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Images about: #spinabifida (122904 posts)

🏝️ Jesus is seen throughout the Gospel to elevate persons who were often considered of little value to society during his lifetime, including children, and sees them as equally valuable to the kingdom of God! 🏝️ What an eternal example He sets for us!! #autism #ADHD #cerebralpalsy #downssyndrome #depression #epilepsy #fragilex #specialneeds #TBI #spinabifida #autismawareness #autismspeaks #specialneedsparents #kidsministry #studentministry #specialneedsministry #sundaymorning #inclusion #pastor #church #ministry #disabilities #occupationaltherapy #OT

2019-06-08 17:18   1 0

 

🏝️ Jesus is seen throughout the Gospel to elevate persons who were often considered of little value to society during his lifetime, including children, and sees them as equally valuable to the kingdom of God! 🏝️ What an eternal example He sets for us!! #autism #ADHD #cerebralpalsy #downssyndrome #depression #epilepsy #fragilex #specialneeds #TBI #spinabifida #autismawareness #autismspeaks #specialneedsparents #kidsministry #studentministry #specialneedsministry #sundaymorning #inclusion #pastor #church #ministry #disabilities #occupationaltherapy #OT

ما تشوفوا شَّر
برنامج طبي يقدم محتوى خاص بالعلاج الفيزيائي يقدمه الأخصائي "علي حسن" الحاصل على درجة الماجستير في العلاج الفيزيائي. يُبث على مواقع التواصل الاجتماعي يوم الأربعاء من كل اسبوع الساعة الرابعة عصراً.
 #Physicaltherapy #pain #fatigue #disc #rheumatism #spondylitis #obesity #diabetics #amphetamines #paralysis #spinalcordinjury #cerebralpalsy #Downsyndrome #spinabifida #neck and #back #pain
 #Shoulder #elbow #wrist #fingers #hip #knee #ankle #yoga #ampute #Frozenshoulder #Downsyndrome
 #Physioterapist #Physical_therapy
 #اكسبلور

2019-06-08 16:32   43 1

 

ما تشوفوا شَّر برنامج طبي يقدم محتوى خاص بالعلاج الفيزيائي يقدمه الأخصائي "علي حسن" الحاصل على درجة الماجستير في العلاج الفيزيائي. يُبث على مواقع التواصل الاجتماعي يوم الأربعاء من كل اسبوع الساعة الرابعة عصراً. #Physicaltherapy #pain #fatigue #disc #rheumatism #spondylitis #obesity #diabetics #amphetamines #paralysis #spinalcordinjury #cerebralpalsy #Downsyndrome #spinabifida #neck and #back #pain #Shoulder #elbow #wrist #fingers #hip #knee #ankle #yoga #ampute #Frozenshoulder #Downsyndrome #Physioterapist #Physical_therapy #اكسبلور

My husband + I just got back last week from 2 whole weeks off! It was wonderful. We explored parts of the east coast + stuffed our faces. 🐽 I realized I never share too much of my {personal} life on here! My life isn’t that interesting but it sure is full of love + blessings like this little guy. 💕 My nephew with Spina Bifida turned 1 a little over a month ago + we celebrated with cake + family.

As we were singing to him he looked so happy + full of life + I couldn’t help but tear up knowing he beat the odds. Against all the different doctors that told us he was going to die in my sisters womb (I’ll save you the gorie details on how they said he would die) + should be aborted. Against the world who says if your child isn’t perfect, abort it. Against the multiple times after he was born that he could have died but Christ brought him back to life. I mean seriously? How could you not cry knowing that + seeing this perfect 1 year old boy smiling, healthy, + fighting the odds? I’d say he’s a champion if I’ve ever seen one. .
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. #SpinaBifida #FamilyLife 
 #OCStylist #SavedByGrace #OCColorist  #OrangeCountyHairstylist  #OrangeCountySalon  #OCBalayage #OrangeCountyHair  #OCBlogger #OcMoms #OCblog #LaderaRanch #BekahHair #BalayageSpecialist #OrangeCountyColorist #MissionViejo #MissionViejoSalon #LagunaBeach #LifestylePost

2019-06-08 16:12   35 8

 

My husband + I just got back last week from 2 whole weeks off! It was wonderful. We explored parts of the east coast + stuffed our faces. 🐽 I realized I never share too much of my {personal} life on here! My life isn’t that interesting but it sure is full of love + blessings like this little guy. 💕 My nephew with Spina Bifida turned 1 a little over a month ago + we celebrated with cake + family. As we were singing to him he looked so happy + full of life + I couldn’t help but tear up knowing he beat the odds. Against all the different doctors that told us he was going to die in my sisters womb (I’ll save you the gorie details on how they said he would die) + should be aborted. Against the world who says if your child isn’t perfect, abort it. Against the multiple times after he was born that he could have died but Christ brought him back to life. I mean seriously How could you not cry knowing that + seeing this perfect 1 year old boy smiling, healthy, + fighting the odds I’d say he’s a champion if I’ve ever seen one. . . . . . . . #SpinaBifida #FamilyLife #OCStylist #SavedByGrace #OCColorist #OrangeCountyHairstylist #OrangeCountySalon #OCBalayage #OrangeCountyHair #OCBlogger #OcMoms #OCblog #LaderaRanch #BekahHair #BalayageSpecialist #OrangeCountyColorist #MissionViejo #MissionViejoSalon #LagunaBeach #LifestylePost

In honor of Prince. He would have been 61. A great talent gone far too soon. June 7, 1958-April 21, 2016. #believe #dream #inclusive #adaptiveskirts #adaptiveclothing #adaptive  #losangeles  #inclusive #believeinyourself #losangeles  #nyc #milan #brisbane #melbourne #edinburgh #wheelchair #wheelchairfashion #wheelchairkids #sanfrancisco #quadraplegic #paraplegic #spinabifida #spinalcordinjury #inclusivefashion #cerebralpalsy #rock #spoonie #rocklegend #rockandroll #fashionforallabilities #prince #musicalinstruments

2019-06-08 16:06   16 3

 
Im trying to sun bathe ☀️ on top of the cooler but she’s raining on my parade 🙁😕☹️ . . . . . . #agirlandherdog #momothepiglet . . . .  #spinabifida  #spinabifidababy  #spinabifidastrong #spinabifidaboy #spinabifidabully . . . . 🌈🐾. . . . .  #allaboutmilo #pulmonicstenosissucks 💔 #congenitalheartdefectsucks 💔 . . . .  #englishbulldog #bullyinstafeature #bullyinstagram #bulldogsofinstagram #bulldoglove #bulldoglife #bulldoglovers #bulldognation  #bulldogram  #bulldogfamily #bulldogs  #bulldog_lovers #baggybulldogs #theworldofbullies #pawtycrewpals

2019-06-08 15:40   16 2

 
Tomorrow is the day, rain or shine. Today is the last day to jump on board, whether in person or through financial support. Sean is so excited to walk to raise awareness for #SpinaBifida here in East Tennessee. Will you be a part of his journey? Follow the link in my bio to be a part.
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 #WalkNRollForSB #SpinaBifida #WalkNRollChattanooga @spinabifidaassn

2019-06-08 15:33   0 0

 

Tomorrow is the day, rain or shine. Today is the last day to jump on board, whether in person or through financial support. Sean is so excited to walk to raise awareness for #SpinaBifida here in East Tennessee. Will you be a part of his journey Follow the link in my bio to be a part. - - - - - #WalkNRollForSB #SpinaBifida #WalkNRollChattanooga @spinabifidaassn

Happy Saturday! 
Tackle your challenges today as you would climbing a monstrous slope such as this. 
One step at a time. One thought process at a time.

Don't rush big decisions, but also be prepared to step out of your comfort zones in an abrupt manner in order to grow exponentially in the direction you seek. It's the only way we can Rise Above. 
The only way we grow as humans is by observing, learning & experiencing new challenges to adapt to the environment around us. 
So take a deep breath, throw your shoulders back with confidence & conquer your weekend!

2019-06-08 15:18   17 1

 

Happy Saturday! Tackle your challenges today as you would climbing a monstrous slope such as this. One step at a time. One thought process at a time. Don't rush big decisions, but also be prepared to step out of your comfort zones in an abrupt manner in order to grow exponentially in the direction you seek. It's the only way we can Rise Above. The only way we grow as humans is by observing, learning & experiencing new challenges to adapt to the environment around us. So take a deep breath, throw your shoulders back with confidence & conquer your weekend!

The art of love..
 #embracediversity
 #diversityandinclusion
 #datingwithdisability
 #wheelchairdating
 #disabledsingles
 #disabilitydating
 #sexanddisability
 #disabilitysupport
 #wheelchairlife
 #disabilitypride
 #disabled
 #disability
 #disabilityawareness
 #motivationalquotes
 #nolimits
 #bodypositive
 #mentalhealth
 #anxiety
 #bodypositivity
 #dating4disabled
 #spinalcordinjury
 #cerebralpalsy
 #autism
 #autism awareness
 #spinabifida

2019-06-08 14:52   13 0

 

The art of love.. #embracediversity #diversityandinclusion #datingwithdisability #wheelchairdating #disabledsingles #disabilitydating #sexanddisability #disabilitysupport #wheelchairlife #disabilitypride #disabled #disability #disabilityawareness #motivationalquotes #nolimits #bodypositive #mentalhealth #anxiety #bodypositivity #dating4disabled #spinalcordinjury #cerebralpalsy #autism #autism awareness #spinabifida

Spina bifida nedir?
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Omurilik ve üzerindeki cilt dokusunun açık kalmasına spina bifida diyoruz. Bebeklerde kalp anomalilerinden sonra en sık görülen anormallik.
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Gebelik öncesi ve erken dönemde folik asit kullanılması bebekte spina bifida ile karşılaşma ihtimalini azaltıyor.
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Videoda ayrıntılı ultrason ile teşhisini koyduğumuz örnekte olduğu gibi, dikkatli bir ultrason muayenesiyle spina bifida genellikle gözden kaçmayan bir anomali. Zamanı geldiğinde ayrıntılı ultrason muayenenizi ihmal etmemeniz iyi olur.
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Ayrıca üçlü test yapıldıysa, AFP değerinin yüksekliği spina bifida açısından uyarıcı. Omuriliğin açık kalması ve bebeğin belinde açıklık oluşması, beynin kendine ait dolaşımını bozuyor ve beyin dokusu şişiyor (ventrikülomegali). Ultrasonda limon belirtisi dediğimiz bir kafatası şekli oluşuyor.
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Bu bebeklerde eşlik eden genetik hastalık ve diğer organ anomalileri riski artıyor. Ayrıca zeka geriliği, dışkı ve idrarını tutamama, yürüyememe gibi sorunlarla karşılaşılıyor. .
Bu nedenle gebelik sonlandırma seçeneğini öneriyoruz ve çoğu aile bu seçeneği kullanıyor. Gebeliğini devam ettirmek isteyen aileleri ise, doğumdan sonra bebeğin belindeki açıklığın kapatılması ve şant ameliyatları başta olmak üzere bir dizi ameliyat ve girişim bekliyor.
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 #dryavuzsimsek #spinabifida #jinekolog #jinekoloji #kadındoğumuzmanı #kadındoğum #kadındoğumdoktoru #kadındoğumankara #doğum #yenidoğan #hamile #hamileyiz #hamilelik #hamileanneler #gebe #gebeyiz

2019-06-08 14:33   24 0

 

Spina bifida nedir . Omurilik ve üzerindeki cilt dokusunun açık kalmasına spina bifida diyoruz. Bebeklerde kalp anomalilerinden sonra en sık görülen anormallik. . . Gebelik öncesi ve erken dönemde folik asit kullanılması bebekte spina bifida ile karşılaşma ihtimalini azaltıyor. . . Videoda ayrıntılı ultrason ile teşhisini koyduğumuz örnekte olduğu gibi, dikkatli bir ultrason muayenesiyle spina bifida genellikle gözden kaçmayan bir anomali. Zamanı geldiğinde ayrıntılı ultrason muayenenizi ihmal etmemeniz iyi olur. . Ayrıca üçlü test yapıldıysa, AFP değerinin yüksekliği spina bifida açısından uyarıcı. Omuriliğin açık kalması ve bebeğin belinde açıklık oluşması, beynin kendine ait dolaşımını bozuyor ve beyin dokusu şişiyor (ventrikülomegali). Ultrasonda limon belirtisi dediğimiz bir kafatası şekli oluşuyor. . Bu bebeklerde eşlik eden genetik hastalık ve diğer organ anomalileri riski artıyor. Ayrıca zeka geriliği, dışkı ve idrarını tutamama, yürüyememe gibi sorunlarla karşılaşılıyor. . Bu nedenle gebelik sonlandırma seçeneğini öneriyoruz ve çoğu aile bu seçeneği kullanıyor. Gebeliğini devam ettirmek isteyen aileleri ise, doğumdan sonra bebeğin belindeki açıklığın kapatılması ve şant ameliyatları başta olmak üzere bir dizi ameliyat ve girişim bekliyor. . #dryavuzsimsek #spinabifida #jinekolog #jinekoloji #kadındoğumuzmanı #kadındoğum #kadındoğumdoktoru #kadındoğumankara #doğum #yenidoğan #hamile #hamileyiz #hamilelik #hamileanneler #gebe #gebeyiz

Crystal Ortiz shares how she chose life for her daughter when she was told to abort. Read more at christian.org.uk

 #ChooseLife #spinabifida #hope #baby

2019-06-08 14:05   31 0

 

Crystal Ortiz shares how she chose life for her daughter when she was told to abort. Read more at christian.org.uk #ChooseLife #spinabifida #hope #baby

My poor guy has been going through it the last couple weeks 😢 Seems to be having frequent headaches/pain. So far no answers. Waiting on referrals to the migraine clinic and an oral maxillary Dr.

2019-06-08 13:19   12 1

 

My poor guy has been going through it the last couple weeks 😢 Seems to be having frequent headaches/pain. So far no answers. Waiting on referrals to the migraine clinic and an oral maxillary Dr.

Мммм.. выходные.. А не объехать ли мне Кемеровскую область за сутки? Да легко! Красноярск - Анжеро-Судженск - Кемерово - Ленинск-Кузнецкий - Кемерово - Тайга - Красноярск. И с сестрой повидались, и поработала. Ибо "Бешеные панды умирают стоя" или "Для кого-то и 100км не крюк" ;)
 #фондСделайШаг #СделайШаг #любимаяработа #реабилитологкрасноярск #spinabifida

2019-06-08 13:11   17 0

 

Мммм.. выходные.. А не объехать ли мне Кемеровскую область за сутки Да легко! Красноярск - Анжеро-Судженск - Кемерово - Ленинск-Кузнецкий - Кемерово - Тайга - Красноярск. И с сестрой повидались, и поработала. Ибо "Бешеные панды умирают стоя" или "Для кого-то и 100км не крюк" ;) #фондСделайШаг #СделайШаг #любимаяработа #реабилитологкрасноярск #spinabifida

By end of this November, it's going to be two years since my re-tethering of cord surgery. Initially, when friends and acquaintances asked me how I was doing, I used to say I am in recovery. The word meant hope for me. It meant that with hard work I could be up on my feet, walking without additional mobility aids. 
Honestly, I have never wanted anything so badly. I have never worked so hard for anything in my life. I who had an on and off relationship with physiotherapy have given therapy my 100%. Slowly it dawned on me that Spinabifida is a step ahead of me and what it has done or still does is something that's very difficult to wrap my head around. 
I use the word recovery in past tense because I feel like its been a long time since the surgery and to still say that I am in recovery feels unreal. 
I am going to try and continue my therapy because everyday my body shows that it can still obey my command, still move in other ways. And for that I am grateful.

Spine has wonderful reparative qualities, so I've read. Maybe someday I will walk without my walker. Maybe not. Walker or Wheelchair. It's all fine. And that's my way of being a step ahead of Spinabifida.

As far as my spine is concerned it will always be under recovery mode. And my hope too.

Ain't no BODY perfect in this world!

2019-06-08 12:46   33 3

 

By end of this November, it's going to be two years since my re-tethering of cord surgery. Initially, when friends and acquaintances asked me how I was doing, I used to say I am in recovery. The word meant hope for me. It meant that with hard work I could be up on my feet, walking without additional mobility aids. Honestly, I have never wanted anything so badly. I have never worked so hard for anything in my life. I who had an on and off relationship with physiotherapy have given therapy my 100%. Slowly it dawned on me that Spinabifida is a step ahead of me and what it has done or still does is something that's very difficult to wrap my head around. I use the word recovery in past tense because I feel like its been a long time since the surgery and to still say that I am in recovery feels unreal. I am going to try and continue my therapy because everyday my body shows that it can still obey my command, still move in other ways. And for that I am grateful. Spine has wonderful reparative qualities, so I've read. Maybe someday I will walk without my walker. Maybe not. Walker or Wheelchair. It's all fine. And that's my way of being a step ahead of Spinabifida. As far as my spine is concerned it will always be under recovery mode. And my hope too. Ain't no BODY perfect in this world!

My #spinabifida warrior 👊👏❤

2019-06-08 12:28   9 0

 

My #spinabifida warrior 👊👏❤

Three days and I get back to what I love! Find something you feel as though your soul craves. For me, it's all aspects of helping others and a love for medicine.

Reposted from @t_malone3 - ❤️Feel Good Friday’s❤️ My little girls last day in the hospital. Yay! She gets to go home. Her mom has a heart of gold 🧡 @johannaaguirre10 My little lady had a rough start but with faith and excellent care we are on the right path. She is one happy little lady. This smile will melt your heart ❤️ ▫️
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▫️ #spinabifida #hydrocephalus #cancersucks #cancer #brain #braincancer #cancerwarrior #physicianassistant #neurosurgery #neurology  #girls #nurse #doctor #cancer  #patientadvocate #lipsync #patient #instagood #dance #MrNeuro #nicu #aapa #picu #neurology #pacunurse #dance #dancer #melanin @badbunnypr @elalfaeljefe

2019-06-08 10:49   30 1

 

Three days and I get back to what I love! Find something you feel as though your soul craves. For me, it's all aspects of helping others and a love for medicine. Reposted from @t_malone3 - ❤️Feel Good Friday’s❤️ My little girls last day in the hospital. Yay! She gets to go home. Her mom has a heart of gold 🧡 @johannaaguirre10 My little lady had a rough start but with faith and excellent care we are on the right path. She is one happy little lady. This smile will melt your heart ❤️ ▫️ ▫️ ▫️ ▫️ ▫️ ▫️ #spinabifida #hydrocephalus #cancersucks #cancer #brain #braincancer #cancerwarrior #physicianassistant #neurosurgery #neurology #girls #nurse #doctor #cancer #patientadvocate #lipsync #patient #instagood #dance #MrNeuro #nicu #aapa #picu #neurology #pacunurse #dance #dancer #melanin @badbunnypr @elalfaeljefe

YES eindelijk! Na telefoontje van de dierenarts was ik zo blij dat deze ineens gelukt was 😂🤷🏻‍♀️
Zelda is nog altijd niet hersteld. Zoals ik in mijn stories vertelde, zijn de komende dagen nu heel cruciaal. Ze was te nerveus om daar te blijven en dan kreeg ze teveel stress wat dus ook niet goed is voor haar herstel. Ik ben superblij dat mijn meisje terug bij me is 😍
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 #bouldering #boulder #girlswhoclimb #bodyworkout #bodyweight #climbgirl #bouldergirl #fitgirl #calisthenicsworkout #yogabeginner #scoliose #spinabifida #spinabifidaocculta #trigeminalneuralgiawarrior #nervepain #mentalhealth #health #recovery #progress #fitdutchies #belgianfitties

2019-06-08 08:14   64 6

 

YES eindelijk! Na telefoontje van de dierenarts was ik zo blij dat deze ineens gelukt was 😂🤷🏻‍♀️ Zelda is nog altijd niet hersteld. Zoals ik in mijn stories vertelde, zijn de komende dagen nu heel cruciaal. Ze was te nerveus om daar te blijven en dan kreeg ze teveel stress wat dus ook niet goed is voor haar herstel. Ik ben superblij dat mijn meisje terug bij me is 😍 . . . . #bouldering #boulder #girlswhoclimb #bodyworkout #bodyweight #climbgirl #bouldergirl #fitgirl #calisthenicsworkout #yogabeginner #scoliose #spinabifida #spinabifidaocculta #trigeminalneuralgiawarrior #nervepain #mentalhealth #health #recovery #progress #fitdutchies #belgianfitties

What an amazing night tonight hanging out with the Portuguese kids in Texas! 
Going to be an amazing show tomorrow night! .
 #inspiration #inspire #motivation #motivate #thrive #portuguese #cantstopwontstop #energy #thrivepatch #inspire #impact #portuguesa #eusouportuguesa❤ #californialove #bodytransformation #helpothers #motivationalquotes #spinabifida #spinalavmsurvivor #ms #spinabifidaawareness #fortworth
 #happiness #confidence #me #health #mystyle #mylife #smile #love #smile #me #theportuguesekids

2019-06-08 07:00   26 1

 

What an amazing night tonight hanging out with the Portuguese kids in Texas! Going to be an amazing show tomorrow night! . #inspiration #inspire #motivation #motivate #thrive #portuguese #cantstopwontstop #energy #thrivepatch #inspire #impact #portuguesa #eusouportuguesa❤ #californialove #bodytransformation #helpothers #motivationalquotes #spinabifida #spinalavmsurvivor #ms #spinabifidaawareness #fortworth #happiness #confidence #me #health #mystyle #mylife #smile #love #smile #me #theportuguesekids

This afternoon he had just had a Nissen procedure, abdominal hernia removal, & circumcision all of the same time. He was diagnosed with GERD (gastroesophageal reflux disease meaning horrible vomiting due to acid reflux). They simply wrapped the bottom of the esophagus around the top of the stomach to try to reduce cuz chances of aspirating again and to slow down the gastroesophageal reflux. This was maybe a week or two after his open heart and they used the line at the bottom of his open-heart continue down to his belly button and remove the hernia through his belly button where the gauze is placed. And they circumcised him, the next step was supposed to be for cryptorchidism, descended testicles-meaning his testicles were in his bladder and haven't dropped into the scrotum. He was on oxygen regularly but after his open heart they changed him to a high-flow oxygen tube called a bubble CPAP machine. His oxygen was dropping even though he was on from normal to high flow Regular oxygen so they try the CPAP which is a stronger flow of oxygen forcing him to take it in as we're regular oxygen he just breathes it into his lungs. he was surely a fighter and he never gave up despite all the pain I wanted the doctors to put them through so that I could be greedy and keep him here longer with me. I felt so greedy signing all of the surgery and Anesthesia Consents knowing the pain but it was the only way to keep them alive. These were life saving surgeries being he had fluid in and around his heart and lungs already being treated by 3 different diuretics. Having him endure everything that he has gone through, I'm proud of the 4mo he faught! I've never met such a dependent baby so incredibly strong! #KhalonStrong •
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PM me which hashtag to advocate about next! It's only half of what he was diagnosed with!
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 #criduchatsyndrome #corneliadelangesyndrome #hydrocephalus #spinabifida #dandywalkermalformation #atrialseptaldefect #ventricularseptaldefect #chd #heartfailure #baby #babyloss #hypoxia #hypotonia #opticalnervehypoplasia #mentalretardation #autism #myelodysplasiasyndrome #bloodtransfusion #openheart #openheartsurgery #shortstature #clubfoot #polydactyly #webbedneck

2019-06-08 06:16   25 7

 

This afternoon he had just had a Nissen procedure, abdominal hernia removal, & circumcision all of the same time. He was diagnosed with GERD (gastroesophageal reflux disease meaning horrible vomiting due to acid reflux). They simply wrapped the bottom of the esophagus around the top of the stomach to try to reduce cuz chances of aspirating again and to slow down the gastroesophageal reflux. This was maybe a week or two after his open heart and they used the line at the bottom of his open-heart continue down to his belly button and remove the hernia through his belly button where the gauze is placed. And they circumcised him, the next step was supposed to be for cryptorchidism, descended testicles-meaning his testicles were in his bladder and haven't dropped into the scrotum. He was on oxygen regularly but after his open heart they changed him to a high-flow oxygen tube called a bubble CPAP machine. His oxygen was dropping even though he was on from normal to high flow Regular oxygen so they try the CPAP which is a stronger flow of oxygen forcing him to take it in as we're regular oxygen he just breathes it into his lungs. he was surely a fighter and he never gave up despite all the pain I wanted the doctors to put them through so that I could be greedy and keep him here longer with me. I felt so greedy signing all of the surgery and Anesthesia Consents knowing the pain but it was the only way to keep them alive. These were life saving surgeries being he had fluid in and around his heart and lungs already being treated by 3 different diuretics. Having him endure everything that he has gone through, I'm proud of the 4mo he faught! I've never met such a dependent baby so incredibly strong! #KhalonStrong • • PM me which hashtag to advocate about next! It's only half of what he was diagnosed with! • #criduchatsyndrome #corneliadelangesyndrome #hydrocephalus #spinabifida #dandywalkermalformation #atrialseptaldefect #ventricularseptaldefect #chd #heartfailure #baby #babyloss #hypoxia #hypotonia #opticalnervehypoplasia #mentalretardation #autism #myelodysplasiasyndrome #bloodtransfusion #openheart #openheartsurgery #shortstature #clubfoot #polydactyly #webbedneck

Five days into this PICU and peds ward post-op gig. It’s been hell. It’s been a test, an exercise in patience and sleep deprivation, and an adrenal gland taxation scheme. It’s been sleepless nights in the unique way only a hospital can mess with you: beep! Beep! ....BEEP. We’re going home soon! Theia’s incision has stayed closed without leakage. It could still happen but the chances are slim. She’s on oral Tylenol only, and being cathed every 4 hours. More to come!

I also can’t say thank you enough to my sister in law Shelley @shelleymichel for coming all the way from Portland to help us in the first FOUR days with Theia’s hospitalization. We would not have fared so well without her nursing expertise and observant brains to catch things like Theia’s blown IV!

And of course to my husband and Theia’s doting father @bgrout_trout. He is taking 10-12+ hour shifts while working and keeping shit together while I fall apart more often than I’d like. I love you baby.

2019-06-08 05:30   15 3

 

Five days into this PICU and peds ward post-op gig. It’s been hell. It’s been a test, an exercise in patience and sleep deprivation, and an adrenal gland taxation scheme. It’s been sleepless nights in the unique way only a hospital can mess with you: beep! Beep! ....BEEP. We’re going home soon! Theia’s incision has stayed closed without leakage. It could still happen but the chances are slim. She’s on oral Tylenol only, and being cathed every 4 hours. More to come! I also can’t say thank you enough to my sister in law Shelley @shelleymichel for coming all the way from Portland to help us in the first FOUR days with Theia’s hospitalization. We would not have fared so well without her nursing expertise and observant brains to catch things like Theia’s blown IV! And of course to my husband and Theia’s doting father @bgrout_trout. He is taking 10-12+ hour shifts while working and keeping shit together while I fall apart more often than I’d like. I love you baby.

Somebody wanted to be extra fancy for dance class tonight. Getting a decent smile out of this girl is hard work sometimes.

 #spinabifida
 #spinabeautiful
 #dance #wheelchairdance

2019-06-08 04:20   51 0

 

Somebody wanted to be extra fancy for dance class tonight. Getting a decent smile out of this girl is hard work sometimes. #spinabifida #spinabeautiful #dance #wheelchairdance

“Leave the saving of the world to the men? I don’t think so.” 🦸‍♀️ .
.
I’m not sure if Harper Mae has found a second mom or if her and Elastigirl are just sharing the secrets of their superpowers. 💕 I have no doubt though that whatever these two were talking about, that Elastigirl learned some new tricks of the trade. .
.
Now all we have to do is get this girl of ours her own superhero outfit and she will be ready to save the world. ✨🌎
.
.
We may or may not still be deciding what to do tomorrow (yes we may have procrastinated on planning our weekend), but we sure hope everyone has an INCREDIBLE weekend! ❤️
. .
P.S. Happy National Donut Day!!! What kind of 🍩 did you get?
.
.
 #theincredibles #superheros #theincredibles2 #hollywoodstudios #disneyworld #instadisney #disneylife #disneyig #disneymagic #magicalmoments #disneybound #disneypixar #disneyblogger #spinabifida #spinabeautiful #sensoryprocessingdisorder #hydrocephalus #chiarimalformation #awareness #blessed #littlefierceones #stronggirls #disneycharacters @allardusa @visitorlando @waltdisneyworld @surestep.products @disneyhollywoodstudios

2019-06-08 04:14   26 0

 

“Leave the saving of the world to the men I don’t think so.” 🦸‍♀️ . . I’m not sure if Harper Mae has found a second mom or if her and Elastigirl are just sharing the secrets of their superpowers. 💕 I have no doubt though that whatever these two were talking about, that Elastigirl learned some new tricks of the trade. . . Now all we have to do is get this girl of ours her own superhero outfit and she will be ready to save the world. ✨🌎 . . We may or may not still be deciding what to do tomorrow (yes we may have procrastinated on planning our weekend), but we sure hope everyone has an INCREDIBLE weekend! ❤️ . . P.S. Happy National Donut Day!!! What kind of 🍩 did you get . . #theincredibles #superheros #theincredibles2 #hollywoodstudios #disneyworld #instadisney #disneylife #disneyig #disneymagic #magicalmoments #disneybound #disneypixar #disneyblogger #spinabifida #spinabeautiful #sensoryprocessingdisorder #hydrocephalus #chiarimalformation #awareness #blessed #littlefierceones #stronggirls #disneycharacters @allardusa @visitorlando @waltdisneyworld @surestep.products @disneyhollywoodstudios

On a day that I was feeling rather destroyed from sinus issues I somehow managed to get up and do today’s 5k push at ParkRun in a pretty good time of 33m 23s #fitness #fitnessmotivation #bodypositive #wheelchairfitness #fit #fitspo #instafit #selfie #selfie nation #instaselfie #australia #parkrun #parkrunau #disability #ability #sb #spinabifida #wheelchair #wheelchairlife #guyswithbeards #guyswithglasses #wheelchairworkout #wheelchairfitness #365dayswithdisability #guyinawheelchair #2019 #fitnessjourney #fitnessjournal #fitnessjourney2019

2019-06-08 03:36   26 0

 

On a day that I was feeling rather destroyed from sinus issues I somehow managed to get up and do today’s 5k push at ParkRun in a pretty good time of 33m 23s #fitness #fitnessmotivation #bodypositive #wheelchairfitness #fit #fitspo #instafit #selfie #selfie nation #instaselfie #australia #parkrun #parkrunau #disability #ability #sb #spinabifida #wheelchair #wheelchairlife #guyswithbeards #guyswithglasses #wheelchairworkout #wheelchairfitness #365dayswithdisability #guyinawheelchair #2019 #fitnessjourney #fitnessjournal #fitnessjourney2019

Since having Agnes nearly a year ago I've put Go babe aside other than some wholesale to @hatchonmaine and the yarmouth Clam festival. I've decided that since my focus is now on my babies and toteing Agnes to and fro to Boston children's hospital, that a mane change would suit my life change. Join me as we navigate our incredible life and our journey with spina bifida and bladder exstrophy! 
 #spinabifida #spinabeautiful #bladderexstrophy #lemonadeforkids #oeis #thiskidinspires #advocatelikeamother #surgery #nevergiveup

2019-06-08 03:29   52 4

 

Since having Agnes nearly a year ago I've put Go babe aside other than some wholesale to @hatchonmaine and the yarmouth Clam festival. I've decided that since my focus is now on my babies and toteing Agnes to and fro to Boston children's hospital, that a mane change would suit my life change. Join me as we navigate our incredible life and our journey with spina bifida and bladder exstrophy! #spinabifida #spinabeautiful #bladderexstrophy #lemonadeforkids #oeis #thiskidinspires #advocatelikeamother #surgery #nevergiveup

They call me Shy.
Mister Camera Shy, that is.

Seriously. This little guy will laugh and dance and chat your ear off until he sees a camera; then, it's straight face for days.

He definitely doesn't get that from his microphone-hogging, center stage-lovin' mama. Or his dad -- for that matter -- who once performed on stage, singing and dancing in an odd little Christmas elf costume. I mean, I have no level of shame, and his dad has no concept of subtlety.

We're a pair.

Anyway, this little ham is all smiles and dance moves right up until point-and-click. I have to be quick and out-smart him.

I won this battle.

 #spinabifida #redefiningspinabifida #hydrocephalus #shunt #heartbaby #trach #trachbaby #tubie #feedingtube #seizures #disability #medicallycomplex #hospitallife #pediatrics #specialneeds #specialneedslife #specialneedsfamily #specialneedswa #specialneedsmom #specialneedsparenting #medicalmom #motherhood #honestmotherhood #momming #momlife #boymom #malacw

2019-06-08 02:51   128 9

 

They call me Shy. Mister Camera Shy, that is. Seriously. This little guy will laugh and dance and chat your ear off until he sees a camera; then, it's straight face for days. He definitely doesn't get that from his microphone-hogging, center stage-lovin' mama. Or his dad -- for that matter -- who once performed on stage, singing and dancing in an odd little Christmas elf costume. I mean, I have no level of shame, and his dad has no concept of subtlety. We're a pair. Anyway, this little ham is all smiles and dance moves right up until point-and-click. I have to be quick and out-smart him. I won this battle. #spinabifida #redefiningspinabifida #hydrocephalus #shunt #heartbaby #trach #trachbaby #tubie #feedingtube #seizures #disability #medicallycomplex #hospitallife #pediatrics #specialneeds #specialneedslife #specialneedsfamily #specialneedswa #specialneedsmom #specialneedsparenting #medicalmom #motherhood #honestmotherhood #momming #momlife #boymom #malacw

Tʜᴇʀᴇ's ᴀ ʟᴏᴠᴇ ᴛʜᴀᴛ ᴄᴀɴ ɴᴏᴛ ʟɪᴇ ʟᴏᴠᴇ ɪs sᴛʀᴏɴɢ ɪᴛ ᴏɴʟʏ ᴄᴀʀᴇs ғᴏʀ ᴊᴏʏɢᴜʟ ɢɪᴠɪɴɢ....
*𝓜𝓲𝓬𝓱𝓪𝓮𝓵 𝓙𝓪𝓬𝓴𝓼𝓸𝓷🌻💟*
7
7
You can see my one tan line on my right shoulder that I got from Florida, lmao.😂 #me #selfiefriday #snapchatfilter #inthekitchen #michaeljackson #healtheworld #feelingmyselftoday #tanktopweather #ponytail #spinabifida #alittletanned #loveisstrong

2019-06-08 01:21   41 2

 

Tʜᴇʀᴇ's ᴀ ʟᴏᴠᴇ ᴛʜᴀᴛ ᴄᴀɴ ɴᴏᴛ ʟɪᴇ ʟᴏᴠᴇ ɪs sᴛʀᴏɴɢ ɪᴛ ᴏɴʟʏ ᴄᴀʀᴇs ғᴏʀ ᴊᴏʏɢᴜʟ ɢɪᴠɪɴɢ.... *𝓜𝓲𝓬𝓱𝓪𝓮𝓵 𝓙𝓪𝓬𝓴𝓼𝓸𝓷🌻💟* 7 7 You can see my one tan line on my right shoulder that I got from Florida, lmao.😂 #me #selfiefriday #snapchatfilter #inthekitchen #michaeljackson #healtheworld #feelingmyselftoday #tanktopweather #ponytail #spinabifida #alittletanned #loveisstrong

Since she was 11 years old, Kelly Schultz has dreamed of getting a black belt in karate. And she is one step closer to achieving this dream, as she will be testing for her black belt. ⠀
⠀
 Kelly was born with spina bifida, and has been learning krate since she was a young girl. Kelly admits that it has not been easy. Her confidence and self-consciousness are still affected by others’ perceptions of her abilities, and they have contributed to her 12-year hiatus from training.⠀
.⠀
.⠀
.⠀
 #blackbelt #mma #martialarts #tkd #fitness #sports #love #spinabifida #iamadaptive #iamadaptivearmy #instagood #rehabilitation #disability #happy #awareness #instadaily community #hospital #photooftheday #adaptivefitness #adapt #wheelchair #spinabifidaawareness #spinabifidastrong #wheelwarrior

2019-06-08 01:06   28 4

 

Since she was 11 years old, Kelly Schultz has dreamed of getting a black belt in karate. And she is one step closer to achieving this dream, as she will be testing for her black belt. ⠀ ⠀ Kelly was born with spina bifida, and has been learning krate since she was a young girl. Kelly admits that it has not been easy. Her confidence and self-consciousness are still affected by others’ perceptions of her abilities, and they have contributed to her 12-year hiatus from training.⠀ .⠀ .⠀ .⠀ #blackbelt #mma #martialarts #tkd #fitness #sports #love #spinabifida #iamadaptive #iamadaptivearmy #instagood #rehabilitation #disability #happy #awareness #instadaily community #hospital #photooftheday #adaptivefitness #adapt #wheelchair #spinabifidaawareness #spinabifidastrong #wheelwarrior

"The Moon Room" of John Glenn's former office on Capital Hill with momentos and countless memories. What a thrill.
Armed with statistics and stories. Ms. Chhabra; Senator Sherrod Brown's healthcare policy fellow, and I sat down together in this historic room, for an incredibly informative meeting on healthcare not only on people living with Spina Bifida, but on the state of healthcare in Ohio and across the nation. What's going right. What can we do better. 
Incredible opportunity to advocate, educate and learn. An opportunity to make my voice and the voices of so many others, heard in a positive, informed and determined manner. 
Takeaway? 
If you want your voice to be heard. You can't just yell at a television screen or radio. You have to step up, as the case might be, and do something. You have to take your place at the table. 
Resources are out there to inform and arm you with information. 
Our legislators and their teams are out there. Let them hear YOUR voice. 
 #advocate
 #advocacyinaction
 #spinabifida
 #sbatealonthehill
 #washingtondc 
 #capitalhill 
 #ohio 
 #healthcare 
 #disability
 #mylifeonwheels 
 #everydayadventuresofay

2019-06-08 01:00   35 3

 

"The Moon Room" of John Glenn's former office on Capital Hill with momentos and countless memories. What a thrill. Armed with statistics and stories. Ms. Chhabra; Senator Sherrod Brown's healthcare policy fellow, and I sat down together in this historic room, for an incredibly informative meeting on healthcare not only on people living with Spina Bifida, but on the state of healthcare in Ohio and across the nation. What's going right. What can we do better. Incredible opportunity to advocate, educate and learn. An opportunity to make my voice and the voices of so many others, heard in a positive, informed and determined manner. Takeaway If you want your voice to be heard. You can't just yell at a television screen or radio. You have to step up, as the case might be, and do something. You have to take your place at the table. Resources are out there to inform and arm you with information. Our legislators and their teams are out there. Let them hear YOUR voice. #advocate #advocacyinaction #spinabifida #sbatealonthehill #washingtondc #capitalhill #ohio #healthcare #disability #mylifeonwheels #everydayadventuresofay

I had a visit today from my beautiful granddaughter!!! Best thing ever! She was so excited to see her mimi and her Aunts... love her smile!!!! ❤️❤️❤️❤️ #strongwomen #independentwoman #healing #familyfirst #lovethem #daughter #granddaughter #mylife #summer #texas #detroitgirl #texas🇨🇱 #inkedwoman #inked #inkedlife #inkedup #inkedgirls #tattooedgirls #irish #tattooed #tattooedwomen #carterskids #dillards #rheumatoidarthritis #juvenilearthritis #hydrocephalus #spinabifida #epilepsy #tbi #tbisurvivor

2019-06-07 22:57   14 4

 

I had a visit today from my beautiful granddaughter!!! Best thing ever! She was so excited to see her mimi and her Aunts... love her smile!!!! ❤️❤️❤️❤️ #strongwomen #independentwoman #healing #familyfirst #lovethem #daughter #granddaughter #mylife #summer #texas #detroitgirl #texas🇨🇱 #inkedwoman #inked #inkedlife #inkedup #inkedgirls #tattooedgirls #irish #tattooed #tattooedwomen #carterskids #dillards #rheumatoidarthritis #juvenilearthritis #hydrocephalus #spinabifida #epilepsy #tbi #tbisurvivor

San Diego Padres Game ⚾️ I got to meet many players. Get a signed game ball and tickets 🎫 fun day.

2019-06-07 22:18   10 1

 

San Diego Padres Game ⚾️ I got to meet many players. Get a signed game ball and tickets 🎫 fun day.

❤️Feel Good Friday’s❤️ My little girls last day in the hospital. Yay! She gets to go home. Her mom has a heart of gold 🧡 @johannaaguirre10 My little lady had a rough start but with faith and excellent care we are on the right path. She is one happy little lady. This smile will melt your heart ❤️ ▫️
▫️
▫️
▫️ ▫️
▫️ #spinabifida #hydrocephalus #cancersucks #cancer #brain #braincancer #cancerwarrior #physicianassistant #neurosurgery #neurology  #girls #nurse #doctor #cancer  #patientadvocate #lipsync #patient #instagood #dance #MrNeuro #nicu #aapa #picu #neurology #pacunurse #dance #dancer #melanin @badbunnypr @elalfaeljefe

2019-06-07 22:04   13426 321

 

❤️Feel Good Friday’s❤️ My little girls last day in the hospital. Yay! She gets to go home. Her mom has a heart of gold 🧡 @johannaaguirre10 My little lady had a rough start but with faith and excellent care we are on the right path. She is one happy little lady. This smile will melt your heart ❤️ ▫️ ▫️ ▫️ ▫️ ▫️ ▫️ #spinabifida #hydrocephalus #cancersucks #cancer #brain #braincancer #cancerwarrior #physicianassistant #neurosurgery #neurology #girls #nurse #doctor #cancer #patientadvocate #lipsync #patient #instagood #dance #MrNeuro #nicu #aapa #picu #neurology #pacunurse #dance #dancer #melanin @badbunnypr @elalfaeljefe

@s_mira_po_nitke
🚀К заветной цели.
Вот так, медленно, но уверенно наш боец движется к своей цели!👍🙏
А ведь еще пол года назад врачи разводили руками, мол нетратьте, деньги и время зря - Даня даже кушать и пить самостоятельно не сможет!
Вопреки всему, Данила делает колосальные успехи, он все понимает, отвечает на вопросы с помощью жестов, кушает и пьет сам!
А если мы с Вами еще немного поможем Дане, то представляете каких высот он сможет добиться с нашей помощью!
Давайте поможем уже закрыть сбор для Дани🙏 . 🔴 Помочь Дане:
✅поставить ❤️
✅написать комментарий от 4 слов, чтобы пост вылетел в «Популярное».
✅сделать репост/сторис
📌 сохранить пост в избранное. 🔴РЕКВИЗИТЫ:
🔵При переводе ОБЯЗАТЕЛЬНО указывайте, что он для Дани‼
ℹРеквизиты БФ @s_mira_po_nitke для помощи:
📲🔔ОТПРАВЬ СМС с текстом "НИТКА" и сумму от 10 руб. до 15 000 руб. на короткий номер 3⃣4⃣4⃣3⃣
.
💳Сбербанк: 4817 7600 3274 3464 - Элина Рустамовна Н. - учредитель фонда (ДЛЯ ДАНИ)
💳Альфа Банк 5486732011475712- Варлы Анна Игоревна (ДЛЯ ДАНИ)
⠀
🔴PayPal: info@fondsmiraponitke.com (ДЛЯ ДАНИ)
🔴Яндекс: 410014954712643(ДЛЯ ДАНИ)
🔴Мегафон +7 922-130-16-49 (ДЛЯ ДАНИ)
🔴Киви +7 916 951 88 10 (ДЛЯ ДАНИ)
🔴WebMoney (ДЛЯ ДАНИ)
❗Z892846570694
❗R870721121139
❗E733527445751
 #bf_s_mira_po_nitke #smpn_dania_avaria #дтп #авария # #me #love #instadaily #selfie #мирунуженчеловек #добряки #помощьдетям #благотворительныйфонд #русфонд #worldvita #протянирукупомощи #дтп #авария #пожертвование #лайк #репост #добро #нитка #смирапонитке #дцп #spinabifida #топ #репост #жизнь #лето #сочи #море #пляж #солнце

2019-06-07 22:00   5 0

 

@s_mira_po_nitke 🚀К заветной цели. Вот так, медленно, но уверенно наш боец движется к своей цели!👍🙏 А ведь еще пол года назад врачи разводили руками, мол нетратьте, деньги и время зря - Даня даже кушать и пить самостоятельно не сможет! Вопреки всему, Данила делает колосальные успехи, он все понимает, отвечает на вопросы с помощью жестов, кушает и пьет сам! А если мы с Вами еще немного поможем Дане, то представляете каких высот он сможет добиться с нашей помощью! Давайте поможем уже закрыть сбор для Дани🙏 . 🔴 Помочь Дане: ✅поставить ❤️ ✅написать комментарий от 4 слов, чтобы пост вылетел в «Популярное». ✅сделать репост/сторис 📌 сохранить пост в избранное. 🔴РЕКВИЗИТЫ: 🔵При переводе ОБЯЗАТЕЛЬНО указывайте, что он для Дани‼ ℹРеквизиты БФ @s_mira_po_nitke для помощи: 📲🔔ОТПРАВЬ СМС с текстом "НИТКА" и сумму от 10 руб. до 15 000 руб. на короткий номер 3⃣4⃣4⃣3⃣ . 💳Сбербанк: 4817 7600 3274 3464 - Элина Рустамовна Н. - учредитель фонда (ДЛЯ ДАНИ) 💳Альфа Банк 5486732011475712- Варлы Анна Игоревна (ДЛЯ ДАНИ) ⠀ 🔴PayPal: [email protected]fondsmiraponitke.com (ДЛЯ ДАНИ) 🔴Яндекс: 410014954712643(ДЛЯ ДАНИ) 🔴Мегафон +7 922-130-16-49 (ДЛЯ ДАНИ) 🔴Киви +7 916 951 88 10 (ДЛЯ ДАНИ) 🔴WebMoney (ДЛЯ ДАНИ) ❗Z892846570694 ❗R870721121139 ❗E733527445751 #bf_s_mira_po_nitke #smpn_dania_avaria #дтп #авария # #me #love #instadaily #selfie #мирунуженчеловек #добряки #помощьдетям #благотворительныйфонд #русфонд #worldvita #протянирукупомощи #дтп #авария #пожертвование #лайк #репост #добро #нитка #смирапонитке #дцп #spinabifida #топ #репост #жизнь #лето #сочи #море #пляж #солнце

I love my hair like in dreads, just like my dad 😊

2019-06-07 22:00   5 1

 

I love my hair like in dreads, just like my dad 😊

You’ve got a friend in me❤️
Cyrus is 9 months old! Cy wears 12 month clothing, size five diapers, loves all food and getting on his sister’s nerves. He’s 100% a daddy’s boy. His least favorite thing has been weekly physical therapy and prefers not to participate. 👎

2019-06-07 21:31   26 1

 

You’ve got a friend in me❤️ Cyrus is 9 months old! Cy wears 12 month clothing, size five diapers, loves all food and getting on his sister’s nerves. He’s 100% a daddy’s boy. His least favorite thing has been weekly physical therapy and prefers not to participate. 👎

I'm still a little in shock that I won over some very tough competition.
Once again I want to say a huge thank you to everyone involved in making this possible. The work we do for Charity for Kids helps pay back the support they have given to me and my family over the years and this recognition is amazing.

Of course I do have some more fundraisers planned for this year and next and I do have opportunities for Sponsorships from local businesses. So if anyone would be interested in helping me to continue my fundraising please private message and Dad can give you more info.

Thank you everyone

 #summersstory #spinabifida #hydrocephalus #inspiration #inclusion #independence #wheelchair #wheelchairlife #hastings #bexhill #paralysed #paraplegic #spinaprincess #spinawarrior #charity #disability #thisgirlcan #sponsorship #sponsor #Awards #fundraiser

2019-06-07 19:55   39 0

 

I'm still a little in shock that I won over some very tough competition. Once again I want to say a huge thank you to everyone involved in making this possible. The work we do for Charity for Kids helps pay back the support they have given to me and my family over the years and this recognition is amazing. Of course I do have some more fundraisers planned for this year and next and I do have opportunities for Sponsorships from local businesses. So if anyone would be interested in helping me to continue my fundraising please private message and Dad can give you more info. Thank you everyone #summersstory #spinabifida #hydrocephalus #inspiration #inclusion #independence #wheelchair #wheelchairlife #hastings #bexhill #paralysed #paraplegic #spinaprincess #spinawarrior #charity #disability #thisgirlcan #sponsorship #sponsor #Awards #fundraiser

Лето, я изжарен как котлета:) #коляскер #ДемозалКристалл #disability #Оттобок #Ottobock #Avangarde #Авангард #Motus #Мотус #Kuschall #wheelchair #KSL #spinalnik #spinabifida #ДЦП #спинальник #колясочник #инвалид #москва #мск #зарядье #преодоление #живубезограничений #инвалиднаяколяска #unawheel #KSeries #UNAwheelMini #электроприставка

2019-06-07 19:44   21 0

 
Surround yourself with people who see the best & the worst in you,but still challenge you to push harder. 
Surround yourself with people who witness your missteps & are right there to motivate you to pick yourself back up & come back stronger. 
Surrounded yourself with people who inspire you to look to the future& make plans to step out of your comfort zone. 
Surround yourself with your perfect tribe.

I've found mine, have you?

2019-06-07 19:27   40 2

 

Surround yourself with people who see the best & the worst in you,but still challenge you to push harder. Surround yourself with people who witness your missteps & are right there to motivate you to pick yourself back up & come back stronger. Surrounded yourself with people who inspire you to look to the future& make plans to step out of your comfort zone. Surround yourself with your perfect tribe. I've found mine, have you

Na, wer hat es auf dem Bild schon erraten ? •
•
Wir haben heute den offiziellen Bescheid bekommen, das Paul ab September ein offizielles Kita Kind sein wird! 🎒 🧒🏻
Die letzten Wochen war ein ziemliches hin und her und es war sehr ungewiss das wir den Platz in der Einrichtung wo die anderen beiden Jungs sind bekommen werden. 
Mit der Bedingung, einen Pflegedienst für den Kathetarismus als Unterstützung mit im Boot zu holen. •
Leute ich sag’s euch, ich bin sooo 
happy!! 🙌🏼
Und ich weiß Paul wird es gut tun. ☺️
•
Heute geht es Paul übrigens wieder viel besser. Wir waren nochmal beim Arzt ein shunt Problem wurde ausgeschlossen.
Beim Kinderarzt machte Paul einen super Eindruck und er hat auch nicht mehr gespuckt seit gestern Abend. 🙌🏼
•
Habt ein schönes Wochenende. 🖤
________________________________________
 #kids #babypaul #boy #mom #mommy #momof3 #jungsmama #kindergartenkind #proud #happy #family #stolz #kämper #spinabifida #spina #shunt #hydrocephalus #märzmama2018 #märzbaby2018 #momlife #lebenmitkindern

2019-06-07 18:39   234 54

 

Na, wer hat es auf dem Bild schon erraten • • Wir haben heute den offiziellen Bescheid bekommen, das Paul ab September ein offizielles Kita Kind sein wird! 🎒 🧒🏻 Die letzten Wochen war ein ziemliches hin und her und es war sehr ungewiss das wir den Platz in der Einrichtung wo die anderen beiden Jungs sind bekommen werden. Mit der Bedingung, einen Pflegedienst für den Kathetarismus als Unterstützung mit im Boot zu holen. • Leute ich sag’s euch, ich bin sooo happy!! 🙌🏼 Und ich weiß Paul wird es gut tun. ☺️ • Heute geht es Paul übrigens wieder viel besser. Wir waren nochmal beim Arzt ein shunt Problem wurde ausgeschlossen. Beim Kinderarzt machte Paul einen super Eindruck und er hat auch nicht mehr gespuckt seit gestern Abend. 🙌🏼 • Habt ein schönes Wochenende. 🖤 ________________________________________ #kids #babypaul #boy #mom #mommy #momof3 #jungsmama #kindergartenkind #proud #happy #family #stolz #kämper #spinabifida #spina #shunt #hydrocephalus #märzmama2018 #märzbaby2018 #momlife #lebenmitkindern

Official Red Bull 400 picture at the top of the ski jump.🥇
43 minutes and 5 long seconds later!!⏱ IF YOU WANNA GET TO THE TOP, YOU WILL GET TO THE TOP!

FORGET ALL EXCUSES, Work around difficulties, take breaks, convince your COWARD brain that there’s nothing to be afraid of because success is right in front of you, not behind. 💪💪

2019-06-07 18:29   48 2

 

Official Red Bull 400 picture at the top of the ski jump.🥇 43 minutes and 5 long seconds later!!⏱ IF YOU WANNA GET TO THE TOP, YOU WILL GET TO THE TOP! FORGET ALL EXCUSES, Work around difficulties, take breaks, convince your COWARD brain that there’s nothing to be afraid of because success is right in front of you, not behind. 💪💪

Анама "Фариза Оңғарсынова"

Кеудеңде мені тербеттің, жас шыбық енді көктеді.
Мінеки мен де ер жеттім, еңбегің бекер кетпеді.
Өмірде мынау ең жақын, аяулым сенсің, анашым!
Болмаса мейлі зор даңқың, мен үшін бірақ данасың.
Мейірім төккен нұр жүзің тұрғандай сезем жанымда.
“Адал бол, - деуші ең, - жұлдызым”, сақталды сөзің жадымда.
“Игі еңбек түбі осы-ау” дер көргендер жеміс ағашын.
Қартаймай, мәңгі жасай бер мәңгілік Күндей, анашым!
😘😘😘😘✊✊✊💕💕💕💕💕💕💕💕💕💕
Қайырлытүнбаршаңызға😘🤲🌒🌛
Спокойной ночи Всем😘🤲🌒🌛💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖
Шаймерден Дінмұхаммед Сағадатұлы родился 24/12/2015г путем кесерового сечения из за большого размера головы( внутриутробно). Родился в Алматинской области, Карасайском районе, в Каскелене. 📢📢📢Диагноз : ВПРЦНС. Внутренняя гидроцефалия, в стадии декомпенсации. Spina bifida был оперирован спинно-мозговая грыжа в поясничной области (30/12/2015). Был оперирован путем шунтирования слева (19/02/2016). Нижний вялый парапарез, тяжелой степени тяжести. Нарушение функции органов таза по типу недержание кала и мочи.
📢📢📢Сопутствующий диагноз : Врожденный двухсторонний вывих бедра. Вывих левого коленноо сустава. Состояние после закрытого вправления ТБС (30/06/2016). ЖДА 1 степени. 📢СБОР ДЕНЕГ НА МОЁ ЛЕЧЕНИЕ ПРОДОЛЖАЕТСЯ, реквизиты ниже : 
Мама Жакупова Рысгул Дюсеновна 
ИНН 840101 401751
KASPI GOLD 5169 4971 7554 1204
KASPI кошелёк +7 747 853 79 50
КАЗКОМ 4003 0327 2349 8806
HALYK 5354 5100 4620 7626
QIWI +77478537950 🛑🛑 Максимальный РЕПОСТ приветствуется🛑🛑 #впрцнсгидроцефалия #
 #дцпнеприговор #
 #особыйребёнокДінмұхаммед #
 #Алларазыболсын #
 #спасибовамбольшое #
 #алтындомбыра #
 #меніңдомбырам #
 #қазақтыңдомбырасы #
 #емболсын #
 #astanacity #
 #spb #
 #spinabifida #операция #

2019-06-07 18:29   53 2

 

Анама "Фариза Оңғарсынова" Кеудеңде мені тербеттің, жас шыбық енді көктеді. Мінеки мен де ер жеттім, еңбегің бекер кетпеді. Өмірде мынау ең жақын, аяулым сенсің, анашым! Болмаса мейлі зор даңқың, мен үшін бірақ данасың. Мейірім төккен нұр жүзің тұрғандай сезем жанымда. “Адал бол, - деуші ең, - жұлдызым”, сақталды сөзің жадымда. “Игі еңбек түбі осы-ау” дер көргендер жеміс ағашын. Қартаймай, мәңгі жасай бер мәңгілік Күндей, анашым! 😘😘😘😘✊✊✊💕💕💕💕💕💕💕💕💕💕 Қайырлытүнбаршаңызға😘🤲🌒🌛 Спокойной ночи Всем😘🤲🌒🌛💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖 Шаймерден Дінмұхаммед Сағадатұлы родился 24/12/2015г путем кесерового сечения из за большого размера головы( внутриутробно). Родился в Алматинской области, Карасайском районе, в Каскелене. 📢📢📢Диагноз : ВПРЦНС. Внутренняя гидроцефалия, в стадии декомпенсации. Spina bifida был оперирован спинно-мозговая грыжа в поясничной области (30/12/2015). Был оперирован путем шунтирования слева (19/02/2016). Нижний вялый парапарез, тяжелой степени тяжести. Нарушение функции органов таза по типу недержание кала и мочи. 📢📢📢Сопутствующий диагноз : Врожденный двухсторонний вывих бедра. Вывих левого коленноо сустава. Состояние после закрытого вправления ТБС (30/06/2016). ЖДА 1 степени. 📢СБОР ДЕНЕГ НА МОЁ ЛЕЧЕНИЕ ПРОДОЛЖАЕТСЯ, реквизиты ниже : Мама Жакупова Рысгул Дюсеновна ИНН 840101 401751 KASPI GOLD 5169 4971 7554 1204 KASPI кошелёк +7 747 853 79 50 КАЗКОМ 4003 0327 2349 8806 HALYK 5354 5100 4620 7626 QIWI +77478537950 🛑🛑 Максимальный РЕПОСТ приветствуется🛑🛑 #впрцнсгидроцефалия # #дцпнеприговор # #особыйребёнокДінмұхаммед # #Алларазыболсын # #спасибовамбольшое # #алтындомбыра # #меніңдомбырам # #қазақтыңдомбырасы # #емболсын # #astanacity # #spb # #spinabifida #операция #

Y’all, this stuff is my jam!! My friend @sarahbloodsworth gave me this for back pain and I TOTALLY didn’t expect for it to work. As someone who broke their back in high school and also has spina bifida, back pain is a real problem for me. I sit like 8 hours a days at my job and usually Excederine is the only thing that can bring relief! Honestly, I don’t even know what all is in it, but I know it’s full of @youngliving essential oils and THEY WORK in like 5-10 minutes!

2019-05-28 23:34   27 11

 

Y’all, this stuff is my jam!! My friend @sarahbloodsworth gave me this for back pain and I TOTALLY didn’t expect for it to work. As someone who broke their back in high school and also has spina bifida, back pain is a real problem for me. I sit like 8 hours a days at my job and usually Excederine is the only thing that can bring relief! Honestly, I don’t even know what all is in it, but I know it’s full of @youngliving essential oils and THEY WORK in like 5-10 minutes!

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