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Images about: #proctocolectomy (731 posts)

🌈🦄Guess where I got to go today?!?!? Back to visit my favorite surgeon, Dr Bird. The very one who promised me back before the whole proctocolectomy surgery in July that this journey would not be ‘unicorns and rainbow’s. Well, he was right. Although it could worse, I have an issue with a ‘sinus tract’ or fistula in the perianal wound. Today, the pleasantness included silver nitrate, to do a form of cauterization to cause the tissue to heal itself. There are two spots where the Crohn’s had apparently done so much damage the tissue is having trouble healing. Here comes the not ‘unicorns and rainbows’ part...I have 3 weeks, wait no, the Lord has three weeks to heal this wound. If not, then he will have to reopen that wound fully, pack it and allow to heal again. BUT GOD already has a plan, He already knows the day, the minute that this will heal, how it will heal and I am already praising His name for that. I will praise Him for this bump in the road, I will praise Him for I know His plan is better than mine. I will have to admit a little earlier today, when the pain was a little intense and I was so not expecting to have this done I was not so positive, BUT GOD worked in my heart and mind and helped me see that ALL THINGS WORK TOGETHER FOR THE GOOD OF THOSE WHO LOVE THE LORD. I sure do love the Lord and He loves me more than I deserve. I cannot wait to see God’s hand all over this, please watch with me! This is what is happening now, BUT GOD... #godsgotthis #proctocolectomy #unicornsandrainbows #nocolonstillrollin #ibd #crohns #colectomy #crohnswarrior #giveittothelord #prayer #blessed #colon #ostomy

2018-10-23 02:33   15 2

 

🌈🦄Guess where I got to go today!! Back to visit my favorite surgeon, Dr Bird. The very one who promised me back before the whole proctocolectomy surgery in July that this journey would not be ‘unicorns and rainbow’s. Well, he was right. Although it could worse, I have an issue with a ‘sinus tract’ or fistula in the perianal wound. Today, the pleasantness included silver nitrate, to do a form of cauterization to cause the tissue to heal itself. There are two spots where the Crohn’s had apparently done so much damage the tissue is having trouble healing. Here comes the not ‘unicorns and rainbows’ part...I have 3 weeks, wait no, the Lord has three weeks to heal this wound. If not, then he will have to reopen that wound fully, pack it and allow to heal again. BUT GOD already has a plan, He already knows the day, the minute that this will heal, how it will heal and I am already praising His name for that. I will praise Him for this bump in the road, I will praise Him for I know His plan is better than mine. I will have to admit a little earlier today, when the pain was a little intense and I was so not expecting to have this done I was not so positive, BUT GOD worked in my heart and mind and helped me see that ALL THINGS WORK TOGETHER FOR THE GOOD OF THOSE WHO LOVE THE LORD. I sure do love the Lord and He loves me more than I deserve. I cannot wait to see God’s hand all over this, please watch with me! This is what is happening now, BUT GOD... #godsgotthis #proctocolectomy #unicornsandrainbows #nocolonstillrollin #ibd #crohns #colectomy #crohnswarrior #giveittothelord #prayer #blessed #colon #ostomy

One thing I missed the most when my Crohn’s was at its worst? Walking my dog!
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TMI - but I couldn’t even walk around the block without 💩ing my pants.. most days I had to run home.. and still not even make it to the toilet 🤷🏼‍♀️
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Super happy I can take a stroll with my dog any ol’ time again now! What is one thing your ostomy gives you the freedom to do again?
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

2018-10-22 23:50   121 7

 

One thing I missed the most when my Crohn’s was at its worst Walking my dog! • TMI - but I couldn’t even walk around the block without 💩ing my pants.. most days I had to run home.. and still not even make it to the toilet 🤷🏼‍♀️ • Super happy I can take a stroll with my dog any ol’ time again now! What is one thing your ostomy gives you the freedom to do again . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva

No filter needed.. perfection! 
I have worked my first full 5 day working week in YEARS. I am so proud. What makes this victory even sweeter is that despite being exhausted I am not the same type of exhausted I was prior to surgery. I'm not in a cage of using every ounce of being to just get through a day. I have worked a full 5 day working week and still had enthusiasm to do things after work like make my kids mega shakes and take everyone down to the beach, my house is not a mess and I am my happiest. I could never have done all of this when under UCs vicious spell. 
I'm grateful every day for being an Ostomate. For being here and having this life. My perspective on life has changed dramatically and I really am the happiest ( and healthiest) I have ever been, I'm so proud of myself and that alone is a great feeling. I'm winning. Finally! 
Have a wonderful weekend everyone. 🖤🖤 #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #ulcerativecolitis #ibd #ileostomy #proctocolectomy #perspective

2018-10-20 13:52   49 4

 

No filter needed.. perfection! I have worked my first full 5 day working week in YEARS. I am so proud. What makes this victory even sweeter is that despite being exhausted I am not the same type of exhausted I was prior to surgery. I'm not in a cage of using every ounce of being to just get through a day. I have worked a full 5 day working week and still had enthusiasm to do things after work like make my kids mega shakes and take everyone down to the beach, my house is not a mess and I am my happiest. I could never have done all of this when under UCs vicious spell. I'm grateful every day for being an Ostomate. For being here and having this life. My perspective on life has changed dramatically and I really am the happiest ( and healthiest) I have ever been, I'm so proud of myself and that alone is a great feeling. I'm winning. Finally! Have a wonderful weekend everyone. 🖤🖤 #ibdwarrior #barbiebum #nocolonstillrollin #invisableillness #ibdawareness #spoonie #inflammatoryboweldisease #colitis #ulcerativecolitis #ibd #ileostomy #proctocolectomy #perspective

Had the best time at a friends 50th last night. Great friends, great food, great band and dancing and then there is my mate Brian. He's their guard dog and just the most handsome boy! 
Thanks for the advice people sent through, I think Frankee and I got through last night just great. We had the best night. 
Again, I can not praise being an ostomate enough. The life I'm living now is next level. 🖤

 #stoma #Ileostomy #Proctocolectomy #nocolonstillrolling #ibdwarrior #ulcerativecolitis #ostomate #aussieostomate

2018-10-14 00:04   39 1

 

Had the best time at a friends 50th last night. Great friends, great food, great band and dancing and then there is my mate Brian. He's their guard dog and just the most handsome boy! Thanks for the advice people sent through, I think Frankee and I got through last night just great. We had the best night. Again, I can not praise being an ostomate enough. The life I'm living now is next level. 🖤 #stoma #Ileostomy #Proctocolectomy #nocolonstillrolling #ibdwarrior #ulcerativecolitis #ostomate #aussieostomate

A relaxing day doing my favorite activities ❤️ LOTS of baking coming atcha 🙌🏼 so blessed my ostomy let me come back to apple picking without anxiety AND will let me eat alllllllllll of the delicious apple baked goods I can come up with!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #cartermountain #rva #richmond

2018-10-13 19:28   183 7

 

A relaxing day doing my favorite activities ❤️ LOTS of baking coming atcha 🙌🏼 so blessed my ostomy let me come back to apple picking without anxiety AND will let me eat alllllllllll of the delicious apple baked goods I can come up with! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #cartermountain #rva #richmond

Happy Friday! It’s starting to cool down in Virginia and finally starting to feel festive 🎃 Lots of autumn activities this weekend including apple picking, pumpkin roasting, and our local yearly folk festival 🧡🧡🧡
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

2018-10-13 02:01   239 3

 

Happy Friday! It’s starting to cool down in Virginia and finally starting to feel festive 🎃 Lots of autumn activities this weekend including apple picking, pumpkin roasting, and our local yearly folk festival 🧡🧡🧡 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

Do you ever feel like you have too much going on? Yeah I’m feeling that right now. But I’m not mad about it. I’m really happy to be working hard and making moves in all aspects of my life ❤️
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It can be hard to keep your energy up when you have a chronic illness and I wish I had more tips because it isn’t easy not gonna lie 😂🤷🏼‍♀️ but if you focus on one small goal at a time I guarantee you will feel accomplished every day! Even when that accomplishment means just getting out of bed, we have all been there and that’s ok 🙏🏼
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We all make moves one step at a time 💜
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

2018-10-11 00:28   123 6

 

Do you ever feel like you have too much going on Yeah I’m feeling that right now. But I’m not mad about it. I’m really happy to be working hard and making moves in all aspects of my life ❤️ • It can be hard to keep your energy up when you have a chronic illness and I wish I had more tips because it isn’t easy not gonna lie 😂🤷🏼‍♀️ but if you focus on one small goal at a time I guarantee you will feel accomplished every day! Even when that accomplishment means just getting out of bed, we have all been there and that’s ok 🙏🏼 • We all make moves one step at a time 💜 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

Long road to my dads! 
He lives about 3 hours from me on the river. We have taken of for 3 days for some relaxing family time. It's been fairly hectic this last month and we are in for a huge few months so a few down days is exactly what we need. 
We saw 6 dead wombats, 4 dead kangaroos and an emu! 
 #familytripsawayarethebest
 #restandrecovery #stoma #Ileostomy #Proctocolectomy #ulcerativecolitis

2018-10-10 12:08   42 3

 

Long road to my dads! He lives about 3 hours from me on the river. We have taken of for 3 days for some relaxing family time. It's been fairly hectic this last month and we are in for a huge few months so a few down days is exactly what we need. We saw 6 dead wombats, 4 dead kangaroos and an emu! #familytripsawayarethebest #restandrecovery #stoma #Ileostomy #Proctocolectomy #ulcerativecolitis

🏕 dreaming of cozy cabins in the woods 🏕
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I had an itchy throat while we were in the mountains, I thought it was from all the camp fire smoke but turned into a full blown sinus cold this week! So I’m dreaming of sleeping in a soft bed in the forest 🙃
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There are a lot of people around me sick this time of year, and I just got my Entyvio infusion last week, so I imagine I was extra vulnerable to catching something!
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What a lot of people don’t realize about those of us with autoimmune diseases and are on heavy duty immune suppressants is that we may look healthy, but I actually have little to no immune system 🤷🏼‍♀️ so an itty bitty cold of mine could last a lot longer and be a lot worse than what would be “normal”
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Does anyone else ever feel like they are prone to getting sick recently after an infusion?! 🙋🏼‍♀️ not the first time for me!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

2018-10-09 23:18   119 16

 

🏕 dreaming of cozy cabins in the woods 🏕 • I had an itchy throat while we were in the mountains, I thought it was from all the camp fire smoke but turned into a full blown sinus cold this week! So I’m dreaming of sleeping in a soft bed in the forest 🙃 • There are a lot of people around me sick this time of year, and I just got my Entyvio infusion last week, so I imagine I was extra vulnerable to catching something! • What a lot of people don’t realize about those of us with autoimmune diseases and are on heavy duty immune suppressants is that we may look healthy, but I actually have little to no immune system 🤷🏼‍♀️ so an itty bitty cold of mine could last a lot longer and be a lot worse than what would be “normal” • Does anyone else ever feel like they are prone to getting sick recently after an infusion! 🙋🏼‍♀️ not the first time for me! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond

Did another 5K! It was one of my best friends first 5K and first time running outside, I am SO PROUD of her! Ran the whole thing like a boss! 🙌🏼 Me on the other hand, I have a cold... running and liquid DayQuil definitely upset the stomach! I walked more than I would have liked but still super happy I got out there to support her and finished shortly after she did 🤗 celebrated by eating at some delicious vegan food trucks afterward! (I know that probably didn’t help my upset stomach either I just couldn’t help myself too yummy!)
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For my fellow ostomates who are active/run/etc. Do you have any tips on keeping your bag empty during a race? I empty it before hand but it always fills up during my run and I find myself being super self conscious about it! The fullness just distracts me? I’m thinking I will have to live with it but if you have any tips on when to eat before hand I would appreciate! Otherwise maybe I should gorge on some marshmallows first? Lol
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #rva #porchlight5k

2018-10-07 17:21   96 8

 

Did another 5K! It was one of my best friends first 5K and first time running outside, I am SO PROUD of her! Ran the whole thing like a boss! 🙌🏼 Me on the other hand, I have a cold... running and liquid DayQuil definitely upset the stomach! I walked more than I would have liked but still super happy I got out there to support her and finished shortly after she did 🤗 celebrated by eating at some delicious vegan food trucks afterward! (I know that probably didn’t help my upset stomach either I just couldn’t help myself too yummy!) • For my fellow ostomates who are active/run/etc. Do you have any tips on keeping your bag empty during a race I empty it before hand but it always fills up during my run and I find myself being super self conscious about it! The fullness just distracts me I’m thinking I will have to live with it but if you have any tips on when to eat before hand I would appreciate! Otherwise maybe I should gorge on some marshmallows first Lol . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #richmond #rva #porchlight5k

Happy world ostomy day! 💜🌎 This is how my insides look after a proctocolectomy (removal of rectum and colon) here's some education for those that don't know 💜 This is an end ileostomy ➡️ "An end ileostomy normally involves removing the whole of the colon (large intestine) through an incision in your abdomen. The end of the small intestine (ileum) is divided and brought out of the abdomen through a smaller incision, and stitched on to the skin to form a stoma." And that's how I poop y'all 💩 #ileostomy #ostomy #stoma #colectomy #proctocolectomy #worldostomyday #worldostomyday2018

2018-10-06 20:45   162 8

 

Happy world ostomy day! 💜🌎 This is how my insides look after a proctocolectomy (removal of rectum and colon) here's some education for those that don't know 💜 This is an end ileostomy ➡️ "An end ileostomy normally involves removing the whole of the colon (large intestine) through an incision in your abdomen. The end of the small intestine (ileum) is divided and brought out of the abdomen through a smaller incision, and stitched on to the skin to form a stoma." And that's how I poop y'all 💩 #ileostomy #ostomy #stoma #colectomy #proctocolectomy #worldostomyday #worldostomyday2018

🌎💜 Happy World Ostomy Day!! 💜🌎 coincidentally it is also my stoma’s FIRST BIRTHDAY!! 🎉🎈🎉 How cool is that?!
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Last year, I was in a hospital bed, this year I spent the end of my week camping in the woods, in a tiny home away from social media. I never would have been able to experience camping again if it weren’t for my ostomy. If it weren’t for my ostomy I might not even be here today!
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I never thought that this person would be me; I’d be the girl with the poop bag. Crohn’s changed me a lot and I have learned so much. I’m not just a girl with a poop bag, I’m just a happy twenty something year old girl enjoying life to its fullest!
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I was almost at the point of giving up when I went into my ostomy surgery, it was my last resort to get better. I am so happy with my meatball and so happy for the second chance at life my ostomy has given me!
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For all of you out there with an ostomy go out and do something today that you wouldn’t have been able to do without your ostomy!! And for those who may have one some day, don’t fear and embrace change if it comes your way!
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Happy birthday, lil meatball! I’m so grateful for you 🎉 and Happy World Ostomy Day! 🌎💜
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #worldostomyday

2018-10-06 19:06   163 3

 

🌎💜 Happy World Ostomy Day!! 💜🌎 coincidentally it is also my stoma’s FIRST BIRTHDAY!! 🎉🎈🎉 How cool is that! • Last year, I was in a hospital bed, this year I spent the end of my week camping in the woods, in a tiny home away from social media. I never would have been able to experience camping again if it weren’t for my ostomy. If it weren’t for my ostomy I might not even be here today! • I never thought that this person would be me; I’d be the girl with the poop bag. Crohn’s changed me a lot and I have learned so much. I’m not just a girl with a poop bag, I’m just a happy twenty something year old girl enjoying life to its fullest! • I was almost at the point of giving up when I went into my ostomy surgery, it was my last resort to get better. I am so happy with my meatball and so happy for the second chance at life my ostomy has given me! • For all of you out there with an ostomy go out and do something today that you wouldn’t have been able to do without your ostomy!! And for those who may have one some day, don’t fear and embrace change if it comes your way! • Happy birthday, lil meatball! I’m so grateful for you 🎉 and Happy World Ostomy Day! 🌎💜 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #worldostomyday

 #Repost @meatballthestoma with @get_repost
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This is for all my “Barbie butt” girls out there! (And Ken butt guys!) who are dealing with a slow healing perianal wound... hi 👋🏼 you are not alone!! I visited my plastic surgeon today to take a look at how my wound “down there” is healing...
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So after six weeks it had gone from about 1 centimeter to 1/2 centimeter! This is major progress as I am 1 year to the date from my proctocolectomy on this Saturday 10/6... so it has been SLOW FREAKIN going! Let me tell you I am SICK of packing this wound daily!! It is just a pain in my ass!! Literally and figuratively!
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I was referred to a plastic surgeon to see if I potentially needed a wound revision to help speed up the progress, luckily they didn’t see anything seriously wrong and suggested I started to pack with “Aquacel Ag Extra” made by ConvaTec and it had done WONDERS! Soaks up allllllll the moisture! I change it twice a day, once in the morning and once before bed. I only wonder how fast my wound would have healed if I had this earlier!
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I suggest anyone who is having trouble healing their perianal wound to ask for this packing/wound care material and to see if it will help!
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Lots of love ❤️❤️❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt

2018-10-06 04:55   81 0

 

#Repost @meatballthestoma with @get_repost ・・・ This is for all my “Barbie butt” girls out there! (And Ken butt guys!) who are dealing with a slow healing perianal wound... hi 👋🏼 you are not alone!! I visited my plastic surgeon today to take a look at how my wound “down there” is healing... • So after six weeks it had gone from about 1 centimeter to 1/2 centimeter! This is major progress as I am 1 year to the date from my proctocolectomy on this Saturday 10/6... so it has been SLOW FREAKIN going! Let me tell you I am SICK of packing this wound daily!! It is just a pain in my ass!! Literally and figuratively! • I was referred to a plastic surgeon to see if I potentially needed a wound revision to help speed up the progress, luckily they didn’t see anything seriously wrong and suggested I started to pack with “Aquacel Ag Extra” made by ConvaTec and it had done WONDERS! Soaks up allllllll the moisture! I change it twice a day, once in the morning and once before bed. I only wonder how fast my wound would have healed if I had this earlier! • I suggest anyone who is having trouble healing their perianal wound to ask for this packing/wound care material and to see if it will help! • Lots of love ❤️❤️❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt

💩Everybody does do it. Some people just do it different. Some people need an ostomy, an ileostomy, surgery or in some cases surgeries...it isn’t an act that just a few people do, it is something we all do. Kings and Queens, Presidents and movie stars...right down to us common folk. We all poop, one way or another. This Saturday is World Ostomy Day 2018. It is a day that my family has celebrated for 3 years now. This Saturday celebrates the surgery, the stoma and the bag I wear that allows me to live. Crohn’s has stolen so many things from so many people, and for whatever reason people have this day to celebrate, wether it be Crohn’s, cancer, trauma, or whatever is the reason, pooping this way keeps us here. Alive. With our family and friends. That is what is most important...because when it comes down to it, we all poop. Some of us just do it differently, and THAT IS OK. I am proud of all that I have been through, some days that has been harder to say than others, but I am not ashamed to say I have an ostomy, will for life and that is alright with me! Thank you Lord! Happy Early National Ostomy Day 2018! 💩 #colostomy #nationalostomyday #proctocolectomy #crohns #crohnswarrior #ostomydiaries #ibd #nocolonstillrollin #mommasgotabrandnewbag #godsgotthis #thankyoulord

2018-10-04 01:06   27 2

 

💩Everybody does do it. Some people just do it different. Some people need an ostomy, an ileostomy, surgery or in some cases surgeries...it isn’t an act that just a few people do, it is something we all do. Kings and Queens, Presidents and movie stars...right down to us common folk. We all poop, one way or another. This Saturday is World Ostomy Day 2018. It is a day that my family has celebrated for 3 years now. This Saturday celebrates the surgery, the stoma and the bag I wear that allows me to live. Crohn’s has stolen so many things from so many people, and for whatever reason people have this day to celebrate, wether it be Crohn’s, cancer, trauma, or whatever is the reason, pooping this way keeps us here. Alive. With our family and friends. That is what is most important...because when it comes down to it, we all poop. Some of us just do it differently, and THAT IS OK. I am proud of all that I have been through, some days that has been harder to say than others, but I am not ashamed to say I have an ostomy, will for life and that is alright with me! Thank you Lord! Happy Early National Ostomy Day 2018! 💩 #colostomy #nationalostomyday #proctocolectomy #crohns #crohnswarrior #ostomydiaries #ibd #nocolonstillrollin #mommasgotabrandnewbag #godsgotthis #thankyoulord

This is for all my “Barbie butt” girls out there! (And Ken butt guys!) who are dealing with a slow healing perianal wound... hi 👋🏼 you are not alone!! I visited my plastic surgeon today to take a look at how my wound “down there” is healing...
•
So after six weeks it had gone from about 1 centimeter to 1/2 centimeter! This is major progress as I am 1 year to the date from my proctocolectomy on this Saturday 10/6... so it has been SLOW FREAKIN going! Let me tell you I am SICK of packing this wound daily!! It is just a pain in my ass!! Literally and figuratively!
•
I was referred to a plastic surgeon to see if I potentially needed a wound revision to help speed up the progress, luckily they didn’t see anything seriously wrong and suggested I started to pack with “Aquacel Ag Extra” made by ConvaTec and it had done WONDERS! Soaks up allllllll the moisture! I change it twice a day, once in the morning and once before bed. I only wonder how fast my wound would have healed if I had this earlier!
•
I suggest anyone who is having trouble healing their perianal wound to ask for this packing/wound care material and to see if it will help!
•
Lots of love ❤️❤️❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt

2018-10-04 00:28   145 7

 

This is for all my “Barbie butt” girls out there! (And Ken butt guys!) who are dealing with a slow healing perianal wound... hi 👋🏼 you are not alone!! I visited my plastic surgeon today to take a look at how my wound “down there” is healing... • So after six weeks it had gone from about 1 centimeter to 1/2 centimeter! This is major progress as I am 1 year to the date from my proctocolectomy on this Saturday 10/6... so it has been SLOW FREAKIN going! Let me tell you I am SICK of packing this wound daily!! It is just a pain in my ass!! Literally and figuratively! • I was referred to a plastic surgeon to see if I potentially needed a wound revision to help speed up the progress, luckily they didn’t see anything seriously wrong and suggested I started to pack with “Aquacel Ag Extra” made by ConvaTec and it had done WONDERS! Soaks up allllllll the moisture! I change it twice a day, once in the morning and once before bed. I only wonder how fast my wound would have healed if I had this earlier! • I suggest anyone who is having trouble healing their perianal wound to ask for this packing/wound care material and to see if it will help! • Lots of love ❤️❤️❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #barbiebutt

☝️ note to self!
Sooo it’s safe to say cabin fever is definitely settling in & it’s only day 3 of being signed off work 🤣
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If you know me you’ll know I hate letting my illness get the better of me & I hate being off my work 👎 I’ve been “well...ish” for so long so this is hitting me like a tone of bricks!
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On a plus tho...I’ve finally received a date for my next surgery for my Proctocolectomy...Barbie butt what ever you wish to call it 😆 I mean who needs a colon anyways, not me 😂
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Roll on the 10th November 😊 Nervous to say the least but I can’t wait to see if this will help make me feel better long term & right now I guess I’m needing a little self care til then & I’ll be back to my normal self....☺️
 #fedup #restup #keepsmiling #selfcare #crohns #crohnsdisease #crohnsandcolitis #invisibleillness #nextstopsurgery #proctocolectomy #barbiebutt #ostomy #ileostomy

2018-10-03 12:50   45 15

 

☝️ note to self! Sooo it’s safe to say cabin fever is definitely settling in & it’s only day 3 of being signed off work 🤣 . If you know me you’ll know I hate letting my illness get the better of me & I hate being off my work 👎 I’ve been “well...ish” for so long so this is hitting me like a tone of bricks! . On a plus tho...I’ve finally received a date for my next surgery for my Proctocolectomy...Barbie butt what ever you wish to call it 😆 I mean who needs a colon anyways, not me 😂 . Roll on the 10th November 😊 Nervous to say the least but I can’t wait to see if this will help make me feel better long term & right now I guess I’m needing a little self care til then & I’ll be back to my normal self....☺️ #fedup #restup #keepsmiling #selfcare #crohns #crohnsdisease #crohnsandcolitis #invisibleillness #nextstopsurgery #proctocolectomy #barbiebutt #ostomy #ileostomy

One colon short of a wolf pack 🌝 Happy Monday! And with #worldostomyday coming up on Saturday, I was wondering, outside of social media were you or how were you planning on spreading positivity and awareness this week? I plan on sending an email to my whole department at work inviting those who are interested to come ask me questions! I can be quiet and not much of a small talker but an ostomy sure is an icebreaker! ❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ootd

2018-10-02 01:54   174 4

 

One colon short of a wolf pack 🌝 Happy Monday! And with #worldostomyday coming up on Saturday, I was wondering, outside of social media were you or how were you planning on spreading positivity and awareness this week I plan on sending an email to my whole department at work inviting those who are interested to come ask me questions! I can be quiet and not much of a small talker but an ostomy sure is an icebreaker! ❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #ootd

Monday Night Thoughts. 
New beginnings, new dreams and goals. A whole new life. 
Being diseaseless is worth every day I am an Ostomate. I feel like I wasted 26 years of my life being that diseased, sick girl. Although in one hand having UC and the hurdles it gave me helped shape who I am it was a time I never enjoyed so having a chance to start over, create a new me, Emma 2.0 just seems so surreal. 
I love my life 🖤

 #ostomate #stoma #Ileostomy #ulcerativecolitis #Proctocolectomy #ibdwarrior

2018-10-01 13:45   39 4

 

Monday Night Thoughts. New beginnings, new dreams and goals. A whole new life. Being diseaseless is worth every day I am an Ostomate. I feel like I wasted 26 years of my life being that diseased, sick girl. Although in one hand having UC and the hurdles it gave me helped shape who I am it was a time I never enjoyed so having a chance to start over, create a new me, Emma 2.0 just seems so surreal. I love my life 🖤 #ostomate #stoma #Ileostomy #ulcerativecolitis #Proctocolectomy #ibdwarrior

Happy Sunday, friends! Enjoyed my morning spin and smoothie ritual 🚴🏼‍♀️
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Something that has helped motivate me to get back into exercising after my ostomy surgery is to always keep things interesting and find things that you LOVE to do! I personally hate the gym, but I have found my groove back with spinning and rock climbing and some yoga! No one should be confined to one exercise routine, it is fun to mix things up!
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You will always be excited to exercise if you make it something you enjoy! ❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

2018-09-30 19:24   110 1

 

Happy Sunday, friends! Enjoyed my morning spin and smoothie ritual 🚴🏼‍♀️ • Something that has helped motivate me to get back into exercising after my ostomy surgery is to always keep things interesting and find things that you LOVE to do! I personally hate the gym, but I have found my groove back with spinning and rock climbing and some yoga! No one should be confined to one exercise routine, it is fun to mix things up! • You will always be excited to exercise if you make it something you enjoy! ❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

One year and 35 lbs later I am back at the State Fair of Virginia!! 🤗 to me, this fair marks the beginning of fall festivities! The first picture is today, the second picture was this exact time last year. What a huge difference one year with my ostomy makes! edit: just realized I’m wearing the same hat both years 😂
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I am thrilled I can walk around without anxiety of where to find a toilet this year! Last year, I was on the verge of passing out at every moment I was so weak. Last year, I went home and hooked up to my TPN.
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I am very thankful for my little meatball stoma and how I can enjoy the simple things again! World Ostomy Day and my stoma’s first birthday coming up on October 6th! What a great day to be alive ❤️
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Peep my insta story.. I also milked a cow today 😂🐮❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #worldostomyday #rva

2018-09-28 23:46   186 11

 

One year and 35 lbs later I am back at the State Fair of Virginia!! 🤗 to me, this fair marks the beginning of fall festivities! The first picture is today, the second picture was this exact time last year. What a huge difference one year with my ostomy makes! edit: just realized I’m wearing the same hat both years 😂 • I am thrilled I can walk around without anxiety of where to find a toilet this year! Last year, I was on the verge of passing out at every moment I was so weak. Last year, I went home and hooked up to my TPN. • I am very thankful for my little meatball stoma and how I can enjoy the simple things again! World Ostomy Day and my stoma’s first birthday coming up on October 6th! What a great day to be alive ❤️ • Peep my insta story.. I also milked a cow today 😂🐮❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #worldostomyday #rva

Little Miss Frankee has been hurting a bit today. She started to have a burning feeling tonight so I had a bagless shower and added some of the magical cream I have. I've put a photo on, slide across to see the irritated skin. It has never really healed properly and it's particularly painful today. I do put that partially down to forgetting to do a bag change... I can not believe I have got to a point I forget to do a bag change. I'm just busy loving and living life and then Frankee gets shitty which is when I have to sit there and try and remember the last time I did it. I saw this idea somewhere before ( I'm sorry, I can't remember where and who to credit) to write the day I did the change to remind myself. It's a brilliant idea. 
Any ostomates keep a bag change log? 
 #Ileostomy #Proctocolectomy #ulcerativecolitis #ibdwarrior #stoma #nocolonstillrollin #ibd

2018-09-27 14:04   35 10

 

Little Miss Frankee has been hurting a bit today. She started to have a burning feeling tonight so I had a bagless shower and added some of the magical cream I have. I've put a photo on, slide across to see the irritated skin. It has never really healed properly and it's particularly painful today. I do put that partially down to forgetting to do a bag change... I can not believe I have got to a point I forget to do a bag change. I'm just busy loving and living life and then Frankee gets shitty which is when I have to sit there and try and remember the last time I did it. I saw this idea somewhere before ( I'm sorry, I can't remember where and who to credit) to write the day I did the change to remind myself. It's a brilliant idea. Any ostomates keep a bag change log #Ileostomy #Proctocolectomy #ulcerativecolitis #ibdwarrior #stoma #nocolonstillrollin #ibd

So who else has ever had a problem with their ostomy supply company sending them a randomly different item? 🤦🏼‍♀️ I order the same things every month.... I’ve never ordered these McKesson skin wipes but randomly are on my order and were shipped to me... how hard is it to re-order the EXACT same order every month???? I know it’s not a big deal, and I actually still have a lot of my Smith&Nephew wipes left... but when you find a product that doesn’t irritate your skin, you kinda want to stick with it!!! 🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️ just one of those days 💩
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond #mckesson

2018-09-26 23:03   76 13

 

So who else has ever had a problem with their ostomy supply company sending them a randomly different item 🤦🏼‍♀️ I order the same things every month.... I’ve never ordered these McKesson skin wipes but randomly are on my order and were shipped to me... how hard is it to re-order the EXACT same order every month I know it’s not a big deal, and I actually still have a lot of my Smith&Nephew wipes left... but when you find a product that doesn’t irritate your skin, you kinda want to stick with it!!! 🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️ just one of those days 💩 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin #rva #richmond #mckesson

This 👌🖤 I have been working just over a week now and today I did a full day. I was excited but far out I am exhausted tonight. Who would have thought 6 months post op this is where I would be. I never, ever imagined life would be this amazing. I can't believe I spent so much of my life sick. What a waste!! I fought hard for this life and like I said before, I won't be wasting a moment!! If you're worried about becoming an ostomate, I can assure you the hurdles we have as ostomates are nothing in comparison to the new life it gives us. 🖤

 #Proctocolectomy #ulcerativecolitis #ibdwarrior #ibdsuperheroes #stoma #Ileostomy #lovemylife

2018-09-26 09:27   53 5

 

This 👌🖤 I have been working just over a week now and today I did a full day. I was excited but far out I am exhausted tonight. Who would have thought 6 months post op this is where I would be. I never, ever imagined life would be this amazing. I can't believe I spent so much of my life sick. What a waste!! I fought hard for this life and like I said before, I won't be wasting a moment!! If you're worried about becoming an ostomate, I can assure you the hurdles we have as ostomates are nothing in comparison to the new life it gives us. 🖤 #Proctocolectomy #ulcerativecolitis #ibdwarrior #ibdsuperheroes #stoma #Ileostomy #lovemylife

Here I am, one month post-surgery . This photo doesn’t even reveal all of the scars I have from my surgery. You can see the four scars and my stoma from the laparoscopic #proctocolectomy , and one from the drain near my ribs, but hidden from view are the two from the drains in my lower abdomen, including the drain that stayed in for a month after my surgery. Also hidden from view is the incision in my backside that still hasn’t finished healing. I was in surgery for 12 hours for a surgery that was supposed to take 6-8 hours, which left me with muscle spasms in my shoulders and chest- more painful than anything I’ve ever experienced in my life. It took days for the spasms to release, and a combination of muscle relaxers, anti anxiety drugs, and pain killers barely took the edge off.I spent two full weeks in the hospital due to a nasty infection and multiple abdominal abscesses that came in reaction to my doctors stopping the prednisone after surgery. (I kept telling the nurses and doctors that it felt like I couldn’t breath but they didn’t understand why because my oxygen meter was in the 90s- I later found out it was because one of the abscesses was directly below my diaphragm.)
I have spent the past three and a half weeks at home recovering, and I am finally starting to feel “back-to-normal”. For at least four weeks I wasn’t allowed to pick up my daughter, which was emotionally excruciating. I still sometimes have trouble lifting her because I lost so much muscle strength after so many weeks in the hospital this summer. When I do lift her I frequently have feelings of panic that I might blow out an incision or get a hernia. I just ate my first regular meal last night after months on a low residue diet, which for me also meant zero vegetables because they made me so sick every time I tried to eat them. I’m looking forward to being able to eat steamed broccoli again, and maybe someday even a salad.
I’m on the mend, and feeling thankful that this #ileostomy is slowly getting me back to my wonderful everyday life. #ibd #ibdawareness #ibdwarrior #ulcerativecolitis #ulcerativecolitisfighter #ostomy #ostomyawareness

2018-09-25 16:04   22 3

 

Here I am, one month post-surgery . This photo doesn’t even reveal all of the scars I have from my surgery. You can see the four scars and my stoma from the laparoscopic #proctocolectomy , and one from the drain near my ribs, but hidden from view are the two from the drains in my lower abdomen, including the drain that stayed in for a month after my surgery. Also hidden from view is the incision in my backside that still hasn’t finished healing. I was in surgery for 12 hours for a surgery that was supposed to take 6-8 hours, which left me with muscle spasms in my shoulders and chest- more painful than anything I’ve ever experienced in my life. It took days for the spasms to release, and a combination of muscle relaxers, anti anxiety drugs, and pain killers barely took the edge off.I spent two full weeks in the hospital due to a nasty infection and multiple abdominal abscesses that came in reaction to my doctors stopping the prednisone after surgery. (I kept telling the nurses and doctors that it felt like I couldn’t breath but they didn’t understand why because my oxygen meter was in the 90s- I later found out it was because one of the abscesses was directly below my diaphragm.) I have spent the past three and a half weeks at home recovering, and I am finally starting to feel “back-to-normal”. For at least four weeks I wasn’t allowed to pick up my daughter, which was emotionally excruciating. I still sometimes have trouble lifting her because I lost so much muscle strength after so many weeks in the hospital this summer. When I do lift her I frequently have feelings of panic that I might blow out an incision or get a hernia. I just ate my first regular meal last night after months on a low residue diet, which for me also meant zero vegetables because they made me so sick every time I tried to eat them. I’m looking forward to being able to eat steamed broccoli again, and maybe someday even a salad. I’m on the mend, and feeling thankful that this #ileostomy is slowly getting me back to my wonderful everyday life. #ibd #ibdawareness #ibdwarrior #ulcerativecolitis #ulcerativecolitisfighter #ostomy #ostomyawareness

🖤 6 Months 🖤

I miscalculated and thought it was tomorrow but it's actually today! 
I can not believe I am sitting here today 6 months post op loving the frick out of life. If you'd asked me before the op where I'd be in 6 months I wouldn't have been able to tell you yet here I am the healthiest and happiest I have EVER been. It just took me to hell and back to get here and the best darn family I could ever want to support me. 
I can't wait to see where I am in 6 months time as the hardest months are behind me.

Happy 6 month stomaversary to Frankee and I! She saved my life in every way 🖤

Regrann from @emma_uc_warrior

 #ibdsuperheroes #Proctocolectomy #Ileostomy #stoma #ulcerativecolitis #ibdwarrior #igotthis #frankeesavedme

2018-09-23 13:26   73 0

 

🖤 6 Months 🖤 I miscalculated and thought it was tomorrow but it's actually today! I can not believe I am sitting here today 6 months post op loving the frick out of life. If you'd asked me before the op where I'd be in 6 months I wouldn't have been able to tell you yet here I am the healthiest and happiest I have EVER been. It just took me to hell and back to get here and the best darn family I could ever want to support me. I can't wait to see where I am in 6 months time as the hardest months are behind me. Happy 6 month stomaversary to Frankee and I! She saved my life in every way 🖤 Regrann from @emma_uc_warrior #ibdsuperheroes #Proctocolectomy #Ileostomy #stoma #ulcerativecolitis #ibdwarrior #igotthis #frankeesavedme

What a weekend! 
I have NEVER been able to work all day and then back it up with a social bonfire with a few sneaky bevarages ( with a side of marshmellows to line my gut!) without some sort of shitty consequences. This is the life I imagined... Working, being social, happy and healthy. Ostomate life is my life and it's my best life. I wore my new shoes, locked myself out of my work locker and had a wet work shirt, spent time with some great people and enjoyed every single bit of it. 
I can not love my life anymore and grateful every single day 🖤

 #ostomate #Ileostomy
 #Proctocolectomy #proudtobeanostomate
 #lovemylife #ibdwarrior #ulcerativecolitis #ulcerativecolitis

2018-09-23 11:32   45 7

 

What a weekend! I have NEVER been able to work all day and then back it up with a social bonfire with a few sneaky bevarages ( with a side of marshmellows to line my gut!) without some sort of shitty consequences. This is the life I imagined... Working, being social, happy and healthy. Ostomate life is my life and it's my best life. I wore my new shoes, locked myself out of my work locker and had a wet work shirt, spent time with some great people and enjoyed every single bit of it. I can not love my life anymore and grateful every single day 🖤 #ostomate #Ileostomy #Proctocolectomy #proudtobeanostomate #lovemylife #ibdwarrior #ulcerativecolitis #ulcerativecolitis

🖤 6 Months 🖤

I miscalculated and thought it was tomorrow but it's actually today! 
I can not believe I am sitting here today 6 months post op loving the frick out of life. If you'd asked me before the op where I'd be in 6 months I wouldn't have been able to tell you yet here I am the healthiest and happiest I have EVER been. It just took me to hell and back to get here and the best darn family I could ever want to support me. 
I can't wait to see where I am in 6 months time as the hardest months are behind me.

Happy 6 month stomaversary to Frankee and I! She saved my life in every way 🖤

 #ibdsuperheroes #Proctocolectomy #Ileostomy #stoma #ulcerativecolitis #ibdwarrior #igotthis #frankeesavedme

2018-09-21 11:30   68 4

 

🖤 6 Months 🖤 I miscalculated and thought it was tomorrow but it's actually today! I can not believe I am sitting here today 6 months post op loving the frick out of life. If you'd asked me before the op where I'd be in 6 months I wouldn't have been able to tell you yet here I am the healthiest and happiest I have EVER been. It just took me to hell and back to get here and the best darn family I could ever want to support me. I can't wait to see where I am in 6 months time as the hardest months are behind me. Happy 6 month stomaversary to Frankee and I! She saved my life in every way 🖤 #ibdsuperheroes #Proctocolectomy #Ileostomy #stoma #ulcerativecolitis #ibdwarrior #igotthis #frankeesavedme

I have finally caught on to the hair dryer shenanigans. I used to pop a little towel over my bag and off I went often forgetting I had the towel there and a prominant bulge because of it. . I tried the hairdrying trick and now it's my go too. So damn quick and easy. Dried in minutes. So thanks for that awesome hack ostomates! 
Shout out to my abs too which are just starting to poke through. My hard work is starting to pay off and relieved that the years spent building my abs haven't gone to waste. 
I have my first full shift today, not an induction, the sun is shining, I'm so damn excited.

Have a great weekend everyone! 🖤🖤 #ostomate #stoma #Ileostomy #ulcerativecolitis #Proctocolectomy #ibdwarrior #ibd

2018-09-21 02:37   57 4

 

I have finally caught on to the hair dryer shenanigans. I used to pop a little towel over my bag and off I went often forgetting I had the towel there and a prominant bulge because of it. . I tried the hairdrying trick and now it's my go too. So damn quick and easy. Dried in minutes. So thanks for that awesome hack ostomates! Shout out to my abs too which are just starting to poke through. My hard work is starting to pay off and relieved that the years spent building my abs haven't gone to waste. I have my first full shift today, not an induction, the sun is shining, I'm so damn excited. Have a great weekend everyone! 🖤🖤 #ostomate #stoma #Ileostomy #ulcerativecolitis #Proctocolectomy #ibdwarrior #ibd

Late night coffee run 😞 as much as I love my coffee doing a run at 7pm because I f*^ked up and not only chomped down celery but also capsicums is kinda shit. Frankee is not a happy lady and she is letting me know with some mild pain. 
I can't seem to tolerate much variation of food. It's a little shit when I was restricted before surgery it seems to be more so now. I have 2 vegetables I can so far eat, onion and sweet potato. Anything else just causes me pain. 
Is this the same for anyone else? 
Anyway, hopefully this coffee pushes everything through. 🤞 🖤🖤 #ostomate #ibdwarrior #Proctocolectomy #nocolonstillrolling #Ileostomy #ibd #ulcerativecolitis

2018-09-19 10:31   26 11

 

Late night coffee run 😞 as much as I love my coffee doing a run at 7pm because I f*^ked up and not only chomped down celery but also capsicums is kinda shit. Frankee is not a happy lady and she is letting me know with some mild pain. I can't seem to tolerate much variation of food. It's a little shit when I was restricted before surgery it seems to be more so now. I have 2 vegetables I can so far eat, onion and sweet potato. Anything else just causes me pain. Is this the same for anyone else Anyway, hopefully this coffee pushes everything through. 🤞 🖤🖤 #ostomate #ibdwarrior #Proctocolectomy #nocolonstillrolling #Ileostomy #ibd #ulcerativecolitis

I am so excited 😱 Today is my first day of my new job. I'm super nervous too. 
We drove around 400kms to our nearest city to go shoe shopping and grab some temporary work clothes until my proper uniform arrives. I thought finding pants would be really hard but good ol target came through with these elastic waistbanded pants. They are comfortable around Frankee, not tight or restrictive and I think they are a little snazzy, for me at least!! I have never ever worked diseaseless before. I am excited about that too. It's a whole new experience! I stopped working back in Nov from UC kicking my ass and then sold my business literally while recovering in hospital. So I haven't worked for a while. I hope I go okay! 
Happy Tuesday Everyone! 
 #Ileostomy #ulcerativecolitis #stoma #ostomate # #ostomy #nocolonstillrolling #proudtobeanostomate
 #Proctocolectomy
 #igotanewjob

2018-09-18 00:10   56 17

 

I am so excited 😱 Today is my first day of my new job. I'm super nervous too. We drove around 400kms to our nearest city to go shoe shopping and grab some temporary work clothes until my proper uniform arrives. I thought finding pants would be really hard but good ol target came through with these elastic waistbanded pants. They are comfortable around Frankee, not tight or restrictive and I think they are a little snazzy, for me at least!! I have never ever worked diseaseless before. I am excited about that too. It's a whole new experience! I stopped working back in Nov from UC kicking my ass and then sold my business literally while recovering in hospital. So I haven't worked for a while. I hope I go okay! Happy Tuesday Everyone! #Ileostomy #ulcerativecolitis #stoma #ostomate # #ostomy #nocolonstillrolling #proudtobeanostomate #Proctocolectomy #igotanewjob

Had my first bag leak and change at work today 🙈👎🏼 and now we are locked down on a tornado warning... been an interesting day
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So I have been getting terrible pancaking that’s getting underneath my barrier ring and causing some serious leaks lately!! It’s like a giant fiber ball... I’m drinking an overload of liquids and I have eaten most of these foods before too! I’m so confused 🤔 any advice from fellow ostomates would be appreciated!!!
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

2018-09-17 21:18   108 32

 

Had my first bag leak and change at work today 🙈👎🏼 and now we are locked down on a tornado warning... been an interesting day • So I have been getting terrible pancaking that’s getting underneath my barrier ring and causing some serious leaks lately!! It’s like a giant fiber ball... I’m drinking an overload of liquids and I have eaten most of these foods before too! I’m so confused 🤔 any advice from fellow ostomates would be appreciated!!! . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

Oh my lanta... this really made me laugh!! I miss farting every day so have now taken my sneeze game up a notch, if I can't fart, I'll sneeze loudly and proudly! 
Anyhoo.. in the first few months after surgery I had phantom farts all the time. Like I felt like I needed to fart. It's so strange. Now almost 6 months on it's only every few days so not as weird. 
 #phantomfarts #barbiebum #Proctocolectomy #Ileostomy #nocolonstillrolling #stoma #ulcerativecolitis #ibd #ibdwarrior

2018-09-16 10:35   59 15

 

Oh my lanta... this really made me laugh!! I miss farting every day so have now taken my sneeze game up a notch, if I can't fart, I'll sneeze loudly and proudly! Anyhoo.. in the first few months after surgery I had phantom farts all the time. Like I felt like I needed to fart. It's so strange. Now almost 6 months on it's only every few days so not as weird. #phantomfarts #barbiebum #Proctocolectomy #Ileostomy #nocolonstillrolling #stoma #ulcerativecolitis #ibd #ibdwarrior

 #Repost @___rosierose___ with @get_repost
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 #fbf Life IS sooooo doable with a bag.
If you’re contemplating getting it done..just know that it could be the very thing to save you. Of course, everyone’s journey and out come will be different.
But fear not...there’s a whole group of peeps out there that live with these daily. You can too! 💗
 #fbf #flasbackfriday #gwg #girlswithguts #uc #ulcerativecolitis #crohns #crohnsdisease #ibd #inflammatoryboweldisease #autoimmunedisease #proctocolectomy #ostomy #ostomybag #ileostomy #baglife #jpouch #jpouchliving #jpouchlife #lifewithajpouch #livingwithajpouch #nocolonstillrollin

2018-09-15 03:47   101 3

 

#Repost @___rosierose___ with @get_repost ・・・ #fbf Life IS sooooo doable with a bag. If you’re contemplating getting it done..just know that it could be the very thing to save you. Of course, everyone’s journey and out come will be different. But fear not...there’s a whole group of peeps out there that live with these daily. You can too! 💗 #fbf #flasbackfriday #gwg #girlswithguts #uc #ulcerativecolitis #crohns #crohnsdisease #ibd #inflammatoryboweldisease #autoimmunedisease #proctocolectomy #ostomy #ostomybag #ileostomy #baglife #jpouch #jpouchliving #jpouchlife #lifewithajpouch #livingwithajpouch #nocolonstillrollin

 #fbf Life IS sooooo doable with a bag.
If you’re contemplating getting it done..just know that it could be the very thing to save you. Of course, everyone’s journey and outcome will be different.
But fear not...there’s a whole group of peeps out there that live with these daily. You can too! 💗
 #fbf #flasbackfriday #gwg #girlswithguts #uc #ulcerativecolitis #crohns #crohnsdisease #ibd #inflammatoryboweldisease #autoimmunedisease #proctocolectomy #ostomy #ostomybag #ileostomy #baglife #jpouch #jpouchliving #jpouchlife #lifewithajpouch #livingwithajpouch #nocolonstillrollin

2018-09-15 01:26   132 8

 

#fbf Life IS sooooo doable with a bag. If you’re contemplating getting it done..just know that it could be the very thing to save you. Of course, everyone’s journey and outcome will be different. But fear not...there’s a whole group of peeps out there that live with these daily. You can too! 💗 #fbf #flasbackfriday #gwg #girlswithguts #uc #ulcerativecolitis #crohns #crohnsdisease #ibd #inflammatoryboweldisease #autoimmunedisease #proctocolectomy #ostomy #ostomybag #ileostomy #baglife #jpouch #jpouchliving #jpouchlife #lifewithajpouch #livingwithajpouch #nocolonstillrollin

🙌God is good! Today was a great day for a great day! We met with my surgeon today and he said everything looks good and last site is almost healed. After removing my colon, rectum, anus, appendix, tubes and repair of the damage from Crohn’s, I am able to go back to work part time Monday! What a blessing! Thank you Dr Bird, thank you Lord for sending him here and for guiding him in my care. Only reminder of Crohn’s today is this surgery was not a cure, unless God wants it to be, so we will continue testing and monitoring my small intestine for signs of disease since I am off all the big drugs and immunosuppressive medicines. Hey, a bag isn’t such a bad thing when it keeps me well and here! I know this surgery helped to save my life, it wasn’t “unicorns 🦄 and rainbows🌈”, but bless God I am thankful I decided to go ahead with it.🙌 #blessed #godcarriedme #scarsarestories #godisgood #colostomy #proctocolectomy #ibd #crohnswarrior #thankyou #nocolonstillrollin

2018-09-15 00:57   46 0

 

🙌God is good! Today was a great day for a great day! We met with my surgeon today and he said everything looks good and last site is almost healed. After removing my colon, rectum, anus, appendix, tubes and repair of the damage from Crohn’s, I am able to go back to work part time Monday! What a blessing! Thank you Dr Bird, thank you Lord for sending him here and for guiding him in my care. Only reminder of Crohn’s today is this surgery was not a cure, unless God wants it to be, so we will continue testing and monitoring my small intestine for signs of disease since I am off all the big drugs and immunosuppressive medicines. Hey, a bag isn’t such a bad thing when it keeps me well and here! I know this surgery helped to save my life, it wasn’t “unicorns 🦄 and rainbows🌈”, but bless God I am thankful I decided to go ahead with it.🙌 #blessed #godcarriedme #scarsarestories #godisgood #colostomy #proctocolectomy #ibd #crohnswarrior #thankyou #nocolonstillrollin

no regrets 💪🏼
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One year ago today I made the decision to have a permanent ileostomy.. It was very emotional but I was tired of suffering ❤️
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There are still days when I wish I didn’t have a bag... but the ability to enjoy life again definitely outweighs any moments of anger or sadness, so I’d say 99.9% smiles 🙃
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After all, I’ve never been normal 💩
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

2018-09-13 03:53   112 3

 

no regrets 💪🏼 • One year ago today I made the decision to have a permanent ileostomy.. It was very emotional but I was tired of suffering ❤️ • There are still days when I wish I didn’t have a bag... but the ability to enjoy life again definitely outweighs any moments of anger or sadness, so I’d say 99.9% smiles 🙃 • After all, I’ve never been normal 💩 . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

This time last year IF I went out to dinner I was wearing a diaper.. constant pain and anxiety and I really was just constantly focused on wanting to be home...this year I’m living my best life ❤️ it’s going to be a good birthday weekend ❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

2018-09-07 02:53   230 17

 

This time last year IF I went out to dinner I was wearing a diaper.. constant pain and anxiety and I really was just constantly focused on wanting to be home...this year I’m living my best life ❤️ it’s going to be a good birthday weekend ❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

Oh Miss Luna. She gets so worried when I do my bag changes. She is always quite close by when I do them. Maybe she senses my weirdness with bag changes 🤷‍♀️ The more I do changes the better I'm feeling, I think in the first few months when leaking and infected skin were always an issue it set of a type of bag change anxiety. So it's nice to know I have my little mate close by for some cute support and everything is settling down wonderfully. 
 #lunathechihuahuaxpug
 #sheisachug 
 #Ileostomy #Proctocolectomy #ibdwarrior #stoma #nocolonstillrolling

2018-09-06 22:47   69 3

 

Oh Miss Luna. She gets so worried when I do my bag changes. She is always quite close by when I do them. Maybe she senses my weirdness with bag changes 🤷‍♀️ The more I do changes the better I'm feeling, I think in the first few months when leaking and infected skin were always an issue it set of a type of bag change anxiety. So it's nice to know I have my little mate close by for some cute support and everything is settling down wonderfully. #lunathechihuahuaxpug #sheisachug #Ileostomy #Proctocolectomy #ibdwarrior #stoma #nocolonstillrolling

Geeze this made me giggle... know how many times I nearly shit my pants walking into a colonoscopy... #memories 😂.. Better yet.. trying not to shit my pants while waiting for my proctocolectomy... It was bitter sweet really. My last night with " working" bowels and it was on a hospital toilet all night from the colon prep. Good times good times. 😂😜😂 Creeping up to my 6 month stomaversary. I'm not sure what I'm going to do just yet to celebrate but it will definetly involve reflection, being grateful and enjoying what this new chance at life has given me. 🖤🖤
 #Proctocolectomy #stoma #Ileostomy #ulcerativecolitis #nocolonstillrolling #ibdwarrior

2018-09-06 12:27   62 14

 

Geeze this made me giggle... know how many times I nearly shit my pants walking into a colonoscopy... #memories 😂.. Better yet.. trying not to shit my pants while waiting for my proctocolectomy... It was bitter sweet really. My last night with " working" bowels and it was on a hospital toilet all night from the colon prep. Good times good times. 😂😜😂 Creeping up to my 6 month stomaversary. I'm not sure what I'm going to do just yet to celebrate but it will definetly involve reflection, being grateful and enjoying what this new chance at life has given me. 🖤🖤 #Proctocolectomy #stoma #Ileostomy #ulcerativecolitis #nocolonstillrolling #ibdwarrior

Day 6 in the big brother house. Today has been a good day. I got some sleep. I got out of bed. I’ve had visitors & walked to get a coffee. I’ve lost 4kg of mostly fluid since the day after the op. I’m on top of the pain relief. And I’ve got an upgrade & have my own en suite. Must be a good patient. So it’s good. Enjoying it as tomorrow, anything could happen. Thankful. Tentatively thankful. 😊
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 #crohnsandcolitisuk #crohnsandcolitis #ibd #ibdawareness #proctocolectomy #nocolonstillrollin #bowelvoyage #recovery #cbt #mymentalhealth #mymotherhood #mymotherhoodjourney

2018-09-05 13:57   77 8

 

Day 6 in the big brother house. Today has been a good day. I got some sleep. I got out of bed. I’ve had visitors & walked to get a coffee. I’ve lost 4kg of mostly fluid since the day after the op. I’m on top of the pain relief. And I’ve got an upgrade & have my own en suite. Must be a good patient. So it’s good. Enjoying it as tomorrow, anything could happen. Thankful. Tentatively thankful. 😊 . . . #crohnsandcolitisuk #crohnsandcolitis #ibd #ibdawareness #proctocolectomy #nocolonstillrollin #bowelvoyage #recovery #cbt #mymentalhealth #mymotherhood #mymotherhoodjourney

2 Corinthians 1:4 “Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort where with we ourselves are comforted of God.” I have to thank my surgeon for being the catalyst of this verse for me years ago. When we met and it was becoming more clear that I could be as stubborn as I wanted to be, but that the first surgery, the diversion ileostomy, was clearly in my future, he put this verse in motion. I remember him giving me a phone number, a photo, a name and email address of a young woman whom he had performed this same surgery on in Texas before moving here. I didn’t call or email right away, instead I stubbornly drove around downtown Asheville, ugly crying and after 39 years, learning my way around some side streets...then a put on my big girl panties and emailed her. WOW! What a wealth of information, encouragement, understanding and Christian love I received. Also, a wonderful friend. Still to this day, we are friends, talk, share stories about our health and family. We understand each other on a level even the doctor cannot understand. All these words of mine lead to this, this verse is true. I have lived the receiving end of it, and now I am happy that my surgeon uses me to help people who are faced with this surgery, expected or not. That is an honor. The Lord allows us to go through things, not to hurt us, but to make us more like Him, to look to Him and help each other through life’s journeys, some scary or isolating. My mess, His message. 
 #godisgood #colostomy #proctocolectomy #nocolonstillrollin #jesus #crohnswarrior #crohns

2018-09-05 01:41   30 1

 

2 Corinthians 1:4 “Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort where with we ourselves are comforted of God.” I have to thank my surgeon for being the catalyst of this verse for me years ago. When we met and it was becoming more clear that I could be as stubborn as I wanted to be, but that the first surgery, the diversion ileostomy, was clearly in my future, he put this verse in motion. I remember him giving me a phone number, a photo, a name and email address of a young woman whom he had performed this same surgery on in Texas before moving here. I didn’t call or email right away, instead I stubbornly drove around downtown Asheville, ugly crying and after 39 years, learning my way around some side streets...then a put on my big girl panties and emailed her. WOW! What a wealth of information, encouragement, understanding and Christian love I received. Also, a wonderful friend. Still to this day, we are friends, talk, share stories about our health and family. We understand each other on a level even the doctor cannot understand. All these words of mine lead to this, this verse is true. I have lived the receiving end of it, and now I am happy that my surgeon uses me to help people who are faced with this surgery, expected or not. That is an honor. The Lord allows us to go through things, not to hurt us, but to make us more like Him, to look to Him and help each other through life’s journeys, some scary or isolating. My mess, His message. #godisgood #colostomy #proctocolectomy #nocolonstillrollin #jesus #crohnswarrior #crohns

Missing my crew right now. That’s the hardest thing about a condition like this: what others have to do for you. The sacrifices they make for you and because of you. But these guys (particularly the big one) are my rock and my reasons to keep going. I cannot wait to get back to them. .
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 #soppypost #myfamily #myrock #ibd #ibdwarrior #autoimmunedisease #chronicillness #spoonie #crohnsandcolitis #crohnsandcolitisuk #chronicparenting #nocolonstillrollin #proctocolectomy #bowelvoyage

2018-09-04 21:39   54 1

 

Missing my crew right now. That’s the hardest thing about a condition like this: what others have to do for you. The sacrifices they make for you and because of you. But these guys (particularly the big one) are my rock and my reasons to keep going. I cannot wait to get back to them. . . . #soppypost #myfamily #myrock #ibd #ibdwarrior #autoimmunedisease #chronicillness #spoonie #crohnsandcolitis #crohnsandcolitisuk #chronicparenting #nocolonstillrollin #proctocolectomy #bowelvoyage

Day 5 in the big brother house. Can confirm I’ve showered (without flooding the ward this time 👍🏼) but now back on my bed as I. Am. Shattered! BUT kind words only. I’ve come a long way in 5 days. My cosy sock game is high & I’m going to say kind things to myself to try to stave off my anxious thoughts. .
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 #fromwhereistand #fromwhereilie #longtermpatient #socks #ibd #crohnsdisease #crohnsandcolitis #ibdwarrior #proctocolectomy #nocolonstillrollin #mymotherhoodjourney #mymotherhood #auntoimmune #autoimmunedisease #spoonie

2018-09-04 10:49   104 16

 

Day 5 in the big brother house. Can confirm I’ve showered (without flooding the ward this time 👍🏼) but now back on my bed as I. Am. Shattered! BUT kind words only. I’ve come a long way in 5 days. My cosy sock game is high & I’m going to say kind things to myself to try to stave off my anxious thoughts. . . #fromwhereistand #fromwhereilie #longtermpatient #socks #ibd #crohnsdisease #crohnsandcolitis #ibdwarrior #proctocolectomy #nocolonstillrollin #mymotherhoodjourney #mymotherhood #auntoimmune #autoimmunedisease #spoonie

Day 4 post op. And was NOT expecting the pain of trapped wind. Fluff my llama. I could be the headline act at the Bristol Balloon Fiesta! Apparently it’s a common side effect post surgery partly caused by the air they pump in to give them space, partly due to the rummaging around. I’m sipping peppermint oil in water, peppermint tea and eating little and often. Any more suggestions greatly appreciated!
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 #extremeweatherwarning #expectstrongwinds #postop #proctocolectomy #sideeffects #ibdwarrior #ibd #crohnsdisease #chronsandcolitisuk #mymotherhood #mymotherhoodjourney #nocolonstillrollin #bowelvoyage

2018-09-03 08:51   29 8

 

Day 4 post op. And was NOT expecting the pain of trapped wind. Fluff my llama. I could be the headline act at the Bristol Balloon Fiesta! Apparently it’s a common side effect post surgery partly caused by the air they pump in to give them space, partly due to the rummaging around. I’m sipping peppermint oil in water, peppermint tea and eating little and often. Any more suggestions greatly appreciated! . . #extremeweatherwarning #expectstrongwinds #postop #proctocolectomy #sideeffects #ibdwarrior #ibd #crohnsdisease #chronsandcolitisuk #mymotherhood #mymotherhoodjourney #nocolonstillrollin #bowelvoyage

I copied this from @ostomydiaries and I thought it profound enough to share, well, frankly because not all of you follow The Ostomy Diaries. Thank you to them for this post. The quote is so true, it takes the exact same amount of work, thought and time to look at a situation, circumstance or day and decide to be miserable or strong. It might be a little easier to lean toward miserable if we are honest, because I think that is what Satan would have us do. He prefers to have us feel miserable or hopeless...BUT GOD makes us strong. Our faith, our mindset and our soul can be strong in Him, and in turn STRONG in any circumstance. When we have the Lord, and put on the armor of God, we are the strongest we can ever be here in this life. Let’s choose strong. You will be amazed at how your outlook on the day, whatever it holds, will be changed. Nothing you face in any day, minute, even down to the second is a surprise to the Lord, and nothing will be too much for Him to help us bear. Nothing will happen tomorrow that God cannot help us handle, He is already there.  #choosestrong #godsgotthis #butgod #faith #ostomydiaries #colostomy #crohnswarrior #proctocolectomy

2018-09-03 03:54   24 2

 

I copied this from @ostomydiaries and I thought it profound enough to share, well, frankly because not all of you follow The Ostomy Diaries. Thank you to them for this post. The quote is so true, it takes the exact same amount of work, thought and time to look at a situation, circumstance or day and decide to be miserable or strong. It might be a little easier to lean toward miserable if we are honest, because I think that is what Satan would have us do. He prefers to have us feel miserable or hopeless...BUT GOD makes us strong. Our faith, our mindset and our soul can be strong in Him, and in turn STRONG in any circumstance. When we have the Lord, and put on the armor of God, we are the strongest we can ever be here in this life. Let’s choose strong. You will be amazed at how your outlook on the day, whatever it holds, will be changed. Nothing you face in any day, minute, even down to the second is a surprise to the Lord, and nothing will be too much for Him to help us bear. Nothing will happen tomorrow that God cannot help us handle, He is already there. #choosestrong #godsgotthis #butgod #faith #ostomydiaries #colostomy #crohnswarrior #proctocolectomy

⛪️Today was a day I have been looking forward to, I was able to go to Sunday school today. It was the first time to go since before my surgery. I was only out an hour, I didn’t get to stay for service, but it took a two hour nap to recover this afternoon. It did me so much good mentally to be back in church! It was so good to be back with my church family! Slowly getting back to life! ⛪️ #colectomy #proctocolectomy #godsgotthis #backtochurch #churchfamily #crohns #crohnswarrior

2018-09-03 02:25   39 7

 

⛪️Today was a day I have been looking forward to, I was able to go to Sunday school today. It was the first time to go since before my surgery. I was only out an hour, I didn’t get to stay for service, but it took a two hour nap to recover this afternoon. It did me so much good mentally to be back in church! It was so good to be back with my church family! Slowly getting back to life! ⛪️ #colectomy #proctocolectomy #godsgotthis #backtochurch #churchfamily #crohns #crohnswarrior

What bag?? Happy weekend!
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It is HOT in Virginia and today’s shorts are brought to you by Urban Outfitters! They hid my filling bag as we ran errands after brunch 😏
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Feeling very blessed to be able to eat things like this again.. first time eating kale since surgery! I did only take a few bites of it though and indulged in all the other yummy stuff!
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Currently napping as a summer shower goes by.. hopefully will cool things down so we can take our pup out for her weekend walk ❤️
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 #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

2018-09-01 19:08   158 2

 

What bag Happy weekend! • It is HOT in Virginia and today’s shorts are brought to you by Urban Outfitters! They hid my filling bag as we ran errands after brunch 😏 • Feeling very blessed to be able to eat things like this again.. first time eating kale since surgery! I did only take a few bites of it though and indulged in all the other yummy stuff! • Currently napping as a summer shower goes by.. hopefully will cool things down so we can take our pup out for her weekend walk ❤️ . . . . . #ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #nocolonstillrollin

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