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Images about: #proctocolectomy (787 posts)

Peanuts, bean sprouts, and stringy green onions.. did I think I would be able to eat this when I first got my ostomy? Heck NO! After patience and trial and error am I able to eat it now? YES! Slow and steady to living my best life! With IBD recovery, nothing is immediate, remember that listening to your body and going at your own pace is key! The best part about living with an ostomy? Aside from enjoying pad Thai, I’m able to once again enjoy long romantic dates 😘
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

2018-12-15 03:03   138 5

 

Peanuts, bean sprouts, and stringy green onions.. did I think I would be able to eat this when I first got my ostomy Heck NO! After patience and trial and error am I able to eat it now YES! Slow and steady to living my best life! With IBD recovery, nothing is immediate, remember that listening to your body and going at your own pace is key! The best part about living with an ostomy Aside from enjoying pad Thai, I’m able to once again enjoy long romantic dates 😘 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

Happy hump day! I came home from work to cat pee right on the floor and a huge bag leak mid-dog-walk.. but that’s just another Wednesday 😂 I knew my bag was being stretched for a change but I decided to walk the pupper first... mistake! Can you guys ever feel or anticipate when you’re about to have a leak?
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I can always tell when I’m getting a leak as my ostomy feels EXTRA warm, if that makes sense? Haha or itchy. This time I went to itch and could literally feel my bag “pop” under the wafer. If I hadn’t been a whole neighborhood away from my house at the time, it would have been hilarious! Should have known it wouldn’t have survived the monster salad I ate for lunch!
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Rule number one: when in doubt, don’t wait an extra day to change your bag 😂 Do you have any bag mishaps where you just can’t help but laugh??
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And for your viewing pleasure: bag out and big comfy sweater on! Tried to get the tree in there but hard when J isn’t home to take the pic 😂 Not pictured... the bottle of wine I’m about to down
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #arthritis #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

2018-12-12 23:55   160 13

 

Happy hump day! I came home from work to cat pee right on the floor and a huge bag leak mid-dog-walk.. but that’s just another Wednesday 😂 I knew my bag was being stretched for a change but I decided to walk the pupper first... mistake! Can you guys ever feel or anticipate when you’re about to have a leak • I can always tell when I’m getting a leak as my ostomy feels EXTRA warm, if that makes sense Haha or itchy. This time I went to itch and could literally feel my bag “pop” under the wafer. If I hadn’t been a whole neighborhood away from my house at the time, it would have been hilarious! Should have known it wouldn’t have survived the monster salad I ate for lunch! • Rule number one: when in doubt, don’t wait an extra day to change your bag 😂 Do you have any bag mishaps where you just can’t help but laugh • And for your viewing pleasure: bag out and big comfy sweater on! Tried to get the tree in there but hard when J isn’t home to take the pic 😂 Not pictured... the bottle of wine I’m about to down . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #arthritis #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

God has been good to me yet again today. Surgery went well, little painful now, but my pain is nothing compared to some of the other people I see here at Mission, I am far better off than most, because of the Lord. @bigfish_sc I do have another bracelet to add to my stunning collection, and I am thankful to all my doctors, nurses, family and friends. But most of all to the Lord. He never leaves nor forsakes. 
The NG tube is out. Surgery to reopen the wound is complete. To God be the glory! All the pain down here will be rewarded one day with a new perfect body in Heaven...until then I give it all to the Lord. I am blessed, even some may not see it, but I am blessed beyond all measure. Still Crohn’s/Colitis Awareness week😃...still lifting up God for all things come from Him. He is my rock and my fortress.  #crohnsdisease #crohns #crohnsawareness #nocolonstillrollin #proctocolectomy #ostomydiaries #ostomy #abscess #memorialmissionhospital #godisgood #praise #faith #love

2018-12-07 02:56   35 3

 

God has been good to me yet again today. Surgery went well, little painful now, but my pain is nothing compared to some of the other people I see here at Mission, I am far better off than most, because of the Lord. @bigfish_sc I do have another bracelet to add to my stunning collection, and I am thankful to all my doctors, nurses, family and friends. But most of all to the Lord. He never leaves nor forsakes. The NG tube is out. Surgery to reopen the wound is complete. To God be the glory! All the pain down here will be rewarded one day with a new perfect body in Heaven...until then I give it all to the Lord. I am blessed, even some may not see it, but I am blessed beyond all measure. Still Crohn’s/Colitis Awareness week😃...still lifting up God for all things come from Him. He is my rock and my fortress. #crohnsdisease #crohns #crohnsawareness #nocolonstillrollin #proctocolectomy #ostomydiaries #ostomy #abscess #memorialmissionhospital #godisgood #praise #faith #love

This photo was taken October 5, 2017, the night before my surgery to have a permanent ostomy. I did not have this platform or community before surgery and I really never even thought about documenting my journey very much until the past year or so. I don’t have a lot of pictures from before, during or after surgery, which is something I deeply regret. I honestly was so sick that I didn’t even think about taking any “before” pictures. Maybe subconsciously I didn’t want to remember myself like that. My mind at the time was more focused on making it through the next minute, hour, and day. I was counting down to surgery, I was actually EXCITED. There had been times sitting on the toilet in so much misery I wondered why I deserved this and contemplated if death would be better than what I was going through. I was giving up. Crohn’s was winning. My symptoms progressed really rapidly and getting cDiff was the last straw. I am so thankful for all I’ve survived and sometimes I wish I had more pictures of the bad to appreciate the good that I have now. I don’t have a picture of me waking up looking at my new ostomy and new life, but here’s a picture of me in the hospital looking into the future 💜 #crohnsandcolitisawarenessweek
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #arthritis #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ibdawarenessweek

2018-12-07 02:01   199 17

 

This photo was taken October 5, 2017, the night before my surgery to have a permanent ostomy. I did not have this platform or community before surgery and I really never even thought about documenting my journey very much until the past year or so. I don’t have a lot of pictures from before, during or after surgery, which is something I deeply regret. I honestly was so sick that I didn’t even think about taking any “before” pictures. Maybe subconsciously I didn’t want to remember myself like that. My mind at the time was more focused on making it through the next minute, hour, and day. I was counting down to surgery, I was actually EXCITED. There had been times sitting on the toilet in so much misery I wondered why I deserved this and contemplated if death would be better than what I was going through. I was giving up. Crohn’s was winning. My symptoms progressed really rapidly and getting cDiff was the last straw. I am so thankful for all I’ve survived and sometimes I wish I had more pictures of the bad to appreciate the good that I have now. I don’t have a picture of me waking up looking at my new ostomy and new life, but here’s a picture of me in the hospital looking into the future 💜 #crohnsandcolitisawarenessweek . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #arthritis #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ibdawarenessweek

I wanted to share these photos to reflect back on before I was diagnosed with Crohn’s. And to also share another symptom I have besides bowel trouble from my IBD!
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The top photo is what my feet looked like before any symptoms.. this is the best I could find as I didn’t normally take pictures of my feet 😂 the bottom photo is a picture of my feet swollen with arthritis. That anklet got cut off shortly after this picture as it was starting to dig in 😂 hopefully you can see the difference?
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I came down with a severe run of salmonella in September 2016, and my symptoms were triggered. Doctors first thought it was a bad case of post-infectious IBS, but it continued to worsen. By November I had developed reactive arthritis that was so bad I could only fit into one pair of flip flops.. and it was cold! One of my knees also had a baseball sized knot protruding from it. I started to struggle really bad with walking. That was the first time I was put on prednisone and luckily it relieved some of the swelling but did nothing for my frequent bloody trips to the bathroom. It’s not a time I enjoy reflecting back on.
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I was suffering so much I asked for my colonoscopy to be moved up a month. On the day of the procedure January 3, 2017 my colon and rectum were discovered to be in terrible shape. I was diagnosed with Crohn’s and was admitted to the hospital. That was the start of a very rapid progression of my inflammatory bowel disease to follow!
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Whether it’s remaining reactive arthritis from the salmonella, or a new symptom of my Crohn’s disease, my joint pain was not relieved with my ostomy surgery. So far the only thing that keeps it at bay is my Entyvio infusions. At this point I chalk it up to Crohn’s! It affects my whole body 🌪
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #arthritis #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ibdawarenessweek

2018-12-06 03:41   95 8

 

I wanted to share these photos to reflect back on before I was diagnosed with Crohn’s. And to also share another symptom I have besides bowel trouble from my IBD! • The top photo is what my feet looked like before any symptoms.. this is the best I could find as I didn’t normally take pictures of my feet 😂 the bottom photo is a picture of my feet swollen with arthritis. That anklet got cut off shortly after this picture as it was starting to dig in 😂 hopefully you can see the difference • I came down with a severe run of salmonella in September 2016, and my symptoms were triggered. Doctors first thought it was a bad case of post-infectious IBS, but it continued to worsen. By November I had developed reactive arthritis that was so bad I could only fit into one pair of flip flops.. and it was cold! One of my knees also had a baseball sized knot protruding from it. I started to struggle really bad with walking. That was the first time I was put on prednisone and luckily it relieved some of the swelling but did nothing for my frequent bloody trips to the bathroom. It’s not a time I enjoy reflecting back on. • I was suffering so much I asked for my colonoscopy to be moved up a month. On the day of the procedure January 3, 2017 my colon and rectum were discovered to be in terrible shape. I was diagnosed with Crohn’s and was admitted to the hospital. That was the start of a very rapid progression of my inflammatory bowel disease to follow! • Whether it’s remaining reactive arthritis from the salmonella, or a new symptom of my Crohn’s disease, my joint pain was not relieved with my ostomy surgery. So far the only thing that keeps it at bay is my Entyvio infusions. At this point I chalk it up to Crohn’s! It affects my whole body 🌪 . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #arthritis #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ibdawarenessweek

💜Happy IBD awareness week!💜 I’m late to the game! This is a picture from this morning getting my 8th Entyvio infusion! Although my colon and rectum have been removed, I still suffered from other symptoms of my Crohn’s that I needed maintenance biologics for! After surgery I started having inflammation in my small intestine causing a blockage, so my doctors encouraged me to go back on medication and I’ve been good ever since! *knock on wood*
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Aside from bowl issues my Crohn’s causes me to have severe joint pain, canker sores, acne and rashes, sinus infections/sinus issues, and easily fatigued! Entyvio not only keeps my bowl symptoms at bay, but it also relieves my joint pain so I can exercise and rock climb again!
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So many people have asked me how I can keep a smile on my face when I have a poop bag, but I WANTED the surgery so I could live my life again! It gave me my freedom and happiness back! IBD destroyed my life, but my ostomy gave it back to me 💜
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I will share more about how I first started showing symptoms of IBD and how I was diagnosed with Crohn’s in the next few days! Stay tuned my meatball friends! 💩🍝💩
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ibdawarenessweek

2018-12-04 23:15   170 4

 

💜Happy IBD awareness week!💜 I’m late to the game! This is a picture from this morning getting my 8th Entyvio infusion! Although my colon and rectum have been removed, I still suffered from other symptoms of my Crohn’s that I needed maintenance biologics for! After surgery I started having inflammation in my small intestine causing a blockage, so my doctors encouraged me to go back on medication and I’ve been good ever since! *knock on wood* • Aside from bowl issues my Crohn’s causes me to have severe joint pain, canker sores, acne and rashes, sinus infections/sinus issues, and easily fatigued! Entyvio not only keeps my bowl symptoms at bay, but it also relieves my joint pain so I can exercise and rock climb again! • So many people have asked me how I can keep a smile on my face when I have a poop bag, but I WANTED the surgery so I could live my life again! It gave me my freedom and happiness back! IBD destroyed my life, but my ostomy gave it back to me 💜 • I will share more about how I first started showing symptoms of IBD and how I was diagnosed with Crohn’s in the next few days! Stay tuned my meatball friends! 💩🍝💩 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ibdawarenessweek

Behold on the left: the power that 2 months of IV steroids can work on my chipmunk cheeks... I’d just been hospitalized for the first time for about 2 months after being diagnosed with a nearly #fatal #toxicmegacolon level of #ulcerativecolitis in 2011. Ryan and I had JUST met at #GeorgetownUniversity, literally days before I got sick in the end of Feb/beginning of March, and this moment in May was my first chance to bust out of the hospital and be with him out and all dressed up for his ROTC military ball! 👗👠 (We never really got to date much lol! #hospitalromance ) I was so embarrassed about my #moonface and was on soooo many #immunosuppressants and #narcotics I could barely stand or function. But dammit, I made it through that night and now 7 years later we’re freaking married!!!! ❤️❤️❤️ .
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About a year or so later at the end of 2012, I made it through my #proctocolectomy, temporary #ileostomy, and #jpouch surgeries (pic on the right.) Chipmunk cheeks are gone and I remember I couldn’t support myself in the shower solo to do the pre-op scrub-down I was so weak. While I still enjoy using my shower seat today, I’m SO #thankful not to be actively bleeding, flaring, and wasting away like I was back then... 🙌 (I’ve also gained and lost like 60-80lbs since then!) .
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Bottom line: #inflammatoryboweldisease will put you through some SERIOUS literal and metaphorical shit. 💩 And even if I’m still in a significant amount of #chronicpain each day now, I’m still happy and thankful to be here chatting with you guys! Much love!! Xoxo BBBB 💜💜💜
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 #crohnsandcolitisawarenessweek #crohnsdisease #crohns #autoimmune #spoonie #spoonielife #beginningofmystory #patientadvocate #teambadass

2018-12-04 22:59   101 14

 

Behold on the left: the power that 2 months of IV steroids can work on my chipmunk cheeks... I’d just been hospitalized for the first time for about 2 months after being diagnosed with a nearly #fatal #toxicmegacolon level of #ulcerativecolitis in 2011. Ryan and I had JUST met at #GeorgetownUniversity, literally days before I got sick in the end of Feb/beginning of March, and this moment in May was my first chance to bust out of the hospital and be with him out and all dressed up for his ROTC military ball! 👗👠 (We never really got to date much lol! #hospitalromance ) I was so embarrassed about my #moonface and was on soooo many #immunosuppressants and #narcotics I could barely stand or function. But dammit, I made it through that night and now 7 years later we’re freaking married!!!! ❤️❤️❤️ . . . About a year or so later at the end of 2012, I made it through my #proctocolectomy, temporary #ileostomy, and #jpouch surgeries (pic on the right.) Chipmunk cheeks are gone and I remember I couldn’t support myself in the shower solo to do the pre-op scrub-down I was so weak. While I still enjoy using my shower seat today, I’m SO #thankful not to be actively bleeding, flaring, and wasting away like I was back then... 🙌 (I’ve also gained and lost like 60-80lbs since then!) . . . Bottom line: #inflammatoryboweldisease will put you through some SERIOUS literal and metaphorical shit. 💩 And even if I’m still in a significant amount of #chronicpain each day now, I’m still happy and thankful to be here chatting with you guys! Much love!! Xoxo BBBB 💜💜💜 . . . . #crohnsandcolitisawarenessweek #crohnsdisease #crohns #autoimmune #spoonie #spoonielife #beginningofmystory #patientadvocate #teambadass

Leaks at work truly do suck.. especially when you have no real bag change space in the bathroom 😂 luckily I caught this one before it got messy!!! Having a bad cold and having to work sucks enough already, I wish my stoma would get the memo to cooperate!!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

2018-11-27 19:28   103 18

 

Leaks at work truly do suck.. especially when you have no real bag change space in the bathroom 😂 luckily I caught this one before it got messy!!! Having a bad cold and having to work sucks enough already, I wish my stoma would get the memo to cooperate!! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

I’ve had this huge life altering decision on my shoulders for the last little while! I felt under so much pressure to make the right choice, the right choice for me & the right choice for my family. Which in my head were two different answers. I thought one was right for me & one would be easier on them. 
I got an email from my surgeon tonight making the decision for me( the answer was The bigger choice in the end) so now on December 13 im having a huge surgery. Three surgeons, & hours & hours of surgery to hopefully make my life better. But to definitely change my life!. Im scared because it’s a huge surgery! But I’ll keep my faith... #surgery #lifealteringchoices #proctectomy #givemesomeguidance #fear #life #LifeHackLetThemChoose #treeoflife #rpah #royalprincealfredhospital #gottagetitdone #gottagetonwithit #proctocolectomy

2018-11-27 14:15   16 0

 

I’ve had this huge life altering decision on my shoulders for the last little while! I felt under so much pressure to make the right choice, the right choice for me & the right choice for my family. Which in my head were two different answers. I thought one was right for me & one would be easier on them. I got an email from my surgeon tonight making the decision for me( the answer was The bigger choice in the end) so now on December 13 im having a huge surgery. Three surgeons, & hours & hours of surgery to hopefully make my life better. But to definitely change my life!. Im scared because it’s a huge surgery! But I’ll keep my faith... #surgery #lifealteringchoices #proctectomy #givemesomeguidance #fear #life #LifeHackLetThemChoose #treeoflife #rpah #royalprincealfredhospital #gottagetitdone #gottagetonwithit #proctocolectomy

I’m back on the pill... Vancomycin that is!
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Some of you, but many might not know that along with my Crohn’s before my ostomy I was suffering from a serious case of Cdiff infection. Clostridium difficile is a bad bad bacteria that causes a mess of diarrhea and many cases life-threatening inflammation of the colon. It is most threatening to children, elderly, and those like myself with very weak immune systems. I believe I got it from a round of antibiotics and it kept coming back for a total of three times. Every time I needed an infusion for my Crohn’s (I was on Remicade at the time) I would get Cdiff back. It. Was. Not. Fun. Let me tell you. Some of the worst pain I’ve ever experienced. About a month before my ostomy, I even had a fecal transplant in attempt to repopulate the good bacteria. These are normally very successful! But my colon was beyond salvageable at that point and unfortunately didn’t work for me and I needed my colon removed.
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Those of you who have IBD and also have experienced Cdiff, really anyone who has ever had Cdiff even without IBD knows how seriously painful and dangerous it is. I always wondered why those of us with compromised immune systems are not normally warned about it before taking an antibiotic 🤔
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All of that being said no colon no Cdiff! I don’t have Cdiff again, but I do have a much closer relationship with infectious disease specialists than I ever would have liked in my life 😂 and anytime I get prescribed an antibiotic I have to hit my specialist up and get Vanco to go with it. I currently have a horrible sinus infection/bacteria/cold thing that won’t quit for a week now, so I was prescribed some antibiotics. As much as I didn’t want them I don’t want pneumonia!
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With an ileostomy it’s RARE like 99.9% chance but it has happened someone somewhere still got Cdiff of the ileum so I have to go on Vancomycin in combination with any antibiotic I ever take now 🤷🏼‍♀️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #vancomycin

2018-11-27 01:55   109 17

 

I’m back on the pill... Vancomycin that is! • Some of you, but many might not know that along with my Crohn’s before my ostomy I was suffering from a serious case of Cdiff infection. Clostridium difficile is a bad bad bacteria that causes a mess of diarrhea and many cases life-threatening inflammation of the colon. It is most threatening to children, elderly, and those like myself with very weak immune systems. I believe I got it from a round of antibiotics and it kept coming back for a total of three times. Every time I needed an infusion for my Crohn’s (I was on Remicade at the time) I would get Cdiff back. It. Was. Not. Fun. Let me tell you. Some of the worst pain I’ve ever experienced. About a month before my ostomy, I even had a fecal transplant in attempt to repopulate the good bacteria. These are normally very successful! But my colon was beyond salvageable at that point and unfortunately didn’t work for me and I needed my colon removed. • Those of you who have IBD and also have experienced Cdiff, really anyone who has ever had Cdiff even without IBD knows how seriously painful and dangerous it is. I always wondered why those of us with compromised immune systems are not normally warned about it before taking an antibiotic 🤔 • All of that being said no colon no Cdiff! I don’t have Cdiff again, but I do have a much closer relationship with infectious disease specialists than I ever would have liked in my life 😂 and anytime I get prescribed an antibiotic I have to hit my specialist up and get Vanco to go with it. I currently have a horrible sinus infection/bacteria/cold thing that won’t quit for a week now, so I was prescribed some antibiotics. As much as I didn’t want them I don’t want pneumonia! • With an ileostomy it’s RARE like 99.9% chance but it has happened someone somewhere still got Cdiff of the ileum so I have to go on Vancomycin in combination with any antibiotic I ever take now 🤷🏼‍♀️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff # cdiffawareness #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #vancomycin

This year I was able to cook Friendsgiving with NO diet restrictions!! I have been so blessed in so many ways this year and I’m thankful for a great first full year without my colon!
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As always, I’m super thankful for my friends and family who have stood by me at both my best and worst! ❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva #friendsgiving

2018-11-25 23:23   212 3

 

This year I was able to cook Friendsgiving with NO diet restrictions!! I have been so blessed in so many ways this year and I’m thankful for a great first full year without my colon! • As always, I’m super thankful for my friends and family who have stood by me at both my best and worst! ❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva #friendsgiving

I hope everyone had a good thanksgiving yesterday! I had the end (hopefully) of a bad cold this year and was happy to relax with family all day ❤️
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Last year I was worried about the foods on the table that I could or couldn’t eat and worried about offending people who made it 🤷🏼‍♀️ but luckily this year there hasn’t been a single thing on the thanksgiving table I couldn’t eat! Very thankful for that and my ostomy!
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Spent the day sleeping, playing Mario party on the Nintendo switch and putting up our Christmas tree 😬
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva #smoothiebowl

2018-11-24 00:01   97 0

 

I hope everyone had a good thanksgiving yesterday! I had the end (hopefully) of a bad cold this year and was happy to relax with family all day ❤️ • Last year I was worried about the foods on the table that I could or couldn’t eat and worried about offending people who made it 🤷🏼‍♀️ but luckily this year there hasn’t been a single thing on the thanksgiving table I couldn’t eat! Very thankful for that and my ostomy! • Spent the day sleeping, playing Mario party on the Nintendo switch and putting up our Christmas tree 😬 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva #smoothiebowl

خانم هشتاد ساله ای با سابقه کانسر معده از یک سال پیش که تحت عمل جراحی قرار نگرفته بود، با شکایت درد شکم و تهوع و استفراغ در بخش عفونی بستری گردید. پس از ویزیت متخصص داخلی، برای بیمار مشاوره جراحی درخواست شد. بیمار هنگام معاینه، تندرنس جنرالیزه شکمی و گاردینگ واضح در کل شکم داشت. در گرافی ایستاده قفسه سینه، هوای آزاد زیر دیافراگم دیده می شود. پس از لاپاراتومی، پنوماتوز روده (هوا در دیواره روده ها)، نکروز و پرفوراسیون رکتوم و دیستال سیگمویید مشاهده شد. سیگموییدکتومی دیستال و پروکتکتومی و کولوستومی انتهایی انجام شد. مقدار باقیمانده از رکتوم تا آنال ورج، حدود دو سانتیمتر برآورد شد. عکس اول پنوماتوز روده را نشان می دهد.
 #جراحی #جراحی_عمومی #لاپاراتومی #پنوماتوزیس_اینتستینالیس #پرفوراسیون #پروکتکتومی #کولوستومی #دکتر_محسن_پاکزاد 
Rectal necrosis and perforation in an 80 years old female patient with history of gastric cancer. First picture shows pneumatosis intestinalis. 
 #surgery #generalsurgery #perforation #laparatomy #necrosis #proctectomy #proctocolectomy #colostomy #endcolostomy #pneumatosisintestinalis #drmohsenpakzad

2018-11-23 04:36   401 34

 

خانم هشتاد ساله ای با سابقه کانسر معده از یک سال پیش که تحت عمل جراحی قرار نگرفته بود، با شکایت درد شکم و تهوع و استفراغ در بخش عفونی بستری گردید. پس از ویزیت متخصص داخلی، برای بیمار مشاوره جراحی درخواست شد. بیمار هنگام معاینه، تندرنس جنرالیزه شکمی و گاردینگ واضح در کل شکم داشت. در گرافی ایستاده قفسه سینه، هوای آزاد زیر دیافراگم دیده می شود. پس از لاپاراتومی، پنوماتوز روده (هوا در دیواره روده ها)، نکروز و پرفوراسیون رکتوم و دیستال سیگمویید مشاهده شد. سیگموییدکتومی دیستال و پروکتکتومی و کولوستومی انتهایی انجام شد. مقدار باقیمانده از رکتوم تا آنال ورج، حدود دو سانتیمتر برآورد شد. عکس اول پنوماتوز روده را نشان می دهد. #جراحی #جراحی_عمومی #لاپاراتومی #پنوماتوزیس_اینتستینالیس #پرفوراسیون #پروکتکتومی #کولوستومی #دکتر_محسن_پاکزاد Rectal necrosis and perforation in an 80 years old female patient with history of gastric cancer. First picture shows pneumatosis intestinalis. #surgery #generalsurgery #perforation #laparatomy #necrosis #proctectomy #proctocolectomy #colostomy #endcolostomy #pneumatosisintestinalis #drmohsenpakzad

I call this look ‘MRI Chic’ 💁🏼‍♀️
I had a pelvic MRI yesterday to find out what’s going on with my Barbie Butt wound as it’s taking a little longer to heal than it should. I’m used to bowel MRI’s so a pelvis one was weird... I was in the machine for half an hour! Luckily I was super relaxed and nearly fell asleep.
Pre-Ostomy MRI’s were awful because I’d panic about needing the toilet halfway through the scan and having an accident. Now I can just relax and not worry at all! 🙌🏼 The nurse started off by explaining about the scan and how they would start by looking for my rectum... Only to be informed that I don’t actually have one anymore 🙈 
If you’ve had a proctocolectomy/your bum sewn up, how long did it take for yours to heal? ✨

2018-11-22 09:39   162 19

 

I call this look ‘MRI Chic’ 💁🏼‍♀️ I had a pelvic MRI yesterday to find out what’s going on with my Barbie Butt wound as it’s taking a little longer to heal than it should. I’m used to bowel MRI’s so a pelvis one was weird... I was in the machine for half an hour! Luckily I was super relaxed and nearly fell asleep. Pre-Ostomy MRI’s were awful because I’d panic about needing the toilet halfway through the scan and having an accident. Now I can just relax and not worry at all! 🙌🏼 The nurse started off by explaining about the scan and how they would start by looking for my rectum... Only to be informed that I don’t actually have one anymore 🙈 If you’ve had a proctocolectomy/your bum sewn up, how long did it take for yours to heal ✨

In the days after my ostomy surgery I had a nurse come in and talk to me for an hour about all the foods I needed to avoid. I cried and cried. All I had wanted was to eat a handful of trail mix again. The decision to have a permanent ileostomy didn’t even phase me as much as being told I couldn’t eat what I wanted, even after surgery. When you’ve been through so much it seems like something so small can break you.
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When I was very ill before my surgery I barely could eat anything and the foods I could eat were everything I didn’t want 😂 think processed white breads and meat, God I hated it! And even then I was still crapping my pants 😂 I dreamt that having my colon removed would give me the opportunity to bring all the good stuff back into my diet, grains and veggies and fruits oh my! But every corner of the internet and stoma nurses were telling me otherwise.
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There are still foods I am cautious with like watermelon (for some reason doesn’t agree the best with my stoma!) coconut, and I haven’t even had an orange in years, but all other foods I’ve risked and come out on top! Listen to your body and introduce things slowly and in small portions. For example, when I first came home from surgery I was cutting the seeds and skins off strawberries! I mean can you imagine it was quite the effort but now I can eat them in all their original glory!
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Foods for ostomates are definitely NOT one size fits all as I’ve spoke with many people who can eat this but not that and vice versa. All I can say is if I had listened to my nurses in the hospital I wouldn’t be living my life to the fullest again. I mean just LOOK at this bowl 😍
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Happy Sunday!!❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva #smoothiebowl

2018-11-18 16:39   126 16

 

In the days after my ostomy surgery I had a nurse come in and talk to me for an hour about all the foods I needed to avoid. I cried and cried. All I had wanted was to eat a handful of trail mix again. The decision to have a permanent ileostomy didn’t even phase me as much as being told I couldn’t eat what I wanted, even after surgery. When you’ve been through so much it seems like something so small can break you. • When I was very ill before my surgery I barely could eat anything and the foods I could eat were everything I didn’t want 😂 think processed white breads and meat, God I hated it! And even then I was still crapping my pants 😂 I dreamt that having my colon removed would give me the opportunity to bring all the good stuff back into my diet, grains and veggies and fruits oh my! But every corner of the internet and stoma nurses were telling me otherwise. • There are still foods I am cautious with like watermelon (for some reason doesn’t agree the best with my stoma!) coconut, and I haven’t even had an orange in years, but all other foods I’ve risked and come out on top! Listen to your body and introduce things slowly and in small portions. For example, when I first came home from surgery I was cutting the seeds and skins off strawberries! I mean can you imagine it was quite the effort but now I can eat them in all their original glory! • Foods for ostomates are definitely NOT one size fits all as I’ve spoke with many people who can eat this but not that and vice versa. All I can say is if I had listened to my nurses in the hospital I wouldn’t be living my life to the fullest again. I mean just LOOK at this bowl 😍 • Happy Sunday!!❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva #smoothiebowl

I got these super cute moto leggings at Old Navy (a bunch of us have matching pairs at work lol 🙈) and the best part is they are high waisted so I am really comfortable and my ostomy is nice and flat and hidden! Great for both a casual look or the gym... perfect!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ootd #ostomyootd

2018-11-18 00:33   164 15

 

I got these super cute moto leggings at Old Navy (a bunch of us have matching pairs at work lol 🙈) and the best part is they are high waisted so I am really comfortable and my ostomy is nice and flat and hidden! Great for both a casual look or the gym... perfect! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ootd #ostomyootd

Hi meatball !! We feel your pain !
@Regran_ed from @meatballthestoma - 🍝 meatball alert 🍝 Lately I have been waking up an hour or two before my alarm goes off needing to empty an inflated bag 🙄 I miss the days of never having to get out of bed, but once a night is much better than sleeping on the bathroom floor I was having to 💩 so much 🙃 .
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #barbiebutt #mcv #vcu #richmond #rva #life #livinglife #lovinglife #nocolonstillrollin  #Tiffieldtwins2

2018-11-16 21:22   56 3

 

Hi meatball !! We feel your pain ! @Regran_ed from @meatballthestoma - 🍝 meatball alert 🍝 Lately I have been waking up an hour or two before my alarm goes off needing to empty an inflated bag 🙄 I miss the days of never having to get out of bed, but once a night is much better than sleeping on the bathroom floor I was having to 💩 so much 🙃 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #barbiebutt #mcv #vcu #richmond #rva #life #livinglife #lovinglife #nocolonstillrollin #Tiffieldtwins2

I get so many questions about ulcerative colitis, my surgery, and my jpouch. Right now, this is what I want you to know about Irritable Bowel Disease (IBD) which is NOT IBS: 🌟It’s most commonly Ulcerative Colitis and Crohn’s disease, which is inflammation of the digestive tract that can cause unpleasant symptoms (pain, bloody stool, weight loss, diarrhea) and affects each person different. 🌟There are no known causes of IBD. It affects 1.6 million people in the US. 🌟It can affect everyone differently. For me, it was physical AND mental. I lived in constant fear of having an accident and had to know where every bathroom was. It caused so much anxiety and depression for me. 🌟Poop can be an embarrassing subject for some and can make it very hard for someone to talk about their disease. No one wants to be known as the person with “a pooping disease”. 🌟I want to be treated like everyone else. My disease might be invisible but I’m not. I don’t want to be pitied. I want to be invited to things, even if I can’t come. 🌟

These things still apply even though my colon is gone. 
My life still looks different without a colon. 
Not everyone shares what’s going on with them. 
Love people a little louder when they cancel again, are “tired” again, are struggling. —

 #teamfeedyoursoul #teamgutsoverfear #girlswithguts #lifetakesguts #jpouchsurgery #autoimmunedisease #ulcerativecolitis #proctocolectomy #invisibleillness #crohnsdisease

2018-11-13 14:21   61 5

 

I get so many questions about ulcerative colitis, my surgery, and my jpouch. Right now, this is what I want you to know about Irritable Bowel Disease (IBD) which is NOT IBS: 🌟It’s most commonly Ulcerative Colitis and Crohn’s disease, which is inflammation of the digestive tract that can cause unpleasant symptoms (pain, bloody stool, weight loss, diarrhea) and affects each person different. 🌟There are no known causes of IBD. It affects 1.6 million people in the US. 🌟It can affect everyone differently. For me, it was physical AND mental. I lived in constant fear of having an accident and had to know where every bathroom was. It caused so much anxiety and depression for me. 🌟Poop can be an embarrassing subject for some and can make it very hard for someone to talk about their disease. No one wants to be known as the person with “a pooping disease”. 🌟I want to be treated like everyone else. My disease might be invisible but I’m not. I don’t want to be pitied. I want to be invited to things, even if I can’t come. 🌟 These things still apply even though my colon is gone. My life still looks different without a colon. Not everyone shares what’s going on with them. Love people a little louder when they cancel again, are “tired” again, are struggling. — #teamfeedyoursoul #teamgutsoverfear #girlswithguts #lifetakesguts #jpouchsurgery #autoimmunedisease #ulcerativecolitis #proctocolectomy #invisibleillness #crohnsdisease

BIG announcement! My perianal wound from my full proctocolectomy has finally healed after 13 months 😭❤️🙌🏼
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That’s 13 months of packing that wound dressing twice a day! Not going to lie soooooo happy to move on with those 10 minutes of my day to do something else 😂🤷🏼‍♀️
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I want to share this Barbie butt milestone because I wasn’t warned by any of my doctors, nurses, or surgeons that this rectal wound could take this long to heal. I had to do my own research through forums and advice from those who had gone through it! Hearing about tunneling, wound vacs, 2 years and still open, etc really terrified me! Others said within weeks of surgery theirs closed up like their butt hole was never even there! What would my healing be like?! I just honestly wish I had been told a long healing process
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I will say my wound was left open, no stitches. It was meant to heal from the inside out. That takes longer but has a lower chance of infection. Your booty is also a place where the sun doesn’t shine, aka the blood doesn’t flow as well down there! It has always been a difficult place to heal and keep dry. I think a lot of it depends on your health, how active you are, if your wound was left open or closed, the type of wound dressing you have, whether or not you are still on steroids or immune suppressants, etc. etc. etc.
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BUT I wanted to say this ConvaTec Aquacel AG Extra really pushed my wound to heal when it had hit a plateau. I wish I had used this the whole time instead of just the last threeish months. I just wanted to share with you guys what has helped me in case you are heading toward or potentially currently dealing with the same struggle!
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My wound never prevented me from doing anything, in fact I fully healed in the middle of a 4 week program to doing the splits! I did yoga, swam in the ocean, was sexually active, etc.. I’m just glad I don’t have to worry about it anymore 😊🙌🏼
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Happy Monday!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva

2018-11-12 23:33   149 27

 

BIG announcement! My perianal wound from my full proctocolectomy has finally healed after 13 months 😭❤️🙌🏼 • That’s 13 months of packing that wound dressing twice a day! Not going to lie soooooo happy to move on with those 10 minutes of my day to do something else 😂🤷🏼‍♀️ • I want to share this Barbie butt milestone because I wasn’t warned by any of my doctors, nurses, or surgeons that this rectal wound could take this long to heal. I had to do my own research through forums and advice from those who had gone through it! Hearing about tunneling, wound vacs, 2 years and still open, etc really terrified me! Others said within weeks of surgery theirs closed up like their butt hole was never even there! What would my healing be like! I just honestly wish I had been told a long healing process • I will say my wound was left open, no stitches. It was meant to heal from the inside out. That takes longer but has a lower chance of infection. Your booty is also a place where the sun doesn’t shine, aka the blood doesn’t flow as well down there! It has always been a difficult place to heal and keep dry. I think a lot of it depends on your health, how active you are, if your wound was left open or closed, the type of wound dressing you have, whether or not you are still on steroids or immune suppressants, etc. etc. etc. • BUT I wanted to say this ConvaTec Aquacel AG Extra really pushed my wound to heal when it had hit a plateau. I wish I had used this the whole time instead of just the last threeish months. I just wanted to share with you guys what has helped me in case you are heading toward or potentially currently dealing with the same struggle! • My wound never prevented me from doing anything, in fact I fully healed in the middle of a 4 week program to doing the splits! I did yoga, swam in the ocean, was sexually active, etc.. I’m just glad I don’t have to worry about it anymore 😊🙌🏼 • Happy Monday! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt #rva

👋🏼 hi everyone! Been a little MIA this week.. just out living the life my ostomy has allowed me to enjoy ❤️🙌🏼
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Full day of cleaning house and running errands... starting off with our favorite walk at the river with our puppy!
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On a side note if you have not seen Bohemian Rhapsody... go do that. You will not regret it😭❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #rva

2018-11-11 17:56   104 2

 

👋🏼 hi everyone! Been a little MIA this week.. just out living the life my ostomy has allowed me to enjoy ❤️🙌🏼 • Full day of cleaning house and running errands... starting off with our favorite walk at the river with our puppy! • On a side note if you have not seen Bohemian Rhapsody... go do that. You will not regret it😭❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #rva

It’s been such a long time since I haven’t been referred to as “the sick one”. For close to 10 years I’ve been the sick daughter, sister, friend, coworker, colleague, acquaintance. 
People would say “oh I know someone with that! You two should talk!” People would tell me “but you don’t look sick.”
People would struggle wanting to go out with me because of my food restrictions. 
People would get frustrated when I’d have to cancel (again) because according to them I was “tired all the time.” People asked constantly how I was, what meds I was taking, if I’ve tried X thing to cure it, if I was “really” sick, when I was going to get better, and blah, blah, blah. 
Life sucked for a long ass time. 
Until I was at an event recently where NO ONE ASKED HOW I WAS FEELING. 
It was the most bizarre experience because I was poised and prepared to share and answer questions. 
And it felt like no one knew how to talk to me because I wasn’t the sick one anymore. 
It was like they were at a loss for words-because let me tell you people LOVE to talk to others who are sick, give opinions, suggestions, and share how their tiredness relates to your fatigue. 
And for the first time I thought “this is what life is supposed to be like” 🤣
This is what life is like when you’re no longer “the sick one”. -
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 #teamfeedyoursoul #teamgutsoverfear #girlswithguts #lifetakesguts #nocolonstillrollin #autoimmunedisease #ulcerativecolitis #invisibleillness #proctocolectomy #jpouch #jpouchsurgery

2018-11-10 20:22   79 2

 

It’s been such a long time since I haven’t been referred to as “the sick one”. For close to 10 years I’ve been the sick daughter, sister, friend, coworker, colleague, acquaintance. People would say “oh I know someone with that! You two should talk!” People would tell me “but you don’t look sick.” People would struggle wanting to go out with me because of my food restrictions. People would get frustrated when I’d have to cancel (again) because according to them I was “tired all the time.” People asked constantly how I was, what meds I was taking, if I’ve tried X thing to cure it, if I was “really” sick, when I was going to get better, and blah, blah, blah. Life sucked for a long ass time. Until I was at an event recently where NO ONE ASKED HOW I WAS FEELING. It was the most bizarre experience because I was poised and prepared to share and answer questions. And it felt like no one knew how to talk to me because I wasn’t the sick one anymore. It was like they were at a loss for words-because let me tell you people LOVE to talk to others who are sick, give opinions, suggestions, and share how their tiredness relates to your fatigue. And for the first time I thought “this is what life is supposed to be like” 🤣 This is what life is like when you’re no longer “the sick one”. - - - #teamfeedyoursoul #teamgutsoverfear #girlswithguts #lifetakesguts #nocolonstillrollin #autoimmunedisease #ulcerativecolitis #invisibleillness #proctocolectomy #jpouch #jpouchsurgery

So, I have hit a valley. A health valley that has sent me into an emotional and somewhat physical spiral. So this post is about valleys. I shared this with a couple friends who are in their own valleys, and I thought, hey...might as well tell y’all too. My favorite saying is, ‘we all got stuff.’ So, on my way to work I got to thinking about my current state of affairs with my Crohn’s...driving and mowing the grass are my most precious times to pray. I got off the subject again, sorry, and I looked ahead at the mountains as I drove downtown to my office, and I thought to myself, ‘Self, there wouldn’t be mountains if not for the valleys.’ I was on the proverbial mountain, feeling good, getting my strength and endurance back after surgery, and now, back to pain, Crohn’s inflammation, fistula, abscess, infection, fatigue, blah blah blah, appointment with surgeon next week...my Valley. BUT GOD has another mountain top, because valleys cannot last forever. This picture is me...I am down there in the dark valley part in the middle right now, but soon, I will be headed up the right side of the mountain again. If you are in a valley, or praise God on a mountain top right now, look up and look toward Him. He is where all our help, hope and grace comes from! 💜. #crohnswarrior #ostomy #myscarstellastory #myscars #proctocolectomy #crohns #valley #butgod #jesus #mountaintop

2018-11-09 19:24   27 3

 

So, I have hit a valley. A health valley that has sent me into an emotional and somewhat physical spiral. So this post is about valleys. I shared this with a couple friends who are in their own valleys, and I thought, hey...might as well tell y’all too. My favorite saying is, ‘we all got stuff.’ So, on my way to work I got to thinking about my current state of affairs with my Crohn’s...driving and mowing the grass are my most precious times to pray. I got off the subject again, sorry, and I looked ahead at the mountains as I drove downtown to my office, and I thought to myself, ‘Self, there wouldn’t be mountains if not for the valleys.’ I was on the proverbial mountain, feeling good, getting my strength and endurance back after surgery, and now, back to pain, Crohn’s inflammation, fistula, abscess, infection, fatigue, blah blah blah, appointment with surgeon next week...my Valley. BUT GOD has another mountain top, because valleys cannot last forever. This picture is me...I am down there in the dark valley part in the middle right now, but soon, I will be headed up the right side of the mountain again. If you are in a valley, or praise God on a mountain top right now, look up and look toward Him. He is where all our help, hope and grace comes from! 💜. #crohnswarrior #ostomy #myscarstellastory #myscars #proctocolectomy #crohns #valley #butgod #jesus #mountaintop

It's been a struggle lately! It's usually a lot easier for me to stay positive but this recovery has been a little different. About half of the stitches didn't work/heal so I have an open wound that has to heal from the inside out... Which involves painful wound packing twice a day. I still can't sit or drive... Which is the hardest part for me. All this is to say that if I haven't responded to your text or answered my phone, I'm sorry! I'm trying to get back to "normal". Love you all. #recovery #surgery #ibd #ibdawareness #colorectalcancerawareness #proctocolectomy #crohnsdisease #crohns #ileostomy #ostomate #ostomy #nocolonstillrollin #ostomyawareness #barbiebutt

2018-11-08 23:49   147 39

 

It's been a struggle lately! It's usually a lot easier for me to stay positive but this recovery has been a little different. About half of the stitches didn't work/heal so I have an open wound that has to heal from the inside out... Which involves painful wound packing twice a day. I still can't sit or drive... Which is the hardest part for me. All this is to say that if I haven't responded to your text or answered my phone, I'm sorry! I'm trying to get back to "normal". Love you all. #recovery #surgery #ibd #ibdawareness #colorectalcancerawareness #proctocolectomy #crohnsdisease #crohns #ileostomy #ostomate #ostomy #nocolonstillrollin #ostomyawareness #barbiebutt

🤨So...this is my ‘I am back at the doctor’s office face’...Crohn’s is a mean disease. Even without a colon, RIP Carl, Crohn’s is still a disease that can effect any part of the digestive system...currently I have an abscess, a new fistula, and issues with my bladder. Crohn’s is awful, let’s pray for a cure, not just for me but for the millions of people who have it or will have it. God can do anything. 💜 #crohnswarrior #ibd #proctocolectomy #myscars #ostomy #myscarstellastory #fistula #ostomydiaries #crohns #doctorsoffice

2018-11-07 18:41   32 5

 

🤨So...this is my ‘I am back at the doctor’s office face’...Crohn’s is a mean disease. Even without a colon, RIP Carl, Crohn’s is still a disease that can effect any part of the digestive system...currently I have an abscess, a new fistula, and issues with my bladder. Crohn’s is awful, let’s pray for a cure, not just for me but for the millions of people who have it or will have it. God can do anything. 💜 #crohnswarrior #ibd #proctocolectomy #myscars #ostomy #myscarstellastory #fistula #ostomydiaries #crohns #doctorsoffice

Yes, I know i wear this color combo often 🤣 black is the only color of workout gear I have 🤷🏼‍♀️ #sorrynotsorry. But this superfoods shake has gotten me MED FREE FOR THE FIRST TIME IN ALMOST 3 YEARS! I don’t have to remember when to take meds, which ones to take, or screw up my body by missing a dose. At one point in my #UC journey I was taking almost 20 pills a day 😩 and some of them had nasty side effects ( #prednisone anyone?) My health was not my own for way too long so I took that bitch back by the horns 😈 #nocolonstillrollin #teamfeedyoursoul #autoimmunedisease #ulcerativecolitis #invisibleillness #jpouch #proctocolectomy #gutsoverfear #teamgutsoverfear #lifetakesguts #girlswithguts

2018-11-07 15:03   50 3

 

Yes, I know i wear this color combo often 🤣 black is the only color of workout gear I have 🤷🏼‍♀️ #sorrynotsorry. But this superfoods shake has gotten me MED FREE FOR THE FIRST TIME IN ALMOST 3 YEARS! I don’t have to remember when to take meds, which ones to take, or screw up my body by missing a dose. At one point in my #UC journey I was taking almost 20 pills a day 😩 and some of them had nasty side effects ( #prednisone anyone) My health was not my own for way too long so I took that bitch back by the horns 😈 #nocolonstillrollin #teamfeedyoursoul #autoimmunedisease #ulcerativecolitis #invisibleillness #jpouch #proctocolectomy #gutsoverfear #teamgutsoverfear #lifetakesguts #girlswithguts

💜I was at a doctors appointment yesterday, I know you all are shocked about that LOL!, and the nurse who was talking to me, taking vitals, saw in my chart that I had just had a Proctocolectomy in July of this year. She said, “you hide it so well, I would have never known.” One part of me was happy to know that she could not tell, but then I thought, my having the bag is why I am able to be here, alive, I am proud of it. Most people who know me personally, have even seen my bag, whether they wanted to or not. Most people don’t know about it, most strangers I meet on street walking, working, shopping, whatever do not know because not wearing clothes is a crime (visually and criminally) so I will continue to try to bring awareness on Instagram, through talking about it freely to anyone who wants to know more about it and keeping you all up to date about my battle with Crohn’s. I am NOT ASHAMED that I poop in a bag now. To be honest, much more convenient than going to bathroom 20-30 times a day. I still have issues with my health, more on that later, but my bag and my scars tell a story of hope, how God had blessed me, my victories, and my scars are my road map of how far I have come.  #ostomy #ostomyawareness #ostomydiaries #ibd #crohnsdisease #crohnswarrior #proctocolectomy #myscars #myscarstellastory #victory #godsgotthis #blessed #nocolonstillrollin #notashamed

2018-11-07 13:59   29 3

 

💜I was at a doctors appointment yesterday, I know you all are shocked about that LOL!, and the nurse who was talking to me, taking vitals, saw in my chart that I had just had a Proctocolectomy in July of this year. She said, “you hide it so well, I would have never known.” One part of me was happy to know that she could not tell, but then I thought, my having the bag is why I am able to be here, alive, I am proud of it. Most people who know me personally, have even seen my bag, whether they wanted to or not. Most people don’t know about it, most strangers I meet on street walking, working, shopping, whatever do not know because not wearing clothes is a crime (visually and criminally) so I will continue to try to bring awareness on Instagram, through talking about it freely to anyone who wants to know more about it and keeping you all up to date about my battle with Crohn’s. I am NOT ASHAMED that I poop in a bag now. To be honest, much more convenient than going to bathroom 20-30 times a day. I still have issues with my health, more on that later, but my bag and my scars tell a story of hope, how God had blessed me, my victories, and my scars are my road map of how far I have come. #ostomy #ostomyawareness #ostomydiaries #ibd #crohnsdisease #crohnswarrior #proctocolectomy #myscars #myscarstellastory #victory #godsgotthis #blessed #nocolonstillrollin #notashamed

After the most physically and mentally painful year I have ever experienced and also losing my ability to fart this is how our 2018 will end, moving 3000kms west into our new castle. 
This home is for my hard working, ever supporting husband who deserves the rewards he works and has worked so hard for, my soul mate.
 It's for our 4 amazing children who don't see their father half a year, missed birthdays, graduations, milestones and for always, always supporting and helping their mother at my very worst on the bathroom, bedroom or any floor, to the sides of the roads. These kids have experienced things most kids shouldn't have too but did so with love and empathy. 
This home is for a family who have been through the ringer and come out the other side not twitching and I'm grateful everyday. We are one tight unit and I can not wait to enjoy this home with them. 
2019 is going to be a quiet, amazing year.

 #imissfarting
 #proctocolectomy 
 #barbiebum 
 #ileostomy 🖤🏰🖤

2018-11-07 13:49   68 10

 

After the most physically and mentally painful year I have ever experienced and also losing my ability to fart this is how our 2018 will end, moving 3000kms west into our new castle. This home is for my hard working, ever supporting husband who deserves the rewards he works and has worked so hard for, my soul mate. It's for our 4 amazing children who don't see their father half a year, missed birthdays, graduations, milestones and for always, always supporting and helping their mother at my very worst on the bathroom, bedroom or any floor, to the sides of the roads. These kids have experienced things most kids shouldn't have too but did so with love and empathy. This home is for a family who have been through the ringer and come out the other side not twitching and I'm grateful everyday. We are one tight unit and I can not wait to enjoy this home with them. 2019 is going to be a quiet, amazing year. #imissfarting #proctocolectomy #barbiebum #ileostomy 🖤🏰🖤

When I’m having a messy bag change I sometimes can’t help but think how awesome it is to watch my little stoma in action. Yes, I understand it’s poop and it’s disgusting, but once you get past that it’s really incredible to catch a glimpse of your body functioning when it would normally never be visible. AKA watching my small intestine push waste through and out of my body. It’s a damn miracle that I’m able to live without a colon, rectum, or appendix. Who would have ever thought that was possible? Having leaks can be very frustrating, especially when your stoma is particularly active but remember that our bodies are beautiful, and so are the intricacies of all its functions!!!!
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I am pretty open when it comes to talking about my ostomy, often forgetting that some people might not be as comfortable with it haha I mean normal people don’t talk about poop all the time right? I don’t know though, shouldn’t we be? Everyone does it and bowel issues are so common and should not be shameful or swept under the rug. Your gut is such a key factor in overall health, it should be talked about more often! ❤️
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What do you guys think?
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PS I lost my sticker almost immediately after I got it lol but I voted! I hope you were able too!😛🇺🇸
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

2018-11-07 03:10   226 55

 

When I’m having a messy bag change I sometimes can’t help but think how awesome it is to watch my little stoma in action. Yes, I understand it’s poop and it’s disgusting, but once you get past that it’s really incredible to catch a glimpse of your body functioning when it would normally never be visible. AKA watching my small intestine push waste through and out of my body. It’s a damn miracle that I’m able to live without a colon, rectum, or appendix. Who would have ever thought that was possible Having leaks can be very frustrating, especially when your stoma is particularly active but remember that our bodies are beautiful, and so are the intricacies of all its functions!!!! • I am pretty open when it comes to talking about my ostomy, often forgetting that some people might not be as comfortable with it haha I mean normal people don’t talk about poop all the time right I don’t know though, shouldn’t we be Everyone does it and bowel issues are so common and should not be shameful or swept under the rug. Your gut is such a key factor in overall health, it should be talked about more often! ❤️ • What do you guys think • PS I lost my sticker almost immediately after I got it lol but I voted! I hope you were able too!😛🇺🇸 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

Thissssss!!!! I have been working so hard to get to this. I can do 5 full push ups a day now. It's taken me a few months and I wish I recorded my beginner ones to show the progress now. 
My life went down the toilet, literally from October last year really and I started to lose not just my will to actually do anything but I had lost pretty much all my strength from UC at it's worst and post surgery. This is hard when you have spent 5-6years carving your body ( I was into body building previously)built a ripped 6 pack, had a good ass and could deadlift with the best of them. I have watched my body change from being fit and ripped to bloated, scarred and well, bigger and I was and am okay with it because I have my health. But the drive in me to want to be strong is still there and I have been quietly working on this major goal. To get back on my toes. Just like in life. We need to get back up and this is exactly that. Getting back up. 
My next goal is 10 a day! 
 #soproudofmyself 
 #ostomate #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #proctocolectomy #ileostomy #ileostomyforlife 
 #neverevergiveup

2018-11-06 03:52   49 20

 

Thissssss!!!! I have been working so hard to get to this. I can do 5 full push ups a day now. It's taken me a few months and I wish I recorded my beginner ones to show the progress now. My life went down the toilet, literally from October last year really and I started to lose not just my will to actually do anything but I had lost pretty much all my strength from UC at it's worst and post surgery. This is hard when you have spent 5-6years carving your body ( I was into body building previously)built a ripped 6 pack, had a good ass and could deadlift with the best of them. I have watched my body change from being fit and ripped to bloated, scarred and well, bigger and I was and am okay with it because I have my health. But the drive in me to want to be strong is still there and I have been quietly working on this major goal. To get back on my toes. Just like in life. We need to get back up and this is exactly that. Getting back up. My next goal is 10 a day! #soproudofmyself #ostomate #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #proctocolectomy #ileostomy #ileostomyforlife #neverevergiveup

When I first got my ostomy I was told by a stoma nurse a list of foods I would “never be able to eat” and I’m really glad I didn’t listen. Nuts, seeds, fruits and veggies with skins, fiber, coconut, raw fruits and veg, potato skins, stringy foods, the list goes on.. I remember crying when she told me. Before surgery I was so limited with my diet I thought I would finally be free and I felt devastated 😢
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I started slow.. I only ate my ostomy diet right out of surgery for a few months and then I started to add and incorporate slowly.. veggies with no skins cooked to death, then with skins, then less cooked, finally raw. Start off small and increase portions... I would never eat a bowl of nuts without any water for example. You have to take some precautions around how you know your body and place a few limits 😛
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I’m not saying that’s right for everyone, and as I go on in life and my Crohn’s rollercoaster I’m sure I’ll have many ups and downs with food, however I will savor these caramel apples as longggggggg as I can! 🍎🍏🍎
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

2018-11-04 01:38   138 8

 

When I first got my ostomy I was told by a stoma nurse a list of foods I would “never be able to eat” and I’m really glad I didn’t listen. Nuts, seeds, fruits and veggies with skins, fiber, coconut, raw fruits and veg, potato skins, stringy foods, the list goes on.. I remember crying when she told me. Before surgery I was so limited with my diet I thought I would finally be free and I felt devastated 😢 • I started slow.. I only ate my ostomy diet right out of surgery for a few months and then I started to add and incorporate slowly.. veggies with no skins cooked to death, then with skins, then less cooked, finally raw. Start off small and increase portions... I would never eat a bowl of nuts without any water for example. You have to take some precautions around how you know your body and place a few limits 😛 • I’m not saying that’s right for everyone, and as I go on in life and my Crohn’s rollercoaster I’m sure I’ll have many ups and downs with food, however I will savor these caramel apples as longggggggg as I can! 🍎🍏🍎 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

Happy Friday! Wanted to share some positive smoothie vibes from this morning ✨
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Fresh juices and smoothies are an excellent way for both new and old ostomates to absorb nutrients from raw fruits and veggies safely! I have one almost every weekday morning and on the weekends I try to juice! (Would juice more I just hate cleaning the machine before work🙄)
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This is a delicious combo I borrowed from a local joint here in Richmond! Tastes like a PBnJ! To make: a banana, blueberries, scoop of peanut butter, vanilla protein powder (I use @gardenoflife vegan vanilla protein) and almond milk! Delicious! For some extra umph I add @amazinggrass green superfood powder, @vitalproteins collagen peptides, and @sunpotion cordyceps active adaptogens 😬🙌🏼
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Smoothies and juices are a great way to keep your belly happy and your body healthy 😋 as you juice more and more you can transition to mostly vegetable juice which is definitely an acquired taste! 💚
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #juice #smoothie

2018-11-02 21:44   95 3

 

Happy Friday! Wanted to share some positive smoothie vibes from this morning ✨ • Fresh juices and smoothies are an excellent way for both new and old ostomates to absorb nutrients from raw fruits and veggies safely! I have one almost every weekday morning and on the weekends I try to juice! (Would juice more I just hate cleaning the machine before work🙄) • This is a delicious combo I borrowed from a local joint here in Richmond! Tastes like a PBnJ! To make: a banana, blueberries, scoop of peanut butter, vanilla protein powder (I use @gardenoflife vegan vanilla protein) and almond milk! Delicious! For some extra umph I add @amazinggrass green superfood powder, @vitalproteins collagen peptides, and @sunpotion cordyceps active adaptogens 😬🙌🏼 • Smoothies and juices are a great way to keep your belly happy and your body healthy 😋 as you juice more and more you can transition to mostly vegetable juice which is definitely an acquired taste! 💚 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #juice #smoothie

Happy Halloween from Rey and Kylo!! Not looking forward to taking this completely off every time I have to empty my bag at work 🙈😂🎃
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I hope everyone has a safe and fun day today! 🧡🖤🧡
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #halloween #rva #kyloren #starwars

2018-10-31 13:55   141 5

 

Happy Halloween from Rey and Kylo!! Not looking forward to taking this completely off every time I have to empty my bag at work 🙈😂🎃 • I hope everyone has a safe and fun day today! 🧡🖤🧡 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #halloween #rva #kyloren #starwars

Feeling old and tired tonight. This working caper and being a mum is quite tiring but I truly am my happiest. 
I love scrolling through Insta seeing what all my other ostomate family from all over the world are up too. Reading about all your trials and tribulations is one of the brightest parts of my every day. I have never once felt alone since becoming an Ostomate and that is thanks to you guys. I actually just bought my very first bikini since becoming awesome and I can't wait to share that new adventure with you guys. Seeing other spunks flaunt their trophies in bikinis is incredible and has given me the courage to buy one for myself. 👙🖤 Right now I'm off for some much needed sleep, keep being awesome ostomates. You never know who you are inspiring. 🖤

 #ostomate #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #ulcerativecolitis #proctocolectomy

2018-10-29 11:01   40 1

 

Feeling old and tired tonight. This working caper and being a mum is quite tiring but I truly am my happiest. I love scrolling through Insta seeing what all my other ostomate family from all over the world are up too. Reading about all your trials and tribulations is one of the brightest parts of my every day. I have never once felt alone since becoming an Ostomate and that is thanks to you guys. I actually just bought my very first bikini since becoming awesome and I can't wait to share that new adventure with you guys. Seeing other spunks flaunt their trophies in bikinis is incredible and has given me the courage to buy one for myself. 👙🖤 Right now I'm off for some much needed sleep, keep being awesome ostomates. You never know who you are inspiring. 🖤 #ostomate #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #ulcerativecolitis #proctocolectomy

💜 So today is officially Operation Day 💜 Which means a whole new lot of scars to add to my road map of a tummy....am I bothered...not yet. As long as I wake ready to face the world this time I won’t even care. Although I am about to lose my Belly Button again 🙈 I’ve became quite attached to fake one 😆 but needs must I suppose!! Scars are simply tattoos with even better stories ❤️ #surgerytime #Proctocolectomy #crohnsdisease #crohns #ileostomy #scars #positivethinking #wegotthis #crohnslife #crohnsandcolitisuk

2018-10-28 09:46   75 21

 

💜 So today is officially Operation Day 💜 Which means a whole new lot of scars to add to my road map of a tummy....am I bothered...not yet. As long as I wake ready to face the world this time I won’t even care. Although I am about to lose my Belly Button again 🙈 I’ve became quite attached to fake one 😆 but needs must I suppose!! Scars are simply tattoos with even better stories ❤️ #surgerytime #Proctocolectomy #crohnsdisease #crohns #ileostomy #scars #positivethinking #wegotthis #crohnslife #crohnsandcolitisuk

🌸There is no doubt in my mind that the Lord has heard my prayer. There is no doubt that He has a plan for my life, no doubt, or I wouldn’t have made it through all I have been through. There is no doubt I will one day be perfectly healed of Crohn’s, the ankylosing spondylitis and the pain that can still sometimes bring me down to rock bottom. I also understand that His perfect healing will be not in this world, BUT GOD will sustain me here, give me the best life and strength to be the best I can be each day. I am thankful for my family, my friends; I am thankful for the surgeries, the doctors and the medicines that have helped me, the Lord sent each one to me. My job is to trust in Him, lean on His unfailing arms and know that His plan is perfect. I am thankful for His love and for things being as good as they are. Crohn’s is a mean disease, there is no cure, and the arthritis and other issues it can cause can be horrible, BUT GOD is bigger than any of those things. He is my strength, my comfort and my promise...every day I am given a new portion of grace and mercy I do not deserve, but I greatly accept! I love my Jesus, I hope He is yours too. He hears the prayers of His children. 🌸 #godsgotthis #crohnsdisease #crohnswarrior #ostomy #ostomydiaries #ibd #proctocolectomy #nocolonstillrollin #ileostomy #findacure #godisgood #butgod

2018-10-27 03:12   34 2

 

🌸There is no doubt in my mind that the Lord has heard my prayer. There is no doubt that He has a plan for my life, no doubt, or I wouldn’t have made it through all I have been through. There is no doubt I will one day be perfectly healed of Crohn’s, the ankylosing spondylitis and the pain that can still sometimes bring me down to rock bottom. I also understand that His perfect healing will be not in this world, BUT GOD will sustain me here, give me the best life and strength to be the best I can be each day. I am thankful for my family, my friends; I am thankful for the surgeries, the doctors and the medicines that have helped me, the Lord sent each one to me. My job is to trust in Him, lean on His unfailing arms and know that His plan is perfect. I am thankful for His love and for things being as good as they are. Crohn’s is a mean disease, there is no cure, and the arthritis and other issues it can cause can be horrible, BUT GOD is bigger than any of those things. He is my strength, my comfort and my promise...every day I am given a new portion of grace and mercy I do not deserve, but I greatly accept! I love my Jesus, I hope He is yours too. He hears the prayers of His children. 🌸 #godsgotthis #crohnsdisease #crohnswarrior #ostomy #ostomydiaries #ibd #proctocolectomy #nocolonstillrollin #ileostomy #findacure #godisgood #butgod

It’s raining this weekend and I am looking forward to having NO set plans! 😭 just glorious sleep and doing whatever I want.. like make pancakes in the morning yessssss I’m okay if they’re for lunch 😬 sometimes it’s good to have a lazy few days and I’m so excited about it! My kind of mental self care ❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

2018-10-26 23:45   204 4

 

It’s raining this weekend and I am looking forward to having NO set plans! 😭 just glorious sleep and doing whatever I want.. like make pancakes in the morning yessssss I’m okay if they’re for lunch 😬 sometimes it’s good to have a lazy few days and I’m so excited about it! My kind of mental self care ❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

🌈🦄Guess where I got to go today?!?!? Back to visit my favorite surgeon, Dr Bird. The very one who promised me back before the whole proctocolectomy surgery in July that this journey would not be ‘unicorns and rainbow’s. Well, he was right. Although it could worse, I have an issue with a ‘sinus tract’ or fistula in the perianal wound. Today, the pleasantness included silver nitrate, to do a form of cauterization to cause the tissue to heal itself. There are two spots where the Crohn’s had apparently done so much damage the tissue is having trouble healing. Here comes the not ‘unicorns and rainbows’ part...I have 3 weeks, wait no, the Lord has three weeks to heal this wound. If not, then he will have to reopen that wound fully, pack it and allow to heal again. BUT GOD already has a plan, He already knows the day, the minute that this will heal, how it will heal and I am already praising His name for that. I will praise Him for this bump in the road, I will praise Him for I know His plan is better than mine. I will have to admit a little earlier today, when the pain was a little intense and I was so not expecting to have this done I was not so positive, BUT GOD worked in my heart and mind and helped me see that ALL THINGS WORK TOGETHER FOR THE GOOD OF THOSE WHO LOVE THE LORD. I sure do love the Lord and He loves me more than I deserve. I cannot wait to see God’s hand all over this, please watch with me! This is what is happening now, BUT GOD... #godsgotthis #proctocolectomy #unicornsandrainbows #nocolonstillrollin #ibd #crohns #colectomy #crohnswarrior #giveittothelord #prayer #blessed #colon #ostomy

2018-10-23 02:33   26 4

 

🌈🦄Guess where I got to go today!! Back to visit my favorite surgeon, Dr Bird. The very one who promised me back before the whole proctocolectomy surgery in July that this journey would not be ‘unicorns and rainbow’s. Well, he was right. Although it could worse, I have an issue with a ‘sinus tract’ or fistula in the perianal wound. Today, the pleasantness included silver nitrate, to do a form of cauterization to cause the tissue to heal itself. There are two spots where the Crohn’s had apparently done so much damage the tissue is having trouble healing. Here comes the not ‘unicorns and rainbows’ part...I have 3 weeks, wait no, the Lord has three weeks to heal this wound. If not, then he will have to reopen that wound fully, pack it and allow to heal again. BUT GOD already has a plan, He already knows the day, the minute that this will heal, how it will heal and I am already praising His name for that. I will praise Him for this bump in the road, I will praise Him for I know His plan is better than mine. I will have to admit a little earlier today, when the pain was a little intense and I was so not expecting to have this done I was not so positive, BUT GOD worked in my heart and mind and helped me see that ALL THINGS WORK TOGETHER FOR THE GOOD OF THOSE WHO LOVE THE LORD. I sure do love the Lord and He loves me more than I deserve. I cannot wait to see God’s hand all over this, please watch with me! This is what is happening now, BUT GOD... #godsgotthis #proctocolectomy #unicornsandrainbows #nocolonstillrollin #ibd #crohns #colectomy #crohnswarrior #giveittothelord #prayer #blessed #colon #ostomy

One thing I missed the most when my Crohn’s was at its worst? Walking my dog!
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TMI - but I couldn’t even walk around the block without 💩ing my pants.. most days I had to run home.. and still not even make it to the toilet 🤷🏼‍♀️
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Super happy I can take a stroll with my dog any ol’ time again now! What is one thing your ostomy gives you the freedom to do again?
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

2018-10-22 23:50   179 8

 

One thing I missed the most when my Crohn’s was at its worst Walking my dog! • TMI - but I couldn’t even walk around the block without 💩ing my pants.. most days I had to run home.. and still not even make it to the toilet 🤷🏼‍♀️ • Super happy I can take a stroll with my dog any ol’ time again now! What is one thing your ostomy gives you the freedom to do again . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

No filter needed.. perfection! 
I have worked my first full 5 day working week in YEARS. I am so proud. What makes this victory even sweeter is that despite being exhausted I am not the same type of exhausted I was prior to surgery. I'm not in a cage of using every ounce of being to just get through a day. I have worked a full 5 day working week and still had enthusiasm to do things after work like make my kids mega shakes and take everyone down to the beach, my house is not a mess and I am my happiest. I could never have done all of this when under UCs vicious spell. 
I'm grateful every day for being an Ostomate. For being here and having this life. My perspective on life has changed dramatically and I really am the happiest ( and healthiest) I have ever been, I'm so proud of myself and that alone is a great feeling. I'm winning. Finally! 
Have a wonderful weekend everyone. 🖤🖤 #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #ulcerativecolitis #ibd #ileostomy #proctocolectomy #perspective

2018-10-20 13:52   51 4

 

No filter needed.. perfection! I have worked my first full 5 day working week in YEARS. I am so proud. What makes this victory even sweeter is that despite being exhausted I am not the same type of exhausted I was prior to surgery. I'm not in a cage of using every ounce of being to just get through a day. I have worked a full 5 day working week and still had enthusiasm to do things after work like make my kids mega shakes and take everyone down to the beach, my house is not a mess and I am my happiest. I could never have done all of this when under UCs vicious spell. I'm grateful every day for being an Ostomate. For being here and having this life. My perspective on life has changed dramatically and I really am the happiest ( and healthiest) I have ever been, I'm so proud of myself and that alone is a great feeling. I'm winning. Finally! Have a wonderful weekend everyone. 🖤🖤 #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #ulcerativecolitis #ibd #ileostomy #proctocolectomy #perspective

Had the best time at a friends 50th last night. Great friends, great food, great band and dancing and then there is my mate Brian. He's their guard dog and just the most handsome boy! 
Thanks for the advice people sent through, I think Frankee and I got through last night just great. We had the best night. 
Again, I can not praise being an ostomate enough. The life I'm living now is next level. 🖤

 #stoma #Ileostomy #Proctocolectomy #nocolonstillrolling #ibdwarrior #ulcerativecolitis #ostomate #aussieostomate

2018-10-14 00:04   40 1

 

Had the best time at a friends 50th last night. Great friends, great food, great band and dancing and then there is my mate Brian. He's their guard dog and just the most handsome boy! Thanks for the advice people sent through, I think Frankee and I got through last night just great. We had the best night. Again, I can not praise being an ostomate enough. The life I'm living now is next level. 🖤 #stoma #Ileostomy #Proctocolectomy #nocolonstillrolling #ibdwarrior #ulcerativecolitis #ostomate #aussieostomate

A relaxing day doing my favorite activities ❤️ LOTS of baking coming atcha 🙌🏼 so blessed my ostomy let me come back to apple picking without anxiety AND will let me eat alllllllllll of the delicious apple baked goods I can come up with!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #cartermountain #rva #richmond

2018-10-13 19:28   187 7

 

A relaxing day doing my favorite activities ❤️ LOTS of baking coming atcha 🙌🏼 so blessed my ostomy let me come back to apple picking without anxiety AND will let me eat alllllllllll of the delicious apple baked goods I can come up with! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #cartermountain #rva #richmond

Happy Friday! It’s starting to cool down in Virginia and finally starting to feel festive 🎃 Lots of autumn activities this weekend including apple picking, pumpkin roasting, and our local yearly folk festival 🧡🧡🧡
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

2018-10-13 02:01   246 4

 

Happy Friday! It’s starting to cool down in Virginia and finally starting to feel festive 🎃 Lots of autumn activities this weekend including apple picking, pumpkin roasting, and our local yearly folk festival 🧡🧡🧡 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

Do you ever feel like you have too much going on? Yeah I’m feeling that right now. But I’m not mad about it. I’m really happy to be working hard and making moves in all aspects of my life ❤️
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It can be hard to keep your energy up when you have a chronic illness and I wish I had more tips because it isn’t easy not gonna lie 😂🤷🏼‍♀️ but if you focus on one small goal at a time I guarantee you will feel accomplished every day! Even when that accomplishment means just getting out of bed, we have all been there and that’s ok 🙏🏼
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We all make moves one step at a time 💜
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

2018-10-11 00:28   126 6

 

Do you ever feel like you have too much going on Yeah I’m feeling that right now. But I’m not mad about it. I’m really happy to be working hard and making moves in all aspects of my life ❤️ • It can be hard to keep your energy up when you have a chronic illness and I wish I had more tips because it isn’t easy not gonna lie 😂🤷🏼‍♀️ but if you focus on one small goal at a time I guarantee you will feel accomplished every day! Even when that accomplishment means just getting out of bed, we have all been there and that’s ok 🙏🏼 • We all make moves one step at a time 💜 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

Long road to my dads! 
He lives about 3 hours from me on the river. We have taken of for 3 days for some relaxing family time. It's been fairly hectic this last month and we are in for a huge few months so a few down days is exactly what we need. 
We saw 6 dead wombats, 4 dead kangaroos and an emu! 
 #familytripsawayarethebest
 #restandrecovery #stoma #Ileostomy #Proctocolectomy #ulcerativecolitis

2018-10-10 12:08   42 3

 

Long road to my dads! He lives about 3 hours from me on the river. We have taken of for 3 days for some relaxing family time. It's been fairly hectic this last month and we are in for a huge few months so a few down days is exactly what we need. We saw 6 dead wombats, 4 dead kangaroos and an emu! #familytripsawayarethebest #restandrecovery #stoma #Ileostomy #Proctocolectomy #ulcerativecolitis

🏕 dreaming of cozy cabins in the woods 🏕
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I had an itchy throat while we were in the mountains, I thought it was from all the camp fire smoke but turned into a full blown sinus cold this week! So I’m dreaming of sleeping in a soft bed in the forest 🙃
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There are a lot of people around me sick this time of year, and I just got my Entyvio infusion last week, so I imagine I was extra vulnerable to catching something!
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What a lot of people don’t realize about those of us with autoimmune diseases and are on heavy duty immune suppressants is that we may look healthy, but I actually have little to no immune system 🤷🏼‍♀️ so an itty bitty cold of mine could last a lot longer and be a lot worse than what would be “normal”
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Does anyone else ever feel like they are prone to getting sick recently after an infusion?! 🙋🏼‍♀️ not the first time for me!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

2018-10-09 23:18   124 16

 

🏕 dreaming of cozy cabins in the woods 🏕 • I had an itchy throat while we were in the mountains, I thought it was from all the camp fire smoke but turned into a full blown sinus cold this week! So I’m dreaming of sleeping in a soft bed in the forest 🙃 • There are a lot of people around me sick this time of year, and I just got my Entyvio infusion last week, so I imagine I was extra vulnerable to catching something! • What a lot of people don’t realize about those of us with autoimmune diseases and are on heavy duty immune suppressants is that we may look healthy, but I actually have little to no immune system 🤷🏼‍♀️ so an itty bitty cold of mine could last a lot longer and be a lot worse than what would be “normal” • Does anyone else ever feel like they are prone to getting sick recently after an infusion! 🙋🏼‍♀️ not the first time for me! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

Did another 5K! It was one of my best friends first 5K and first time running outside, I am SO PROUD of her! Ran the whole thing like a boss! 🙌🏼 Me on the other hand, I have a cold... running and liquid DayQuil definitely upset the stomach! I walked more than I would have liked but still super happy I got out there to support her and finished shortly after she did 🤗 celebrated by eating at some delicious vegan food trucks afterward! (I know that probably didn’t help my upset stomach either I just couldn’t help myself too yummy!)
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For my fellow ostomates who are active/run/etc. Do you have any tips on keeping your bag empty during a race? I empty it before hand but it always fills up during my run and I find myself being super self conscious about it! The fullness just distracts me? I’m thinking I will have to live with it but if you have any tips on when to eat before hand I would appreciate! Otherwise maybe I should gorge on some marshmallows first? Lol
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #rva #porchlight5k

2018-10-07 17:21   99 8

 

Did another 5K! It was one of my best friends first 5K and first time running outside, I am SO PROUD of her! Ran the whole thing like a boss! 🙌🏼 Me on the other hand, I have a cold... running and liquid DayQuil definitely upset the stomach! I walked more than I would have liked but still super happy I got out there to support her and finished shortly after she did 🤗 celebrated by eating at some delicious vegan food trucks afterward! (I know that probably didn’t help my upset stomach either I just couldn’t help myself too yummy!) • For my fellow ostomates who are active/run/etc. Do you have any tips on keeping your bag empty during a race I empty it before hand but it always fills up during my run and I find myself being super self conscious about it! The fullness just distracts me I’m thinking I will have to live with it but if you have any tips on when to eat before hand I would appreciate! Otherwise maybe I should gorge on some marshmallows first Lol . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #rva #porchlight5k

Happy world ostomy day! 💜🌎 This is how my insides look after a proctocolectomy (removal of rectum and colon) here's some education for those that don't know 💜 This is an end ileostomy ➡️ "An end ileostomy normally involves removing the whole of the colon (large intestine) through an incision in your abdomen. The end of the small intestine (ileum) is divided and brought out of the abdomen through a smaller incision, and stitched on to the skin to form a stoma." And that's how I poop y'all 💩 #ileostomy #ostomy #stoma #colectomy #proctocolectomy #worldostomyday #worldostomyday2018

2018-10-06 20:45   169 13

 

Happy world ostomy day! 💜🌎 This is how my insides look after a proctocolectomy (removal of rectum and colon) here's some education for those that don't know 💜 This is an end ileostomy ➡️ "An end ileostomy normally involves removing the whole of the colon (large intestine) through an incision in your abdomen. The end of the small intestine (ileum) is divided and brought out of the abdomen through a smaller incision, and stitched on to the skin to form a stoma." And that's how I poop y'all 💩 #ileostomy #ostomy #stoma #colectomy #proctocolectomy #worldostomyday #worldostomyday2018

🌎💜 Happy World Ostomy Day!! 💜🌎 coincidentally it is also my stoma’s FIRST BIRTHDAY!! 🎉🎈🎉 How cool is that?!
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Last year, I was in a hospital bed, this year I spent the end of my week camping in the woods, in a tiny home away from social media. I never would have been able to experience camping again if it weren’t for my ostomy. If it weren’t for my ostomy I might not even be here today!
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I never thought that this person would be me; I’d be the girl with the poop bag. Crohn’s changed me a lot and I have learned so much. I’m not just a girl with a poop bag, I’m just a happy twenty something year old girl enjoying life to its fullest!
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I was almost at the point of giving up when I went into my ostomy surgery, it was my last resort to get better. I am so happy with my meatball and so happy for the second chance at life my ostomy has given me!
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For all of you out there with an ostomy go out and do something today that you wouldn’t have been able to do without your ostomy!! And for those who may have one some day, don’t fear and embrace change if it comes your way!
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Happy birthday, lil meatball! I’m so grateful for you 🎉 and Happy World Ostomy Day! 🌎💜
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #worldostomyday

2018-10-06 19:06   163 3

 

🌎💜 Happy World Ostomy Day!! 💜🌎 coincidentally it is also my stoma’s FIRST BIRTHDAY!! 🎉🎈🎉 How cool is that! • Last year, I was in a hospital bed, this year I spent the end of my week camping in the woods, in a tiny home away from social media. I never would have been able to experience camping again if it weren’t for my ostomy. If it weren’t for my ostomy I might not even be here today! • I never thought that this person would be me; I’d be the girl with the poop bag. Crohn’s changed me a lot and I have learned so much. I’m not just a girl with a poop bag, I’m just a happy twenty something year old girl enjoying life to its fullest! • I was almost at the point of giving up when I went into my ostomy surgery, it was my last resort to get better. I am so happy with my meatball and so happy for the second chance at life my ostomy has given me! • For all of you out there with an ostomy go out and do something today that you wouldn’t have been able to do without your ostomy!! And for those who may have one some day, don’t fear and embrace change if it comes your way! • Happy birthday, lil meatball! I’m so grateful for you 🎉 and Happy World Ostomy Day! 🌎💜 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #worldostomyday

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