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Tried out the Maple Roasted Brussel Sprouts recipe from @medicalmedium today! I was skeptical because I these aren’t my go to food. This recipe surprised me! Tastes like candy and it’s healthy! 😱 I had no idea how awesome this food is for our body! It has the ability to cling to toxins in our liver and pull them out of the body. 😱✨😱🌱🌱 Check him out and his other recipes! His info was my missing piece to my chronic illness/autoimmune puzzle. 🙏🏻💖🙏🏻 #medicalmedium #brusselsprouts #toxins #autoimmunedisease #chronicillness #foodsthatheal #roastedmaple

2018-11-19 01:25   0 0

 

Tried out the Maple Roasted Brussel Sprouts recipe from @medicalmedium today! I was skeptical because I these aren’t my go to food. This recipe surprised me! Tastes like candy and it’s healthy! 😱 I had no idea how awesome this food is for our body! It has the ability to cling to toxins in our liver and pull them out of the body. 😱✨😱🌱🌱 Check him out and his other recipes! His info was my missing piece to my chronic illness/autoimmune puzzle. 🙏🏻💖🙏🏻 #medicalmedium #brusselsprouts #toxins #autoimmunedisease #chronicillness #foodsthatheal #roastedmaple

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 #spirithealingtea  #healingtea #detoxtea #medicalmediumdetox #chronicillness #mysteryillness #medicalmediumlifestyle #medicalmedium #lifechangingfoods  #medicalmediumwarrior  #healinginseattle #muneeza_medical_intuitive #mmtribe #medicalmediumcommunity #unitedbyhealing #unitedbymedicalmedium #liverrescue #liverdetox #liverhealing #liverchai #369livercleanse #369liverrescuecleanse #chai #cinnamon #turmeric #cardamom #ginger #fennel #cloves #nutmeg

2018-11-19 01:23   2 0

 

THE BENEFITS OF OUR LIVER CHAI ARE POTENT⁣ ⁣ Our Liver Chai has been formulated to fortify your healing with a rich, spicy, and mildly earthy blend of immune-boosting anti-inflammatory herbs and spices that lend a helping hand to your liver and nourish your body. Liver Chai is our own proprietary herbal and aromatic blend of: ⁣ ⁣ BLACKBERRY LEAF⁣ CINNAMON⁣ TURMERIC⁣ CARDAMOM⁣ GINGER⁣ FENNEL⁣ CLOVES⁣ NUTMEG⁣ ⁣ Learn more about how these powerful ingredients can help your liver by following the link in our bio: https://www.spirithealingtea.com/chai/⁣ ⁣ ⁣ #spirithealingtea #healingtea #detoxtea #medicalmediumdetox #chronicillness #mysteryillness #medicalmediumlifestyle #medicalmedium #lifechangingfoods #medicalmediumwarrior #healinginseattle #muneeza_medical_intuitive #mmtribe #medicalmediumcommunity #unitedbyhealing #unitedbymedicalmedium #liverrescue #liverdetox #liverhealing #liverchai #369livercleanse #369liverrescuecleanse #chai #cinnamon #turmeric #cardamom #ginger #fennel #cloves #nutmeg

🌹Day 17🌹Dear CF, thank you for teaching me how negative things can always change a life for the better. In the world we live in today, there are things like war, discrimination, and denial of basic human rights. But from all of those awful things and more, people have come together in beautiful ways. 
You have taken so much from me, but through that I have been able to find joy. It took a lot to get me to the place I am now mentally, but I am here. You stole my body, yet I remain strong despite my bad days.
How does that happen? Lots of therapy (facts lol) and determination. Determination to survive and see what the next day will bring. I know the easiest thing would be to give up, and to succumb to you. But life’s trials are nothing but passing circumstances that I could overcome. I never got to choose you, but thank you for choosing me.
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 #FightLikeAWarrior #SickFightsBack #CFirl #CysticFibrosis #65Roses #JustBreathe #CureCF #CFAwareness #FightingFibrosis #FuCF #ChronicIllness #Spoonie #InvisibleIllness #CFFighter #Salty #CysticFibrosisAwareness

2018-11-19 01:23   9 0

 

🌹Day 17🌹Dear CF, thank you for teaching me how negative things can always change a life for the better. In the world we live in today, there are things like war, discrimination, and denial of basic human rights. But from all of those awful things and more, people have come together in beautiful ways. You have taken so much from me, but through that I have been able to find joy. It took a lot to get me to the place I am now mentally, but I am here. You stole my body, yet I remain strong despite my bad days. How does that happen Lots of therapy (facts lol) and determination. Determination to survive and see what the next day will bring. I know the easiest thing would be to give up, and to succumb to you. But life’s trials are nothing but passing circumstances that I could overcome. I never got to choose you, but thank you for choosing me. • • • • • • #FightLikeAWarrior #SickFightsBack #CFirl #CysticFibrosis #65Roses #JustBreathe #CureCF #CFAwareness #FightingFibrosis #FuCF #ChronicIllness #Spoonie #InvisibleIllness #CFFighter #Salty #CysticFibrosisAwareness

Dear mini Tylenol: thank you for being so compact and travel friendly ❤️, me
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 #lymetreatment #lymedisease #lymediseaseawareness #newhorizonsservicedogs #goldenretriever #mobilityservicedog #invisibleillness #happiness #mindbody #freedom #healing #healthcare #holisitc #autoimmune #chronicillness #chronicillnesswarrior #autoimmunedisease #hashimotos #gofruityourself #detox #cleanse #meditation #mentalhealth #nutrition #holisitic #homeopathic

2018-11-19 01:23   3 0

 
This is the least sexy breakfast of all time: stir fry cabbage, tomato, carrots and egg. BUT used the leftovers as lunch on the plane. Bringing my own food with me on the plane has saved me so many times. They typically only have sandwiches onboard or pretzals, neither of which I can eat 🚫. #healthjourney #chronicillness #sibodiet #dysbiosis #healthyfood #paleo #paleodiet

2018-11-19 01:22   3 2

 

This is the least sexy breakfast of all time: stir fry cabbage, tomato, carrots and egg. BUT used the leftovers as lunch on the plane. Bringing my own food with me on the plane has saved me so many times. They typically only have sandwiches onboard or pretzals, neither of which I can eat 🚫. #healthjourney #chronicillness #sibodiet #dysbiosis #healthyfood #paleo #paleodiet

“Only in the darkness can you see the stars.” ~ Martin Luther King Jr.
“If you stumble make it part of the dance.” ~unknown
 #autoimmunedisease #chronicillness #spoonie #spooniecommunity #chronicpain #chronicpainawareness #lupus #warrior #survivor #fibromyalgia #diabetes #onlinesupport #onlinecommunity #supportgroup #breastcancerawareness #breastcancerawarenessmonth #spoontheory #autoimmunewarrior #cancersurvivor #autoimmunewarrior #healthandwellness #inspiration #inspirationalquote

2018-11-19 01:21   3 0

 
✨My sweet little cuddle bugg and I earlier today... this is basically my mood all day today😴💤 Sleepy sleepy weirdo for life. I love my sweet Lulu, she is always down for snuggles & lovins. I also love friends who are down to just lay in bed with me all afternoon✨
📷: @photography_by_jrs ❤️
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 #chronicpain #chronicillness #cuddles #eds #pots #mcad #ehlersdanlossyndrome #dysautonomia #mastcell #mastcellactivationdisorder #dogsofinstagram #buggsofinstagram #spoonie #spooniedog #zebra #zebrastrong #bendyaf #darkcomedy #photography #momanddaughter

2018-11-19 01:20   3 0

 

✨My sweet little cuddle bugg and I earlier today... this is basically my mood all day today😴💤 Sleepy sleepy weirdo for life. I love my sweet Lulu, she is always down for snuggles & lovins. I also love friends who are down to just lay in bed with me all afternoon✨ 📷: @photography_by_jrs ❤️ . . . . . . . . #chronicpain #chronicillness #cuddles #eds #pots #mcad #ehlersdanlossyndrome #dysautonomia #mastcell #mastcellactivationdisorder #dogsofinstagram #buggsofinstagram #spoonie #spooniedog #zebra #zebrastrong #bendyaf #darkcomedy #photography #momanddaughter

This was a wild bird.

 #fibromyalgia
 #fibro
 #naturephotography
 #chronicillness
 #mydream
 #fortheloveofnature

https://www.shutterstock.com/g/sw_art

2018-11-19 01:18   0 0

 

This was a wild bird. #fibromyalgia #fibro #naturephotography #chronicillness #mydream #fortheloveofnature https://www.shutterstock.com/g/sw_art

External goals vs internal goals. Here’s a little before and after. Some people may think you must really regret spending all that money, time, and jeopardizing your health just to have some fake boobs for a few years... but I don’t. #noregrets 😝. Honestly I have been dealing with some ptsd from this past week but not regret. Knowing myself, I’m someone that can be told that fire is hot and ice is cold a thousand times but if I don’t feel it for myself, I’ll never be satisfied. I know if I never went through this journey, I would never have had the amount of appreciation for my body and health as I do now. All my life I was reminded over and over again the importance of external beauty. Now I say🖕🏻that. It gives me a bit of hope by spreading awareness that it might prevent someone else from going through this difficult path. Take your health into your own hands and do your research. No surgeon, physician, medical professional is responsible for your body for the rest of their lives as you are.
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 #mirrorselfie #beforeandafter #explant #transformation #explantjourney #explantsurgery #breastimplantillness #bii #awareness #breastimplants #breastaugmentation #silicone #toxinfree #ittybittytittycommittee #selflove #acceptance #fitfam #veganfitness #fitness #fitlife #health #chronicillness #healthjourney #autoimmune #autoimmunedisease #가슴 #성형 #건강

2018-11-19 01:18   12 1

 

External goals vs internal goals. Here’s a little before and after. Some people may think you must really regret spending all that money, time, and jeopardizing your health just to have some fake boobs for a few years... but I don’t. #noregrets 😝. Honestly I have been dealing with some ptsd from this past week but not regret. Knowing myself, I’m someone that can be told that fire is hot and ice is cold a thousand times but if I don’t feel it for myself, I’ll never be satisfied. I know if I never went through this journey, I would never have had the amount of appreciation for my body and health as I do now. All my life I was reminded over and over again the importance of external beauty. Now I say🖕🏻that. It gives me a bit of hope by spreading awareness that it might prevent someone else from going through this difficult path. Take your health into your own hands and do your research. No surgeon, physician, medical professional is responsible for your body for the rest of their lives as you are. . #mirrorselfie #beforeandafter #explant #transformation #explantjourney #explantsurgery #breastimplantillness #bii #awareness #breastimplants #breastaugmentation #silicone #toxinfree #ittybittytittycommittee #selflove #acceptance #fitfam #veganfitness #fitness #fitlife #health #chronicillness #healthjourney #autoimmune #autoimmunedisease #가슴 #성형 #건강

This week and weekend has been one for the books. So daddy and the boys surprised me with some beautiful roses🌹

2018-11-19 01:17   0 1

 

This week and weekend has been one for the books. So daddy and the boys surprised me with some beautiful roses🌹

Wet tulip from spring.

 #fibromyalgia
 #fibro
 #naturephotography
 #photography
 #chronicillness
 #mydream
 #fortheloveofnature

https://www.shutterstock.com/g/sw_art

2018-11-19 01:17   0 0

 

Wet tulip from spring. #fibromyalgia #fibro #naturephotography #photography #chronicillness #mydream #fortheloveofnature https://www.shutterstock.com/g/sw_art

“Finish every day and be done with it. You have done what you could; some blunders and absurdities no doubt crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.”
~ Ralph Waldo Emerson
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Leave today’s troubles behind. Start to tomorrow with a positive attitude. You never know what amazing things will come to you. If troubles come you’ll be Grady to face them.
Stay Spoonie Strong!🥄
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 #quotes #inspirationalquotes #inspiration #poet #author #ralphwaldoemerson #fibromyalgia #fibromyalgiaawareness #fibromyalgiawarrior #autism #autismawareness #autismmom #chronicpain #pain #chronicpainwarrior #chronicillness #invisibleillness #spooky #spookyspoonie #spoonie #spooniegoth #goth #spooniestrong

2018-11-19 01:16   8 0

 

“Finish every day and be done with it. You have done what you could; some blunders and absurdities no doubt crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.” ~ Ralph Waldo Emerson 🖤 🦇 🖤 Leave today’s troubles behind. Start to tomorrow with a positive attitude. You never know what amazing things will come to you. If troubles come you’ll be Grady to face them. Stay Spoonie Strong!🥄 🖤 🦇 🌔 🦇 🖤 #quotes #inspirationalquotes #inspiration #poet #author #ralphwaldoemerson #fibromyalgia #fibromyalgiaawareness #fibromyalgiawarrior #autism #autismawareness #autismmom #chronicpain #pain #chronicpainwarrior #chronicillness #invisibleillness #spooky #spookyspoonie #spoonie #spooniegoth #goth #spooniestrong

Uhhhhh. Sometimes a picture gets messed up, but ends up cool, too!

 #fibromyalgia
 #fibro
 #naturephotography
 #chronicillness
 #mydream
 #fortheloveofnature

https://www.shutterstock.com/g/sw_art

2018-11-19 01:15   0 0

 

Uhhhhh. Sometimes a picture gets messed up, but ends up cool, too! #fibromyalgia #fibro #naturephotography #chronicillness #mydream #fortheloveofnature https://www.shutterstock.com/g/sw_art

Mini health up date! These last few days have been...rough. The new meds they gave me did help in the slightest. I was more swollen then I had been when we first started meds 2 years ago. My hands, feet, knees and ankles were very swollen and painful. I was having teribble migraines and was just doing really poorly. I decided to switch back to my old meds but it was getting so bad. I will have to let the doctor know tomorrow. It was just so bad I couldn't wait for him to approve. They doubled my nausea meds which isn't doing much of a difference but I am going to keep taking the new dose. And we are schedualed to see the surgeon who will do my biopsies for a conciliation on the 27th. We will schedual the actual biopsies that day. And last but certainly not least! I HAVE A NEW SYMPTOM! Smoke, fragrances, odors and dust all cause HORRIBLE pain in my throat and chest. It feels like I'm choking but I can breathe fine and swollow normally. I don't have asthma and its not anaphylaxis. We are guessing that the Small fibers in my throat have now been damaged and SF pain is trigger by any sensation (touch, smell, temperature ECT.)
So yeah...I'm pretty shitty and am try to keep fighting my battles as hard as possible even on the horrible days 💓
Photo at usf syndrome for women's basketball game today
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 #chronicillnesssupport #chronicillnessbadday #chronicpain #chronicillnesslife #chronicillnessproblems #chronicillnessgoodday #chronicillnesses #chronicallyill #chronicillness #chronicpainwarrior #chronicillnesswarrior #spoons #spoonies #spoonie #spooniewarrior #spoonielife #spoonieproblems #spooniesupport #smallfiberneuropathy #finalfour

2018-11-19 01:14   3 0

 

Mini health up date! These last few days have been...rough. The new meds they gave me did help in the slightest. I was more swollen then I had been when we first started meds 2 years ago. My hands, feet, knees and ankles were very swollen and painful. I was having teribble migraines and was just doing really poorly. I decided to switch back to my old meds but it was getting so bad. I will have to let the doctor know tomorrow. It was just so bad I couldn't wait for him to approve. They doubled my nausea meds which isn't doing much of a difference but I am going to keep taking the new dose. And we are schedualed to see the surgeon who will do my biopsies for a conciliation on the 27th. We will schedual the actual biopsies that day. And last but certainly not least! I HAVE A NEW SYMPTOM! Smoke, fragrances, odors and dust all cause HORRIBLE pain in my throat and chest. It feels like I'm choking but I can breathe fine and swollow normally. I don't have asthma and its not anaphylaxis. We are guessing that the Small fibers in my throat have now been damaged and SF pain is trigger by any sensation (touch, smell, temperature ECT.) So yeah...I'm pretty shitty and am try to keep fighting my battles as hard as possible even on the horrible days 💓 Photo at usf syndrome for women's basketball game today . . #chronicillnesssupport #chronicillnessbadday #chronicpain #chronicillnesslife #chronicillnessproblems #chronicillnessgoodday #chronicillnesses #chronicallyill #chronicillness #chronicpainwarrior #chronicillnesswarrior #spoons #spoonies #spoonie #spooniewarrior #spoonielife #spoonieproblems #spooniesupport #smallfiberneuropathy #finalfour

b l i s s 🦋

2018-11-19 01:14   6 1

 

b l i s s 🦋

Add cough drops, diet Pepsi, a heater near my feet and a warm cozy blanket and you've got my weekend! I think the Zicam is working though because *knock on wood* my symptoms are about half as bad as everyone else's. I'm hoping to feel better by the second half of this week though, because I have a major procedure Wednesday and we're hosting 22 people for Thanksgiving on Thursday. 
 #beatms #curems #disablednotunable #thisisms #disabledbuttrying #degenerativediscdisease #fightingms #multiplesclerosis #mswarrior #cpap #sleepapnea #gastroperisis #staystrong #chronicallyill #chronicillness #chronicfatigue #spoonie #invisibledisease #invisibleillness #disabilityawareness #mentalhealthawareness #ourpainlife

2018-11-19 01:13   3 0

 

Add cough drops, diet Pepsi, a heater near my feet and a warm cozy blanket and you've got my weekend! I think the Zicam is working though because *knock on wood* my symptoms are about half as bad as everyone else's. I'm hoping to feel better by the second half of this week though, because I have a major procedure Wednesday and we're hosting 22 people for Thanksgiving on Thursday. #beatms #curems #disablednotunable #thisisms #disabledbuttrying #degenerativediscdisease #fightingms #multiplesclerosis #mswarrior #cpap #sleepapnea #gastroperisis #staystrong #chronicallyill #chronicillness #chronicfatigue #spoonie #invisibledisease #invisibleillness #disabilityawareness #mentalhealthawareness #ourpainlife

I lost the battle but I’ll win the war #prednisone
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Sitting alone in my hospital cubicle feeling a little empty, a little terrified, a little disappointed in myself for returning to these pills even though my colon needs them, a little confused that something can fix your inflammation and ruin your brain?????🧠
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Just sitting uncomfortably with my thoughts tonight. Sitting uncomfortably with my little white pills and praying they allow me to go home even tho I have to close my eyes and grimace every time I swallow one
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Learning how to sit uncomfortably so that I can win the war 🤟🏼 don’t fuck with me Crohn’s Disease this isn’t my first rodeo. Just cuz I’m sad doesn’t mean I’m done here
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If this goes well I can get my IVs out soon!!! >>>>
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 #crohns #crohnsdisease #colitis #gratitude #prednisone #chronicfatiguesyndrome #chronicpain #chronicillness #chronicfatigue #ibd #gut #colon #hospital #strength #grace #invisibleillness #mentalhealth #mentalhealthawareness #like #nursingschool #thrive #learning #growth

2018-11-19 01:12   30 3

 

I lost the battle but I’ll win the war #prednisone • Sitting alone in my hospital cubicle feeling a little empty, a little terrified, a little disappointed in myself for returning to these pills even though my colon needs them, a little confused that something can fix your inflammation and ruin your brain🧠 • Just sitting uncomfortably with my thoughts tonight. Sitting uncomfortably with my little white pills and praying they allow me to go home even tho I have to close my eyes and grimace every time I swallow one • Learning how to sit uncomfortably so that I can win the war 🤟🏼 don’t fuck with me Crohn’s Disease this isn’t my first rodeo. Just cuz I’m sad doesn’t mean I’m done here • If this goes well I can get my IVs out soon!!! >>>> • • #crohns #crohnsdisease #colitis #gratitude #prednisone #chronicfatiguesyndrome #chronicpain #chronicillness #chronicfatigue #ibd #gut #colon #hospital #strength #grace #invisibleillness #mentalhealth #mentalhealthawareness #like #nursingschool #thrive #learning #growth

Last night the pain was horrible. I was tired early, so I went to sleep at 10.30pm, but was woken up an hour and a half later by 8/10 pain in my right thigh. I think my hip was the problem, because there was some pain there, and some radiating to my knee and calf.
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I tried to ignore it, but it was hard to even breath through it. By the pain scale I use, an 8/10 is "pain that would only be distracted by another severe pain like having your leg bone snapped". I literally even thought maybe I could do this by beating my broken foot until the bone snapped again just to distract, but I did realise that'd be unhelpful. I got up, got a heatpack, ignored the fact that I possibly have a stomach ulcer and took some prescription anti-inflammatories.
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Unfortunately the heat made it worse, so I threw that on my sore shoulder. Tried to ignore the pain again, but it crept up to a 9/10 - defined on my scale by "the worst pain you've ever experienced without passing out; not even someone snapping your bones would distract". I felt so sick, my breathing was shallow and I had to make a pact with myself that if I tried ice and the last endone I had, and got no relief, I really had to go to hospital.
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Thankfully it did work. It brought it down to a 7/10 within 20 minutes, and then within 2 hours it was brought down enough that I could sleep. I'm still hurting quite a lot in that hip and thigh this morning, but it's a reminder for me to call the orthopedic surgeon to get booked in for the double total hip replacement. This is not a pain I want to experience again.

 #chronicillness #chronicpain #pain #hipdysplasia #rheumatoidarthritis #fibromyalgia #connectivetissuedisorder #autoimmunedisorder #autoimmunedisease #autoimmune #crutches #zebrastrong #spoonie

2018-11-19 01:09   4 0

 

Last night the pain was horrible. I was tired early, so I went to sleep at 10.30pm, but was woken up an hour and a half later by 8/10 pain in my right thigh. I think my hip was the problem, because there was some pain there, and some radiating to my knee and calf. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I tried to ignore it, but it was hard to even breath through it. By the pain scale I use, an 8/10 is "pain that would only be distracted by another severe pain like having your leg bone snapped". I literally even thought maybe I could do this by beating my broken foot until the bone snapped again just to distract, but I did realise that'd be unhelpful. I got up, got a heatpack, ignored the fact that I possibly have a stomach ulcer and took some prescription anti-inflammatories. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Unfortunately the heat made it worse, so I threw that on my sore shoulder. Tried to ignore the pain again, but it crept up to a 9/10 - defined on my scale by "the worst pain you've ever experienced without passing out; not even someone snapping your bones would distract". I felt so sick, my breathing was shallow and I had to make a pact with myself that if I tried ice and the last endone I had, and got no relief, I really had to go to hospital. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Thankfully it did work. It brought it down to a 7/10 within 20 minutes, and then within 2 hours it was brought down enough that I could sleep. I'm still hurting quite a lot in that hip and thigh this morning, but it's a reminder for me to call the orthopedic surgeon to get booked in for the double total hip replacement. This is not a pain I want to experience again. #chronicillness #chronicpain #pain #hipdysplasia #rheumatoidarthritis #fibromyalgia #connectivetissuedisorder #autoimmunedisorder #autoimmunedisease #autoimmune #crutches #zebrastrong #spoonie

So much truth to this. I am drained. Physically, mentally, and emotionally. I have had a migraine literally every day this month so far. Nothing I do stops it from coming back. I am so nauseated I can hardly eat and when I can it seems like I am too exhausted to actually cook. I know that things will turn around again but the year and a half since the Botox quit working have been hell on earth. I am hopeful though. I have an appointment with another new neurologist in three weeks. This one is a migraine/headache specialist that is in the practice that did my mom's surgery. I have to go to Omaha but at this point I would go to Timbuktu if it would help. And there are now three migraine specific preventatives on the market so hopefully she will be open to putting me on one (Iowa City didn't want me to be their guinea pig since they are without a migraine/headache specialist). Fingers crossed that this flare ends soon and that the new neurologist can help me get my migraines back under control so I can have my life back. Until then I guess I will just keep taking things one day at a time. #frustrated #strength #neurologist #drained #keepmovingforward #faith #workinprogress #hope #onedayatatime #onemomentatatime #geekygirl #geeklife #cosplaygirl #mentalhealthawareness #alwayskeepfighting #anxiety #bpd #idontmind #recovery #chronicmigraines #chronicillness #chronicpain #iamnotmyillness #spoonie #fibromyalgia #suicideawareness #suicideprevention

2018-11-19 01:08   5 1

 

So much truth to this. I am drained. Physically, mentally, and emotionally. I have had a migraine literally every day this month so far. Nothing I do stops it from coming back. I am so nauseated I can hardly eat and when I can it seems like I am too exhausted to actually cook. I know that things will turn around again but the year and a half since the Botox quit working have been hell on earth. I am hopeful though. I have an appointment with another new neurologist in three weeks. This one is a migraine/headache specialist that is in the practice that did my mom's surgery. I have to go to Omaha but at this point I would go to Timbuktu if it would help. And there are now three migraine specific preventatives on the market so hopefully she will be open to putting me on one (Iowa City didn't want me to be their guinea pig since they are without a migraine/headache specialist). Fingers crossed that this flare ends soon and that the new neurologist can help me get my migraines back under control so I can have my life back. Until then I guess I will just keep taking things one day at a time. #frustrated #strength #neurologist #drained #keepmovingforward #faith #workinprogress #hope #onedayatatime #onemomentatatime #geekygirl #geeklife #cosplaygirl #mentalhealthawareness #alwayskeepfighting #anxiety #bpd #idontmind #recovery #chronicmigraines #chronicillness #chronicpain #iamnotmyillness #spoonie #fibromyalgia #suicideawareness #suicideprevention

HDC: Diabetes and Society
I don’t use the word “society” on it’s own because it’s vague, so let me be a little more specific: TODAY WE GON’ TALK ABOUT PEOPLE WHO DON’T HAVE TYPE 1 BUT THINK THEY KNOW ‘BOUT THIS LIFE
At the time of this fb post I was a waitress, serving a man who 1) tried to tell me how to make my diabetes “go away” then 2) asked me how I got it. 🤦‍♀️ It would have been different if the conversation started with the question—if you don’t know what type 1 is, asking how you get type 1 is a valid question. Instead he went on a rant about what he thinks I’m supposed to do, imposing his bullshit on me, rather than ASKING me to explain MY disease. When he asked how I got it, he wasn’t thoughtfully curious—he was interrogating me.
My friends have heard me talk a lot about t1d, so the comments in the first screenshot are sarcastic and funny.
The comment in the second screenshot blew my mind. Here I was, explaining that t1d is permanent, and here was a former coworker, telling me that’s debatable. 🙃🙃🙃
[takes some deep breaths]
You see... even if I became a special vegan, being told I can make my autoimmune disease go away makes me so fucking angry, it makes my blood sugar go up without even eating anything. There are approximately 22 factors that affect blood sugar, not just food (s: diaTribe).
My message to people without t1d: stop telling. Stop. Stop. Stop. Ask me or the t1d you know to show you.

 #happydiabeticchallenge #t1d #diabetes #ndam #autoimmunedisease #chronicillness #misconception

2018-11-19 01:06   6 1

 

HDC: Diabetes and Society I don’t use the word “society” on it’s own because it’s vague, so let me be a little more specific: TODAY WE GON’ TALK ABOUT PEOPLE WHO DON’T HAVE TYPE 1 BUT THINK THEY KNOW ‘BOUT THIS LIFE At the time of this fb post I was a waitress, serving a man who 1) tried to tell me how to make my diabetes “go away” then 2) asked me how I got it. 🤦‍♀️ It would have been different if the conversation started with the question—if you don’t know what type 1 is, asking how you get type 1 is a valid question. Instead he went on a rant about what he thinks I’m supposed to do, imposing his bullshit on me, rather than ASKING me to explain MY disease. When he asked how I got it, he wasn’t thoughtfully curious—he was interrogating me. My friends have heard me talk a lot about t1d, so the comments in the first screenshot are sarcastic and funny. The comment in the second screenshot blew my mind. Here I was, explaining that t1d is permanent, and here was a former coworker, telling me that’s debatable. 🙃🙃🙃 [takes some deep breaths] You see... even if I became a special vegan, being told I can make my autoimmune disease go away makes me so fucking angry, it makes my blood sugar go up without even eating anything. There are approximately 22 factors that affect blood sugar, not just food (s: diaTribe). My message to people without t1d: stop telling. Stop. Stop. Stop. Ask me or the t1d you know to show you. #happydiabeticchallenge #t1d #diabetes #ndam #autoimmunedisease #chronicillness #misconception

I call this the I didn’t have much left in the kitchen/I’m trying to up my health game bowl. 😂 Full of frozen bananas, frozen strawberries, kiwis, @vimergy barleygrass juice powder, @hawaiianspirulina, @terrasoul amla powder, and raw @holdmanhoney. Topped I put strawberries, frozen blackberries, banana, dried mulberries, and pomegranate seeds. ❤️ Curious as to why I use the powders I use? Check out @medicalmedium and his new book Liver Rescue!

2018-11-19 01:06   21 3

 

I call this the I didn’t have much left in the kitchen/I’m trying to up my health game bowl. 😂 Full of frozen bananas, frozen strawberries, kiwis, @vimergy barleygrass juice powder, @hawaiianspirulina, @terrasoul amla powder, and raw @holdmanhoney. Topped I put strawberries, frozen blackberries, banana, dried mulberries, and pomegranate seeds. ❤️ Curious as to why I use the powders I use Check out @medicalmedium and his new book Liver Rescue!

Happy Sunday! I’ve been wanting to share how I got my fitness routine started for awhile, and in honor of seeing the BTS movie today, I thought it was perfect timing! (Long post ahead!)
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Sooo yes, one of my guilty pleasures is k-pop, and more specifically the band BTS. When I first started living a healthier lifestyle, it was hard for me to commit to anything... all exercise was too painful, too difficult, too expensive, or just plain boring. On top of it all, my Fibromyalgia limited my mobility and tolerance levels, so I often ended up extremely frustrated and disappointed. BUT - then I found @kkardiodance. They used the k-pop music I loved and turned them into easy to follow dance routines. At first I was just stepping back and forth (because that’s all my body could handle at the time) but this group got me ~moving~. And one song after another I started dancing, and then I started building muscle, and all the while I was having FUN (!) for the first time in so so long. *
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These days, I’m more about strength training with weights, but I never would have gotten to where I am today if I hadn’t discovered this group. *
*
My point is, start small. Find one thing you enjoy doing (even if it’s silly) that will get you moving and do it for 5 minutes. After a week of that, maybe see how 10 minutes feels. Keep going, slowly increasing intensity and length of time. Eventually you’ll get to where you want to be! But meet yourself where you are now. Start little and be kind to yourself. It’ll pay off in ways you can’t imagine. Stay strong friends. 💜 *
*
(Any BTS/KPop fans out there?? Comment below!) *
*
 #chronicpainhealth #workoutinspiration #healthylifestyle #healthyliving #kpop #bts #burnthestage #btsmovie #kkardio #dance #chronicpain #chronicillness #fibromyalgia #spoonie #spoonielife

2018-11-19 01:02   8 1

 

Happy Sunday! I’ve been wanting to share how I got my fitness routine started for awhile, and in honor of seeing the BTS movie today, I thought it was perfect timing! (Long post ahead!) * * Sooo yes, one of my guilty pleasures is k-pop, and more specifically the band BTS. When I first started living a healthier lifestyle, it was hard for me to commit to anything... all exercise was too painful, too difficult, too expensive, or just plain boring. On top of it all, my Fibromyalgia limited my mobility and tolerance levels, so I often ended up extremely frustrated and disappointed. BUT - then I found @kkardiodance. They used the k-pop music I loved and turned them into easy to follow dance routines. At first I was just stepping back and forth (because that’s all my body could handle at the time) but this group got me ~moving~. And one song after another I started dancing, and then I started building muscle, and all the while I was having FUN (!) for the first time in so so long. * * These days, I’m more about strength training with weights, but I never would have gotten to where I am today if I hadn’t discovered this group. * * My point is, start small. Find one thing you enjoy doing (even if it’s silly) that will get you moving and do it for 5 minutes. After a week of that, maybe see how 10 minutes feels. Keep going, slowly increasing intensity and length of time. Eventually you’ll get to where you want to be! But meet yourself where you are now. Start little and be kind to yourself. It’ll pay off in ways you can’t imagine. Stay strong friends. 💜 * * (Any BTS/KPop fans out there Comment below!) * * #chronicpainhealth #workoutinspiration #healthylifestyle #healthyliving #kpop #bts #burnthestage #btsmovie #kkardio #dance #chronicpain #chronicillness #fibromyalgia #spoonie #spoonielife

Keep your urine as least acidic as possible for your wounded bladder to heal faster! How? Eat raw vegan or raw+cooked vegan = alkaline urine. If you are not a vegan (I'm not, I love meat & dairy 😂) then just do it temporarily to speed up healing. One IC lady healed in 2 years eating raw vegan, now she's able to eat anything, lucky!🥦 I got out of severe bladder pain wheelchair in a few months eating a mostly veggies diet. Then when moderate bladder pain crept back this month (see Nov 13th post), I aggressively healed the bladder pain by 90% in 3 days by going full raw vegan (still am 'almost' raw vegan for now, I feel like a monkey 🐵🥑). Then I tracked my progress with PH strips on my urine. Sorry if this is kind of gross, this shot was taken 20 seconds after dipping a PH test paper into my urine sample.🚽 My 1st morning urine is always an acidic 5.5, but it increases to 6.8 - 8 (neutralish to alkaline) over the day from my vegan eats. I'm trying to keep it neutral-alkaline while I'm healing. I'm testing every wee to make sure I'm on the right track. I'll stop strip testing as soon as my bladder pain is 100% healed. How did I get this strip so alkaline? Today, I ate 1 raw avocado🥑, juiced a half-a-litre of glass of cucumber juicing🥒, had water all day, ate boiled beans, raw celery and romaine lettuce. I haven't ingested any baking soda today yet, but I will take 1/4 teaspoon at night with a glass of water. When I do the baking soda, the strip is super blue💧and the urine is so soothing! By the way, all I have left is moderate frequency (urge to wee is every 1 - 2 hours but I can hold up to 3 hrs) and mild bladder pain. My old 🔥fiery acid urine drips were gone by May or June b/c I did an alkaline veggie diet back then too. I will incorporate meat back again slowly, maybe in December.🍖🐟

2018-11-19 01:00   17 3

 

Keep your urine as least acidic as possible for your wounded bladder to heal faster! How Eat raw vegan or raw+cooked vegan = alkaline urine. If you are not a vegan (I'm not, I love meat & dairy 😂) then just do it temporarily to speed up healing. One IC lady healed in 2 years eating raw vegan, now she's able to eat anything, lucky!🥦 I got out of severe bladder pain wheelchair in a few months eating a mostly veggies diet. Then when moderate bladder pain crept back this month (see Nov 13th post), I aggressively healed the bladder pain by 90% in 3 days by going full raw vegan (still am 'almost' raw vegan for now, I feel like a monkey 🐵🥑). Then I tracked my progress with PH strips on my urine. Sorry if this is kind of gross, this shot was taken 20 seconds after dipping a PH test paper into my urine sample.🚽 My 1st morning urine is always an acidic 5.5, but it increases to 6.8 - 8 (neutralish to alkaline) over the day from my vegan eats. I'm trying to keep it neutral-alkaline while I'm healing. I'm testing every wee to make sure I'm on the right track. I'll stop strip testing as soon as my bladder pain is 100% healed. How did I get this strip so alkaline Today, I ate 1 raw avocado🥑, juiced a half-a-litre of glass of cucumber juicing🥒, had water all day, ate boiled beans, raw celery and romaine lettuce. I haven't ingested any baking soda today yet, but I will take 1/4 teaspoon at night with a glass of water. When I do the baking soda, the strip is super blue💧and the urine is so soothing! By the way, all I have left is moderate frequency (urge to wee is every 1 - 2 hours but I can hold up to 3 hrs) and mild bladder pain. My old 🔥fiery acid urine drips were gone by May or June b/c I did an alkaline veggie diet back then too. I will incorporate meat back again slowly, maybe in December.🍖🐟

"I, myself, am made entirely of flaws, stitched together with good intentions" Augusten Burroughs 
 #chronicpain #chronicillness #fibromyalgia #fibro #ocularmigraines #chronicheadaches #interstitialcystitis #ibs #pmdd #hormoneimbalance  #invisibleillness #spoonie #spoonielife #spooniefamily #spooniecommunity #anxiety #gad #generalizedanxietydisorder #ptsd #depression #insomnia #insomniac #existentialism #existentialist #highlysensitiveperson #hsp #highlysensitive #empath #empathetic #introvert

2018-11-19 01:00   5 0

 
“Whatever doesn’t kill you, simply makes you stranger”. I am 3 1/2 days into my 4 weeks of bedrest. I’m unwell enough to really need to just lay here and watch tv. After 6 years of complete disability, I may write a book about coping creatively with long term illness, with respect to ability/emotional needs/appropriate stimulation. For example: Friday night I needed to cry and accept my situation. Philadelphia is my go to “illness grieving” movie. Now, I need my super heroes. I need to believe in the extra ordinary. I need to believe in the fight for justice. I need Batman, Superman, X-men, Wonder Woman, and the Avengers. I need to tap right into my inner strength, dust off my cape and get through this next phase of healing. It’s ok to cry, it’s necessary to grieve but never stay down. Xoxo, bubble girl 🤷🏻‍♀️🦋😘 #sarayk #schizophreniadeconstructed #schizophrenia #mentalhealth #mentalillness #mentalhealthawareness #mentalhealthwarrior #mentalhealhadvocacy #mentalillnessawareness #mentalillnessadvocacy #emotions #emotionalhealth #anxiety #coping #copingskills #emotionalsustainability #staystrong #stayhumble #staygrateful #complexptsd #ptsd #trauma #emotionalfingerprint #chronicillness #chronicillnesswarrior #sickchic #disability

2018-11-19 01:00   5 0

 

“Whatever doesn’t kill you, simply makes you stranger”. I am 3 1/2 days into my 4 weeks of bedrest. I’m unwell enough to really need to just lay here and watch tv. After 6 years of complete disability, I may write a book about coping creatively with long term illness, with respect to ability/emotional needs/appropriate stimulation. For example: Friday night I needed to cry and accept my situation. Philadelphia is my go to “illness grieving” movie. Now, I need my super heroes. I need to believe in the extra ordinary. I need to believe in the fight for justice. I need Batman, Superman, X-men, Wonder Woman, and the Avengers. I need to tap right into my inner strength, dust off my cape and get through this next phase of healing. It’s ok to cry, it’s necessary to grieve but never stay down. Xoxo, bubble girl 🤷🏻‍♀️🦋😘 #sarayk #schizophreniadeconstructed #schizophrenia #mentalhealth #mentalillness #mentalhealthawareness #mentalhealthwarrior #mentalhealhadvocacy #mentalillnessawareness #mentalillnessadvocacy #emotions #emotionalhealth #anxiety #coping #copingskills #emotionalsustainability #staystrong #stayhumble #staygrateful #complexptsd #ptsd #trauma #emotionalfingerprint #chronicillness #chronicillnesswarrior #sickchic #disability

These potato pockets are for snacking. The kids thought they were great and I needed to use up some quinoa, sauce, and extra mushrooms from the pizza. .
The last time I made these they were thick so I worked at a thinner crust and nailed it!!
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You can find the original recipe on the @medicalmedium blog under recipes. .
I don’t rush to get these made because when they rest a bit they take shape and hold their shape much better.
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First I fill them up, reshape them and set them on the panini for the grill marks. {The kids love this part} once they are all grilled up we pop them in the over for a bit so they’re not ‘doughy’.
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These are great warm or cooled and will be snacking food for tomorrow while we run around like chickens with our heads cut off making sure we have everything we need to take with us. Also, we’ll be making these while in Vegas so my fambam can try them out.😜
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Have you made these before? I’m still trying to figure out the perfect filling...
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Any ideas what goes great with potatoes??
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 #medicalmedium #medicalmediumteenagers #medicalmediumlifestyle #healingfoods #potato #potatoes #plantbased #vegan #paleo #keto #love #foodie #healing #chronicillness

2018-11-19 00:57   16 0

 

These potato pockets are for snacking. The kids thought they were great and I needed to use up some quinoa, sauce, and extra mushrooms from the pizza. . The last time I made these they were thick so I worked at a thinner crust and nailed it!! . You can find the original recipe on the @medicalmedium blog under recipes. . I don’t rush to get these made because when they rest a bit they take shape and hold their shape much better. . First I fill them up, reshape them and set them on the panini for the grill marks. {The kids love this part} once they are all grilled up we pop them in the over for a bit so they’re not ‘doughy’. . These are great warm or cooled and will be snacking food for tomorrow while we run around like chickens with our heads cut off making sure we have everything we need to take with us. Also, we’ll be making these while in Vegas so my fambam can try them out.😜 . Have you made these before I’m still trying to figure out the perfect filling... . Any ideas what goes great with potatoes . #medicalmedium #medicalmediumteenagers #medicalmediumlifestyle #healingfoods #potato #potatoes #plantbased #vegan #paleo #keto #love #foodie #healing #chronicillness

Keep letting go. Yes you heard me right! There are many things I hold onto that I don’t need in my life, and which take up a limited slot. The only way to let better things in is to make space for it, by letting certain things go. An exchange if you will. Make it a good one!⠀
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 #achronicvoice #spoonie #spoonielife #spoonies #spoonieproblems #invisibleillness #awareness #mentalhealth #mentalillness #mentaldisorder #chronicillness #chroniclife #chronicpain #disability #selfcare #selfawareness #letgo #letitgo #selfbelief #havefaith #maketime #makespace #lifelessons #thoughts #personalgrowth #change #dotherightthing #motivation #inspiration #inspirationalquote

2018-11-19 00:56   17 1

 

Keep letting go. Yes you heard me right! There are many things I hold onto that I don’t need in my life, and which take up a limited slot. The only way to let better things in is to make space for it, by letting certain things go. An exchange if you will. Make it a good one!⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #achronicvoice #spoonie #spoonielife #spoonies #spoonieproblems #invisibleillness #awareness #mentalhealth #mentalillness #mentaldisorder #chronicillness #chroniclife #chronicpain #disability #selfcare #selfawareness #letgo #letitgo #selfbelief #havefaith #maketime #makespace #lifelessons #thoughts #personalgrowth #change #dotherightthing #motivation #inspiration #inspirationalquote

For those of you who aren’t on my personal accounts but nonetheless support my groove: I thought I would post this on here- also as it’s another platform I can use to connect with people, share my experience, raise awareness & destroy stigma.
This year I finally got answers- and I was diagnosed with Cholesteatoma Disease (a chronic, rare and serious (and sometimes fatal) disease in which a tumour begins to grow inside the ear and destroy, literally like acid, your ear drums, bones to hear, facial nerves> leading to facial paralysis/palsy. Left untreated the tumour can then erode skull and infect the brain leading to meningitis and eventually death.) This is a rare, and very unknown disease. You wouldn’t think a ‘simple ear infection’ could do so much damage to someone’s health and life. I have actually lost friends over this illness- being judged for my withdrawn personality, people thinking I’m a hypochondriac & the list goes on and on. I was placed on an urgent waiting list and finally got my first surgery this week. It has been an emotionally devastating experience, but not nearly as bad as the years I was palmed off by ‘professionals’. (IF YOU THINK THERE IS SOMETHING TRULY WRONG WITH YOUR BODY- YOU NEED TO KEEP PERSISTING). The surgeon said I was basically riddled with disease and been living with this since birth. Had I known: I would have bypassed all these medical struggles. It has been so hard trying to act normal in public, simple things like: walking straight, maintaining eye contact, trying not to fall off my chair, not twitch during conversation, standing up, the constant need to vomit! etc, etc). To all those who have and continue to support my groove, wish me well wishes, and actually be a down to earth, caring and understanding person... THANK you. Feeling love truly makes a big difference during coping & recovery. This disease needs a voice- it needs to be educated more within medical studies, there needs to be more info!!!! I can’t wait for the new year. Clean slate with finally, some answers. Now, to build my life around this!

2018-11-19 00:55   16 1

 

For those of you who aren’t on my personal accounts but nonetheless support my groove: I thought I would post this on here- also as it’s another platform I can use to connect with people, share my experience, raise awareness & destroy stigma. This year I finally got answers- and I was diagnosed with Cholesteatoma Disease (a chronic, rare and serious (and sometimes fatal) disease in which a tumour begins to grow inside the ear and destroy, literally like acid, your ear drums, bones to hear, facial nerves> leading to facial paralysis/palsy. Left untreated the tumour can then erode skull and infect the brain leading to meningitis and eventually death.) This is a rare, and very unknown disease. You wouldn’t think a ‘simple ear infection’ could do so much damage to someone’s health and life. I have actually lost friends over this illness- being judged for my withdrawn personality, people thinking I’m a hypochondriac & the list goes on and on. I was placed on an urgent waiting list and finally got my first surgery this week. It has been an emotionally devastating experience, but not nearly as bad as the years I was palmed off by ‘professionals’. (IF YOU THINK THERE IS SOMETHING TRULY WRONG WITH YOUR BODY- YOU NEED TO KEEP PERSISTING). The surgeon said I was basically riddled with disease and been living with this since birth. Had I known: I would have bypassed all these medical struggles. It has been so hard trying to act normal in public, simple things like: walking straight, maintaining eye contact, trying not to fall off my chair, not twitch during conversation, standing up, the constant need to vomit! etc, etc). To all those who have and continue to support my groove, wish me well wishes, and actually be a down to earth, caring and understanding person... THANK you. Feeling love truly makes a big difference during coping & recovery. This disease needs a voice- it needs to be educated more within medical studies, there needs to be more info!!!! I can’t wait for the new year. Clean slate with finally, some answers. Now, to build my life around this!

My book is making it’s way to some amazing places! It’s ok if you are envious of it - I would be too 🤣😂😂. Love how many people this plant and disease have brought into my life! I have so many things to be thankful for and #cannabis is defiantly in my top three! @mrscastrosgarden thanks again for the incredible evening! I’m sure you will be seeing plenty of us in the future:) #iwroteafuckingbook #segwayintomynewlife #rockingmydisability #lovemymmjlife #grownmedicine

2018-11-19 00:55   9 2

 

My book is making it’s way to some amazing places! It’s ok if you are envious of it - I would be too 🤣😂😂. Love how many people this plant and disease have brought into my life! I have so many things to be thankful for and #cannabis is defiantly in my top three! @mrscastrosgarden thanks again for the incredible evening! I’m sure you will be seeing plenty of us in the future:) #iwroteafuckingbook #segwayintomynewlife #rockingmydisability #lovemymmjlife #grownmedicine

YOU CAN CALL ME ANYTHING, JUST DON’T CALL ME EARLY IN THE MORNING. ————————————————
It’s true. Every word. ————————————————
BASE:
@benefitcosmetics porefessional primer. @tartecosmetics hydrating shape tape (porcelain), @tartecosmetics shape tape concealer (fair neutral), @physiciansformula pressed powder (translucent beige)
BROWS:
@anastasiabeverlyhills dip brow (granite), @ardellbeauty brow building fiber gel (soft black)
EYES:
@urbandecaycosmetics born to run (weekender, riff, breakaway), backtalk (bare, party foul), @itcosmetics no tug liner (black), @tartecosmetics maneater mascara, @kissproducts lashes (little black dress),
CHEEKS:
@glamourdollsmakeup @lisa_frank bronzer, @urbandecaycosmetics backtalk blush (double take), @born to run highlight (breakaway)
LIPS:
@fentybeauty gloss bomb (fenty glow)
TOOLS:
@morphebrushes 
 #morphexjaclynhill brush set
MISC: set with @urbandecaycosmetics all nighter as always! 💜
——————————————
 #makeup #makeuplove #foundation #concealer #brows #lashes #eyeshadow #liner #mascara #contour #bronzer #blend #highlighter #featuremuas #makeuptutorial #makeupfeatures #instamakeup #undiscoveredmuas #chronicillness #spoonie #fibromyalgia #endometriosis #tartecosmetics #morphebrushes #morphebabe #morphexjaclynhill #jeffreestarcosmetics #kisslashes

2018-11-19 00:55   19 4

 

YOU CAN CALL ME ANYTHING, JUST DON’T CALL ME EARLY IN THE MORNING. ———————————————— It’s true. Every word. ———————————————— BASE: @benefitcosmetics porefessional primer. @tartecosmetics hydrating shape tape (porcelain), @tartecosmetics shape tape concealer (fair neutral), @physiciansformula pressed powder (translucent beige) BROWS: @anastasiabeverlyhills dip brow (granite), @ardellbeauty brow building fiber gel (soft black) EYES: @urbandecaycosmetics born to run (weekender, riff, breakaway), backtalk (bare, party foul), @itcosmetics no tug liner (black), @tartecosmetics maneater mascara, @kissproducts lashes (little black dress), CHEEKS: @glamourdollsmakeup @lisa_frank bronzer, @urbandecaycosmetics backtalk blush (double take), @born to run highlight (breakaway) LIPS: @fentybeauty gloss bomb (fenty glow) TOOLS: @morphebrushes #morphexjaclynhill brush set MISC: set with @urbandecaycosmetics all nighter as always! 💜 —————————————— #makeup #makeuplove #foundation #concealer #brows #lashes #eyeshadow #liner #mascara #contour #bronzer #blend #highlighter #featuremuas #makeuptutorial #makeupfeatures #instamakeup #undiscoveredmuas #chronicillness #spoonie #fibromyalgia #endometriosis #tartecosmetics #morphebrushes #morphebabe #morphexjaclynhill #jeffreestarcosmetics #kisslashes

Fuck this shit man mom’s yelling @ me for being behind on my hw but like I literally just stopped bc I’m so overtired I’m on the verge of tears and I went to an hour of Chem tutoring, then did a practice test, then a French speech. Like I’m fucking trying and this week has been so hard with everything going on in my social life/Home life. I can’t wait until the day I move out and don’t have to deal with this bullshit and can actually be kind to myself.
—
I’ll probably wait till after I graduate grade 12 so that I can take a full time job and actually be financially stable —
 #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #POTS #mentalhealth #mentalhealthawareness #mentalillness #autismawareness #autismacceptance

2018-11-19 00:52   11 0

 

Fuck this shit man mom’s yelling @ me for being behind on my hw but like I literally just stopped bc I’m so overtired I’m on the verge of tears and I went to an hour of Chem tutoring, then did a practice test, then a French speech. Like I’m fucking trying and this week has been so hard with everything going on in my social life/Home life. I can’t wait until the day I move out and don’t have to deal with this bullshit and can actually be kind to myself. — I’ll probably wait till after I graduate grade 12 so that I can take a full time job and actually be financially stable — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #POTS #mentalhealth #mentalhealthawareness #mentalillness #autismawareness #autismacceptance

Went to the @nationaldogshow we got to see so many wonderful breeds. I’m so happy Seb gets to represent cockers for service work. 
____________________________________
 #servicedogsofig #servicedogsofinstagram #sd #servicedog #medicalalerdog #chronicpain #chronicillness #narcolepsy #chronicmigrains #migrainalerdog #migrainalertsetvicedog #migrainalert #migrains #fibromyalgia #cockerspaniel #POTS #posturalorthostatictachycardiasyndrome #cocker #spaniel #cataplexy #spoonie #spoonielife #cardiacalertdog #cardiacalert #cardiacalertservicedog #UCTD #connectivetissuedisease #nationaldogshow #dogshow

2018-11-19 00:52   12 2

 
Hello everyone! I am starting this instagram to help spreading the word about invisible chronic illness and about tips how to deal with it. I have had numerous “invisible” chronic illnesses since I was a child. The first I can remember is SVT (Supraventricular tachycardia) episode when I was 11 years old. Later I developed PVC (Premature ventricular contraction), followed by NSVT (Nonsustained ventricular tachycardia). In my early teen years I suffered from eating disorder, which took several years to cure. When I was 19 years old, I developed Labyrinthitis and a Vertigo, which led me to develop Anxiety as well. All of my illnesses are invisible, and that makes it even harder to receive the support I need. I hope that this account can help people like me to check on their symptoms and realize that they are not the only ones going through it and that there are other people who go through the same and are there to listen and provide an advice when they can. #chronicillness #chronicallyill #invisibleillness #awareness #heartdisease #vertigo #labyrinthitis #eatingdisorder #youngandill

2018-11-19 00:52   1 0

 

Hello everyone! I am starting this instagram to help spreading the word about invisible chronic illness and about tips how to deal with it. I have had numerous “invisible” chronic illnesses since I was a child. The first I can remember is SVT (Supraventricular tachycardia) episode when I was 11 years old. Later I developed PVC (Premature ventricular contraction), followed by NSVT (Nonsustained ventricular tachycardia). In my early teen years I suffered from eating disorder, which took several years to cure. When I was 19 years old, I developed Labyrinthitis and a Vertigo, which led me to develop Anxiety as well. All of my illnesses are invisible, and that makes it even harder to receive the support I need. I hope that this account can help people like me to check on their symptoms and realize that they are not the only ones going through it and that there are other people who go through the same and are there to listen and provide an advice when they can. #chronicillness #chronicallyill #invisibleillness #awareness #heartdisease #vertigo #labyrinthitis #eatingdisorder #youngandill

okay guys real talk. i am so beyond frustrated right now over the fact that my stomach literally isn’t working right. i haven’t had a bowel movement in over a week and nothing we have tried has given me any relief we have tried all different laxatives and still nothing. the pain leaves me in tears and it has my nausea heightened so much because there isn’t anywhere for anything to go because i am so backed up. last x-ray i had showed a SEVER impaction which we had to do a clean out for and the one after that showed a less but still sever impaction and so i don’t even want to know what the inside of me looks like right now ugh. if i don’t have one this week i’ll be in the ER.
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 #newaccount #chronicillness #fighting #undiagnosed #hospital #vent #blog #sick #chronicnausea #pain #strong #tired #doctors #struggles #chop #gastro #tired #followforfollow #constipated #er #help #impaction

2018-11-19 00:51   4 1

 

okay guys real talk. i am so beyond frustrated right now over the fact that my stomach literally isn’t working right. i haven’t had a bowel movement in over a week and nothing we have tried has given me any relief we have tried all different laxatives and still nothing. the pain leaves me in tears and it has my nausea heightened so much because there isn’t anywhere for anything to go because i am so backed up. last x-ray i had showed a SEVER impaction which we had to do a clean out for and the one after that showed a less but still sever impaction and so i don’t even want to know what the inside of me looks like right now ugh. if i don’t have one this week i’ll be in the ER. - #newaccount #chronicillness #fighting #undiagnosed #hospital #vent #blog #sick #chronicnausea #pain #strong #tired #doctors #struggles #chop #gastro #tired #followforfollow #constipated #er #help #impaction

Any guesses as to where I've spent the evening? If you said A&E well done, you get a gold star! 
Yet again I spoke too soon and got extra sick after my anniversary. My stomach was the culprit, again. Because of the upset stomach my blood sugar got low and I fainted and hit my head. Mum called 111 and they had a paramedic call, and I ended up going in to be on the safe side. And Mum was worried because I was really sleepy, and shouldn't have been. 
The nurse and doctor were great (although neither of them knew what M.E. was, I had to tell them it was chronic fatigue syndrome) and we only had a 5 min wait. If I never have to drink tea with two sugars again, it'll be too soon. I also had to have sugar gel when my blood sugar levels didn't go up.
We were only in the hospital for 2 hours, but they were very thorough. I banged my hip too, but apart from that and a headache I'm fine, I just need to drink more.
Our neighbours were great and took me to the hospital and collected us again at almost midnight. 
Also a time machine would be nice if anyone has one! I've decided I'd like to skip from halloween to the first of december. November is not kind to this family. 
 #mecfs #chronicillness #invisibleillness  #aande #fainted

2018-11-19 00:51   1 1

 

Any guesses as to where I've spent the evening If you said A&E well done, you get a gold star! Yet again I spoke too soon and got extra sick after my anniversary. My stomach was the culprit, again. Because of the upset stomach my blood sugar got low and I fainted and hit my head. Mum called 111 and they had a paramedic call, and I ended up going in to be on the safe side. And Mum was worried because I was really sleepy, and shouldn't have been. The nurse and doctor were great (although neither of them knew what M.E. was, I had to tell them it was chronic fatigue syndrome) and we only had a 5 min wait. If I never have to drink tea with two sugars again, it'll be too soon. I also had to have sugar gel when my blood sugar levels didn't go up. We were only in the hospital for 2 hours, but they were very thorough. I banged my hip too, but apart from that and a headache I'm fine, I just need to drink more. Our neighbours were great and took me to the hospital and collected us again at almost midnight. Also a time machine would be nice if anyone has one! I've decided I'd like to skip from halloween to the first of december. November is not kind to this family. #mecfs #chronicillness #invisibleillness #aande #fainted

Tried a new recipe tonight that I found on Pinterest called poor mans stew. Turned out really well but I think next time I’m going to add more seasoning. We paired it with @udisglutenfree dinner rolls. Nice hearty dinner after working today. Now I get to relax with my husband and pups before starting the work week all over again tomorrow. #celiacdisease #celiac #celiacsucks #celiaclife #celiackindalife #chronicillness #invisibleillness #spoonie #fighter #igotthis #glutenfree #glutenfreeliving #glutenfreedoesntsuck #glutenfreedoesnthavetosuck #glutenfreefood #glutenfreefoodie #glutenfreegirl

2018-11-19 00:51   6 0

 

Tried a new recipe tonight that I found on Pinterest called poor mans stew. Turned out really well but I think next time I’m going to add more seasoning. We paired it with @udisglutenfree dinner rolls. Nice hearty dinner after working today. Now I get to relax with my husband and pups before starting the work week all over again tomorrow. #celiacdisease #celiac #celiacsucks #celiaclife #celiackindalife #chronicillness #invisibleillness #spoonie #fighter #igotthis #glutenfree #glutenfreeliving #glutenfreedoesntsuck #glutenfreedoesnthavetosuck #glutenfreefood #glutenfreefoodie #glutenfreegirl

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2018-11-19 00:50   11 1

 

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Some days you just have to pull the covers over your head and sleep all day. It’s been over a week since Lexi had a sleep day. So I’m not going to stress and just tell myself she’s recharging her battery for the holidays. 😴
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 #sleep #sleepingbeauty #sotired #messyroom #mymessyroom #christmasblanket #plutopillow #fastasleep #chronicillness #chronicallytired #alwaystired #cysticfibrosis #asthma #awareness #teenager #fifteen #sophmore #sweetdreams #dontgetsick #stayhealthy #thanksgivingprep #recharging #almostthanksgiving #cfteens #specialneeds

2018-11-19 00:46   4 0

 

Some days you just have to pull the covers over your head and sleep all day. It’s been over a week since Lexi had a sleep day. So I’m not going to stress and just tell myself she’s recharging her battery for the holidays. 😴 . #sleep #sleepingbeauty #sotired #messyroom #mymessyroom #christmasblanket #plutopillow #fastasleep #chronicillness #chronicallytired #alwaystired #cysticfibrosis #asthma #awareness #teenager #fifteen #sophmore #sweetdreams #dontgetsick #stayhealthy #thanksgivingprep #recharging #almostthanksgiving #cfteens #specialneeds

S U N D A Y R E A D
My dear and talented friend, Suzanne Edison, POET, recently published this beautifully moving collaborative work, The Body Lives Its Undoing, Exploring Autoimmune Disease Through Poetry and Visual Arts. It’s powerful, profound and has me weeping. This is important work for so many souls - for coping, for healing, for awareness. Thank you, Suzanne ♥️
PS - check out @benaroyaresearch for more, including details for upcoming readings. 
 #sundayread #poetry #visualarts #collab #collaboration #autoimmunedisease #chronicillness #themightysite #art #artheals #soulart #artislife

2018-11-19 00:45   12 0

 

S U N D A Y R E A D My dear and talented friend, Suzanne Edison, POET, recently published this beautifully moving collaborative work, The Body Lives Its Undoing, Exploring Autoimmune Disease Through Poetry and Visual Arts. It’s powerful, profound and has me weeping. This is important work for so many souls - for coping, for healing, for awareness. Thank you, Suzanne ♥️ PS - check out @benaroyaresearch for more, including details for upcoming readings. #sundayread #poetry #visualarts #collab #collaboration #autoimmunedisease #chronicillness #themightysite #art #artheals #soulart #artislife

A few people have mentioned to me that they’ve noticed I’ve been posting less, not doing videos, taking longer to reply to messages etc and they’re 100% right .
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A lot of you know I’ve been waiting for an operation since March 😩 I truly thought it would have been done by now and I won’t lie, it’s made me feel like my life is on hold waiting for it and it’s got me a little down .
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So that plus general life and medical stuff has got me to the point where I’d sort of lost motivation in doing much other than sleeping and watching Netflix 🙈 .
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Sometimes the best thing you can do for yourself is not push yourself to be motivated again, generally that just results in you being unmotivated for even longer, but to let yourself have the time you need to get your mindset back in the place you want it to be 🙌🏼 .
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Thankfully I’m confident my mindset is almost back to normal 🙏🏻 so expect a full return in the next week or so 😂🙈 Black Friday madness has me getting excited so I’m sure I’ll be back to my crazy self soon 😂 .
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Thank you all for being patient with me, I promise I’m still here even if I’m quiet ☺️💕 .
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 #thistooshallpass #quotes #quotestoliveby #hardtime #struggling #feelingdown #lowmood #mindsetstruggles #chronicillness #chronicpain #chronicfatigue #chronicallyill #spoonie #spoonielife #spoonieproblems #ileostomy #ostomate #surgery #waitingforsurgery #waitingforever #younique #youniquemakeup #youniquepresenter #workfromhome #makeup #skincare #bossbabe #upliftempowervalidate

2018-11-19 00:44   11 1

 

A few people have mentioned to me that they’ve noticed I’ve been posting less, not doing videos, taking longer to reply to messages etc and they’re 100% right . . A lot of you know I’ve been waiting for an operation since March 😩 I truly thought it would have been done by now and I won’t lie, it’s made me feel like my life is on hold waiting for it and it’s got me a little down . . So that plus general life and medical stuff has got me to the point where I’d sort of lost motivation in doing much other than sleeping and watching Netflix 🙈 . . Sometimes the best thing you can do for yourself is not push yourself to be motivated again, generally that just results in you being unmotivated for even longer, but to let yourself have the time you need to get your mindset back in the place you want it to be 🙌🏼 . . Thankfully I’m confident my mindset is almost back to normal 🙏🏻 so expect a full return in the next week or so 😂🙈 Black Friday madness has me getting excited so I’m sure I’ll be back to my crazy self soon 😂 . . Thank you all for being patient with me, I promise I’m still here even if I’m quiet ☺️💕 . . . . #thistooshallpass #quotes #quotestoliveby #hardtime #struggling #feelingdown #lowmood #mindsetstruggles #chronicillness #chronicpain #chronicfatigue #chronicallyill #spoonie #spoonielife #spoonieproblems #ileostomy #ostomate #surgery #waitingforsurgery #waitingforever #younique #youniquemakeup #youniquepresenter #workfromhome #makeup #skincare #bossbabe #upliftempowervalidate

My brain is a mysterious jumble of thoughts and 
Memories that I try to beat back. 
I'm supposed to "forgive"
I'm supposed to "heal"
But I'm not sure what those things mean.
I am lying here in a cycle of memories I despise.
Playing over and over and over. .
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 #mentalillnessawareness #mentalhealthadvocate #mentalhealthblogger #survivorrights #ptsdawareness #cptsdwarriors #mentalillness #ChronicIllness #missgorefan #blogger #writing #writersofinstagram #artist #fightingback #childhoodtraumasurvivor

2018-11-19 00:44   39 1

 

My brain is a mysterious jumble of thoughts and Memories that I try to beat back. I'm supposed to "forgive" I'm supposed to "heal" But I'm not sure what those things mean. I am lying here in a cycle of memories I despise. Playing over and over and over. . . . . . . . . #mentalillnessawareness #mentalhealthadvocate #mentalhealthblogger #survivorrights #ptsdawareness #cptsdwarriors #mentalillness #ChronicIllness #missgorefan #blogger #writing #writersofinstagram #artist #fightingback #childhoodtraumasurvivor

Wed Night Candle Lit Restorative ❤❤
All welcome Aviva Yoga Studio
At The Cotton Factory 
Donations accepted with gratitude 🙏

7:30-9:00pm

This Wednesday's class is half full. 😊

Please let me know ASAP if you would like to join us for this beautiful candle-lit restorative practice, at the gorgeous industrial Cotton Factory.

Bring your beautiful self, warm clothing, all props mats and blankets will be provided.

 #yoga #cancer #hamont #hamontyoga #therapudicyoga #chronicillness #healing #kula #love #support #hamilton #wellness #ycat #ycatyoga #juravinskicancercentre #wellwood #ashtanga #community #nippletattoo #mastectomy #vegetarian #vegan #restorative #aviva #thecottonfactory

2018-11-19 00:43   11 0

 

Wed Night Candle Lit Restorative ❤❤ All welcome Aviva Yoga Studio At The Cotton Factory Donations accepted with gratitude 🙏 7:30-9:00pm This Wednesday's class is half full. 😊 Please let me know ASAP if you would like to join us for this beautiful candle-lit restorative practice, at the gorgeous industrial Cotton Factory. Bring your beautiful self, warm clothing, all props mats and blankets will be provided. #yoga #cancer #hamont #hamontyoga #therapudicyoga #chronicillness #healing #kula #love #support #hamilton #wellness #ycat #ycatyoga #juravinskicancercentre #wellwood #ashtanga #community #nippletattoo #mastectomy #vegetarian #vegan #restorative #aviva #thecottonfactory

Had to fill this out before massage therapy today for my flaring shoulder. Shit thing is that this checklist doesn't even cover it all... allergies, arrhythmia, subluxing, and more. I find it hard to see most of my health issues down on paper like this.
Before this I had to climb 6 flights of stairs because the elevator in the building was down. But reception didn't think to call me and let me know, did they? 🙃🙃🙃
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[ID: Clipboard holding checklist of numerous symptoms and conditions, about half of them are checked off.]
 #disabled #cripplepunk #medical #medicalhistory #disabledartist #disability #health #illness #chronicillness #chronicillnesswarrior #disabilityawareness #doctor #massage #fibromyalgia #allergies #invisibleillness #chronicpain #fatigue #chronicpainawareness #disabilities #access #accessibility #inaccessibility

2018-11-19 00:42   12 0

 

Had to fill this out before massage therapy today for my flaring shoulder. Shit thing is that this checklist doesn't even cover it all... allergies, arrhythmia, subluxing, and more. I find it hard to see most of my health issues down on paper like this. Before this I had to climb 6 flights of stairs because the elevator in the building was down. But reception didn't think to call me and let me know, did they 🙃🙃🙃 • [ID: Clipboard holding checklist of numerous symptoms and conditions, about half of them are checked off.] #disabled #cripplepunk #medical #medicalhistory #disabledartist #disability #health #illness #chronicillness #chronicillnesswarrior #disabilityawareness #doctor #massage #fibromyalgia #allergies #invisibleillness #chronicpain #fatigue #chronicpainawareness #disabilities #access #accessibility #inaccessibility

I’ve was lost there for a while. Like to the point getting out of bed was the most excruciating thing I was doing day by day. I would wake up, stand in the mirror and hate everything that I saw. I hated that I wasn’t doing anything extraordinary with this life God gave me. But what is extraordinary?
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Over the last 10 weeks I have lost sleep and time, shed a lot of tears, ALMOST gave up, told my mom I didn’t think I could do this, questioned my sanity, read so much information my brain felt like a brick, and let myself let go of the idea I had control of this life. But out of all of that, I gained so much. Friendships that will last lifetimes, a career that can take me to amazing places, pushing myself to places I never dreamed of going, dedicating my life to something, pursuing something more then myself, and a life I can call my own and be proud of.
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And there it is folks, extraordinary. You have to figure out that you have the guts to persevere and do something. You have to have the strength to wake up and kick butt, even when your bones feel weak. You have to have courage to trust yourself again. You have to believe that God has a plan even when you think you have no idea what you are doing. You have to take time for yourself and figure it out. Yesterday, I remembered I was in fact extraordinary.
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Jerimiah 29:11 says, “For I know the plans I have for you declares the Lord. Plans to prosper you, not to harm you. Plans to give you hope and a future.”
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Thank you all from the prayers. I know y’all have been wondering what I have been up to. As much as this little secret had been fun to keep, I would like to reintroduce myself.
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Hello, my name is Ashley Willis, RDA✌🏼😁🦋

2018-11-19 00:42   32 3

 

I’ve was lost there for a while. Like to the point getting out of bed was the most excruciating thing I was doing day by day. I would wake up, stand in the mirror and hate everything that I saw. I hated that I wasn’t doing anything extraordinary with this life God gave me. But what is extraordinary • Over the last 10 weeks I have lost sleep and time, shed a lot of tears, ALMOST gave up, told my mom I didn’t think I could do this, questioned my sanity, read so much information my brain felt like a brick, and let myself let go of the idea I had control of this life. But out of all of that, I gained so much. Friendships that will last lifetimes, a career that can take me to amazing places, pushing myself to places I never dreamed of going, dedicating my life to something, pursuing something more then myself, and a life I can call my own and be proud of. • And there it is folks, extraordinary. You have to figure out that you have the guts to persevere and do something. You have to have the strength to wake up and kick butt, even when your bones feel weak. You have to have courage to trust yourself again. You have to believe that God has a plan even when you think you have no idea what you are doing. You have to take time for yourself and figure it out. Yesterday, I remembered I was in fact extraordinary. • Jerimiah 29:11 says, “For I know the plans I have for you declares the Lord. Plans to prosper you, not to harm you. Plans to give you hope and a future.” • Thank you all from the prayers. I know y’all have been wondering what I have been up to. As much as this little secret had been fun to keep, I would like to reintroduce myself. • Hello, my name is Ashley Willis, RDA✌🏼😁🦋

HEART HEALING MANDALA 💫

AFFIRMATION AND INTENTION: I am loved. I attract loving people in to my life. I radiate love. I love myself unconditionally. I choose LOVE over FEAR. 💕
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The HEART HEALING Mandala Print ~ Digital File.

A high quality Print Ready PDF file. Download instantly from anywhere in the world and print the original design the size you desire, on your chosen paper, card or material (cotton, hemp, viscose, linen). So many options. My #Etsy store link is in bio 🙏
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 #mandala #mandalaart #artist #artcollective #artoftheday #amylouisesouthornart #intention #heart #love #illustration #watercolour #healing #cfs #cirs #lyme #chronicillness #quantumhealing #sacredgeometry #flow #energy #digital #etsy #abundance #lightworker #spoonies #vitality #healthandwellness #biologyofbelief #affirmation

2018-11-19 00:35   8 0

 

HEART HEALING MANDALA 💫 AFFIRMATION AND INTENTION: I am loved. I attract loving people in to my life. I radiate love. I love myself unconditionally. I choose LOVE over FEAR. 💕 . The HEART HEALING Mandala Print ~ Digital File. A high quality Print Ready PDF file. Download instantly from anywhere in the world and print the original design the size you desire, on your chosen paper, card or material (cotton, hemp, viscose, linen). So many options. My #Etsy store link is in bio 🙏 . . . . . . . . . . #mandala #mandalaart #artist #artcollective #artoftheday #amylouisesouthornart #intention #heart #love #illustration #watercolour #healing #cfs #cirs #lyme #chronicillness #quantumhealing #sacredgeometry #flow #energy #digital #Etsy #abundance #lightworker #spoonies #vitality #healthandwellness #biologyofbelief #affirmation

hellooooo i haven’t been on here in a while so i thought it’d be a good time for a quick update?? so i finally got that heart monitor off a while ago, but instead of heading straight to a cardiologist, they’re gonna have my family doctor read the results over (extremely frustrating but whatever) & then send me to a proper paediatric cardiologist if anything shows up, as there’s none that are available to me right now. 
also i’m starting to notice how much i blackout a bit when i stand up?? i’m not sure if it’s the right word but now when i stand up really fast from my bed or from my chair at school, i have to hold on tight to something because i just space out & everything just turns all trippy/blurry/nauseating/etc. 
it’s strange because this has happened a lot but now it happens ~every time~ i stand which is getting a bit concerning but whO KNOWSSS
also i’m writing this while i’m trying not to get violently sick in bed, which sucks because i’m supposed to be leaving for michigan to go see my family for thanksgiving on wednesday but we’ll see how that goes 🧐
anywho haPPY SUNDAY 💕

2018-11-19 00:20   1 1

 

hellooooo i haven’t been on here in a while so i thought it’d be a good time for a quick update so i finally got that heart monitor off a while ago, but instead of heading straight to a cardiologist, they’re gonna have my family doctor read the results over (extremely frustrating but whatever) & then send me to a proper paediatric cardiologist if anything shows up, as there’s none that are available to me right now. also i’m starting to notice how much i blackout a bit when i stand up i’m not sure if it’s the right word but now when i stand up really fast from my bed or from my chair at school, i have to hold on tight to something because i just space out & everything just turns all trippy/blurry/nauseating/etc. it’s strange because this has happened a lot but now it happens ~every time~ i stand which is getting a bit concerning but whO KNOWSSS also i’m writing this while i’m trying not to get violently sick in bed, which sucks because i’m supposed to be leaving for michigan to go see my family for thanksgiving on wednesday but we’ll see how that goes 🧐 anywho haPPY SUNDAY 💕

Ok. So this is a little off topic but I just wanted to take a moment today to shout out to all My People who suffer from chronic pain. Whether it be from fibromyalgia, back pain, joint pain, headaches, nerve pain, and any and all illnesses out there that leave you feeling out of sorts on the regular. I myself suffer from chronic migraines associated with a bout of Lyme Disease 16 years ago. Who would have thought something as small as a deer tick would have changed my life. But I just wanted to speak a word of encouragement to all of you who deal with pain on the regular.

Sometimes others may not understand what you are going through. They often think: "You look okay to me." They do not always "see" your pain because you still have to push through and get on with the business of life. 
You still have to get up and go to work, make sure the kids get on the school bus, make dinner, mow the lawn, etc. But I'm here to tell you, it's okay to order out sometimes, sit on the couch and binge watch a show. It's even okay to just go lay down in your bed and chill if you're not feeling so hot. And if anyone else tries to tell you different, or make you feel less than just because you are having a bad day, then just tell them unless they've walked a mile in your shoes...they can go kick rocks!🤨👟 Just keep 'ya head up. You are stronger than you think. You may not be able to change the situation which causes your pain, but you sure as hell can decide on how best to manage it to make sure you live your best life.

Focus on yourself and your loved ones who support you. Everyone else's opinion of you holds no value in the grand scheme of your life because at the end of the day, they are not there paying your bills or helping your kids with homework. 
So nix all that noise. Keep on moving. I know it's rough, believe me I do. Do I cry sometimes because of the frustration with the chronic pain? Yes I do. But though I may fall down, I get back up and keep it moving as best I can. At my own pace. No one else's. So this is how I know you've got this! Please know you are not alone in your day-to-day struggle. I feel you. I am you. -- One Love, Sharon😊✌🏽❤

2018-11-18 23:35   71 19

 

Ok. So this is a little off topic but I just wanted to take a moment today to shout out to all My People who suffer from chronic pain. Whether it be from fibromyalgia, back pain, joint pain, headaches, nerve pain, and any and all illnesses out there that leave you feeling out of sorts on the regular. I myself suffer from chronic migraines associated with a bout of Lyme Disease 16 years ago. Who would have thought something as small as a deer tick would have changed my life. But I just wanted to speak a word of encouragement to all of you who deal with pain on the regular. Sometimes others may not understand what you are going through. They often think: "You look okay to me." They do not always "see" your pain because you still have to push through and get on with the business of life. You still have to get up and go to work, make sure the kids get on the school bus, make dinner, mow the lawn, etc. But I'm here to tell you, it's okay to order out sometimes, sit on the couch and binge watch a show. It's even okay to just go lay down in your bed and chill if you're not feeling so hot. And if anyone else tries to tell you different, or make you feel less than just because you are having a bad day, then just tell them unless they've walked a mile in your shoes...they can go kick rocks!🤨👟 Just keep 'ya head up. You are stronger than you think. You may not be able to change the situation which causes your pain, but you sure as hell can decide on how best to manage it to make sure you live your best life. Focus on yourself and your loved ones who support you. Everyone else's opinion of you holds no value in the grand scheme of your life because at the end of the day, they are not there paying your bills or helping your kids with homework. So nix all that noise. Keep on moving. I know it's rough, believe me I do. Do I cry sometimes because of the frustration with the chronic pain Yes I do. But though I may fall down, I get back up and keep it moving as best I can. At my own pace. No one else's. So this is how I know you've got this! Please know you are not alone in your day-to-day struggle. I feel you. I am you. -- One Love, Sharon😊✌🏽❤

I got my Hickman/Broviac replaced with a double-lumen Hickman, meaning it now has two separate tubes that lead to my heart. Because of this, the tube that holds both lines and goes into my chest is twice as thick as my old line, so it is quite sore. It is two central lines in the same location, rather than having another central line in my arm so that I can be given IV medications that are not chemically compatible at the same time. Many medications will cause a chemical reaction if infused in the same line as my TPN, such as some antibiotics, anesthetics, and some pain/nausea meds. This means that when I had my single lumen Hickman and came to the hospital, I'd often end up having to have a PICC placed because my veins can't hold peripheral IV's for more than a few hours. For the surgery, they used the same site as my old Hickman and used a guide-wire to push the new central line so that they didn't have to cut my neck to push the line into my jugular vein to my heart like last time. I added a diagram to show how the Hickman goes into the chest, is tunneled under the skin, over the collar bone, into the jugular vein, and into the heart. Feel free to ask any questions about central lines or share your own experiences with them! 💖

2018-11-18 23:20   74 7

 

I got my Hickman/Broviac replaced with a double-lumen Hickman, meaning it now has two separate tubes that lead to my heart. Because of this, the tube that holds both lines and goes into my chest is twice as thick as my old line, so it is quite sore. It is two central lines in the same location, rather than having another central line in my arm so that I can be given IV medications that are not chemically compatible at the same time. Many medications will cause a chemical reaction if infused in the same line as my TPN, such as some antibiotics, anesthetics, and some pain/nausea meds. This means that when I had my single lumen Hickman and came to the hospital, I'd often end up having to have a PICC placed because my veins can't hold peripheral IV's for more than a few hours. For the surgery, they used the same site as my old Hickman and used a guide-wire to push the new central line so that they didn't have to cut my neck to push the line into my jugular vein to my heart like last time. I added a diagram to show how the Hickman goes into the chest, is tunneled under the skin, over the collar bone, into the jugular vein, and into the heart. Feel free to ask any questions about central lines or share your own experiences with them! 💖

Turmeric latte ☕️💛 okay IBDers: I need all the natural inflammation fighting tips and tricks you’ve got. Right now my inflammation is only in that little cuff left that the JPouch is attached to (JPouch itself is okay) but it’s severe with atypical cells. It’s so low in the digestive tract it’s hard to target. So give it to me warriors. All your best insight, send my way.

2018-11-18 23:14   25 12

 

Turmeric latte ☕️💛 okay IBDers: I need all the natural inflammation fighting tips and tricks you’ve got. Right now my inflammation is only in that little cuff left that the JPouch is attached to (JPouch itself is okay) but it’s severe with atypical cells. It’s so low in the digestive tract it’s hard to target. So give it to me warriors. All your best insight, send my way.

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