Salaun & Erica Boisaubin

Producer Assistants: Camila Rueda & Gabrielle Lia

Dancer: Jamie Lee Rodney

Talent #2: Christabel Campbell

Talent #3 & Driver #1: Azuka Okeke

Driver #2: Omola Ochei

Driver #3: Edozie Eze

Floral Artist: Sreydy Ziobro // @phka_designs

BTS Photographer: Nyasia Sylvester

Editor: Drew Horen

Composer: Eli Fola // www.elifola.co // @eli.fola

Sound Designer/Mixer: Nicholas Montgomery

Colorist: Daniel Silverman

Color Grade Facility: Moving Picture Company // www.moving-picture.com

SHOT AT:

7Line Studio // www.7linestudio.com // @7linestudio

InnisFree Garden // www.innisfreegarden.org

SPECIAL THANKS TO: Alliah Sophia Mourad || Anne Hubbell || Dominique Babineaux || Ed Koenig || George Brown Studios || Kate Kerin || Kodak || Kodie-Ann Miller || Newel Props || Robert Mastronardi || Cloak || True and Co.

VIDEO FASHION CREDITS:

Nature Scene with Couple

Simone:

Suit by Danielle Frankel; www.daniellefrankelstudio.com Earrings by BJORG ; https://bjorgjewellery.com

Azuka:

Suit and shirt by BOSS; www.hugoboss.com

Hospital Scene

Top, Skirt with belt by Victoria Beckham; www.international.victoriabeckham.com Coat by DROMe ; www.drome.it

Heels by Manolo Blahnik; www.manoloblahnik.com

Earrings by Annika Inez; www.annikainez.com

Nature Scene with Friend

Simone:

Dress by Coach 1941 ; www.coach.com

Christabel:

Top by Danielle Frankel; www.daniellefrankelstudio.com Skirt, Vintage

IN DEDICATION TO: DR. JANE FRANCES NYABURU OKOTH

Doctor, Mother, Humanitarian

December 5th, 1957 - March 1st, 2018

She was the second woman doctor from her tribe the Jopadhola in Tororo, Uganda. 

After a long and brave journey with Breast Cancer she passed away in March 2018

She is survived by her four children Simone, Pinto, Lawrence, Paul; and the Okoth and Adhola families.

Simone: a survivor's story by Ed Maximus
Gallery8 Immagini
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ABOUT the PROJECT:

I have known Simone since I first moved to NYC 5 years ago. Although we didn’t meet in person until this year, we were always casually chatting on Social Media. In 2017, when I found out she was diagnosed with cancer, I became worried and was always checking up on her to see if she was OK. When we finally met earlier this year, she told me everything she went through for the past 2 years. I was blown away by her story and immediately wanted to facilitate a mean for her to tell it to the world. This project is a testament to her strength and resilience as a human being.

Below is Simone in her own word:

“While on set for this project, it felt like I was living out my childhood dreams. I was surrounded by a team of creatives, some old friends and some new faces that have now become dear friends in my heart. I also found myself processing a grief that was difficult, if not dangerous, to access during treatment.

My mother passed away just a few weeks before I was to start chemotherapy. I was facing the worst fear of my life. My mother, my purest love, died. She was such a formidable force within the Ugandan community enclave and a beacon to my life. My sun, my North Star, my guardian angel had suddenly dispersed amongst the cosmos… Unbeknownst to me, she had disclosed to her sisters that she hoped I would be able to tolerate the pain of cancer treatment. What I would give to show her that I was able to not only tolerate the pain but flourish for moments like this.

After seeing the first cut of the short movie, I didn’t know what to say or do with myself. I had the same rush of inspiration that a good story often gives me. I turned to my husband and looked at him in shock: “Babe, that was amazing. And… that’s me. She’s not a fictional character, she’s me!”.  

This project has given me the opportunity to stand beside myself and see, perhaps, what those around me had witnessed. I was too busy trying to survive, heal, and wade in the deep waters of grief without being taken by the undercurrents of despair. I didn’t allow myself much time to think about how this journey was changing me. But thanks to Ed Maximus, Sonia Malfa, and everyone else involved, I finally saw a bit of my light reflected to me. What a gift! It’s a rare opportunity to watch oneself rise from ashes.

My journey through cancer and my mother’s passing have also provided me a chance to fully explore self-love. I had ample time to ask myself what I wanted out of my life, now that I have been given a second chance. This project gave me one answer out of many. I want to live a life full of creativity, job, and meaning. I want my life itself to read like a work of meaningful art. I want to collaborate with people I respect and care about. My desire is to live authentically and with grace.

I’m writing this reflection from Kampala, Uganda. The city I was born in. The city where I am currently experiencing a rebirth. It has been about a week since I had the opportunity to visit my mother’s grave for the first time since her passing in March 2018. I was too ill then due to chemotherapy to travel to our home country and attend her funeral. I had no idea how much pain I was detached from until I finally saw her tombstone.

Kampala, city of birth, city of rebirth in this post cancer life… I have been surrounded by family from both maternal and paternal side since I arrived here. My younger cousins have been doting on me. The cousins closer to my age have been providing me companionship. I now can fully process and cope with the grief that I had been avoiding out of fear and pragmatism..."