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Images about: #starving4acure (159 posts)

When you have half a dozen conditions affecting your ability to get nutrition and one of them decides to pull #atypicalanaphylaxis out of the hat... At that point its like: Which one is better, nutrition or breathing!?? πŸ™Ž
🌠β–ͺβ–«β–ͺβ–«πŸŒ 
πŸŒ β–«β–ͺβ–«β–ͺ🌠
🌠β–ͺβ–«β–ͺβ–«πŸŒ 
So... I am reacting to oral nutrition and my one safe feeding tube formula! 😱
 #sickfightsback #butyoudontlooksick #atypicalanaphylaxisisreal #chronicillnesslife #chronicallyhopeful #justbreathe #starving4acure #GPwarrior #tubie #Zebrastrong

2018-11-06 20:30   28 2

 

When you have half a dozen conditions affecting your ability to get nutrition and one of them decides to pull #atypicalanaphylaxis out of the hat... At that point its like: Which one is better, nutrition or breathing! πŸ™Ž 🌠β–ͺβ–«β–ͺβ–«πŸŒ  πŸŒ β–«β–ͺβ–«β–ͺ🌠 🌠β–ͺβ–«β–ͺβ–«πŸŒ  So... I am reacting to oral nutrition and my one safe feeding tube formula! 😱 #sickfightsback #butyoudontlooksick #atypicalanaphylaxisisreal #chronicillnesslife #chronicallyhopeful #justbreathe #starving4acure #GPwarrior #tubie #Zebrastrong

It’s been a long couple months with being hospitalized, in and out of the hospital for a week, multiple doctors appointments in between everything and surgery, trying to figure out my next 3 surgeries now as well I’m so mentally and physically overwhelmed with life currently. Imagine getting diagnosed with something so rare, that most doctors don't know how to treat you. Or something so rare you have few treatment options and none of them are ideal or may actually help you, they offer you in a word Band-Aids. Imagine..... Going to a doctor's appointment and being told your to complicated or that your doctor can't do much more to help you as you have already tried about everything or do to other health issues you can't try those other meds as they can cause QT which is a bad heart issue no one wants. This is a reality for many who suffer with Ehlers Danlos Syndrome, Pelvic Congestion Syndrome And Gastroparesis. Myself included.  #starving4acure #raredisease #ehlersdanlossyndrome #pelviccongestionsyndrome #gastroparesis #crohnsdisease #neverstopfighting #justkeepswimming #chronicillness #chronicpain #nevergiveupπŸ’ͺ #staypostive #positiveoutlook

2018-08-28 13:48   40 3

 

It’s been a long couple months with being hospitalized, in and out of the hospital for a week, multiple doctors appointments in between everything and surgery, trying to figure out my next 3 surgeries now as well I’m so mentally and physically overwhelmed with life currently. Imagine getting diagnosed with something so rare, that most doctors don't know how to treat you. Or something so rare you have few treatment options and none of them are ideal or may actually help you, they offer you in a word Band-Aids. Imagine..... Going to a doctor's appointment and being told your to complicated or that your doctor can't do much more to help you as you have already tried about everything or do to other health issues you can't try those other meds as they can cause QT which is a bad heart issue no one wants. This is a reality for many who suffer with Ehlers Danlos Syndrome, Pelvic Congestion Syndrome And Gastroparesis. Myself included. #starving4acure #raredisease #ehlersdanlossyndrome #pelviccongestionsyndrome #gastroparesis #crohnsdisease #neverstopfighting #justkeepswimming #chronicillness #chronicpain #nevergiveupπŸ’ͺ #staypostive #positiveoutlook

With severe Gastroparesis I have been experiencing not only GP symptoms but nearly all (about 99%) of the symptoms of CIPO and Colonic Inertia as well, complete with intestinal and bowel obstructions. Though doctors refuse anymore testing since my positive GES and the placement of my feeding tube.
With neurological issues I also choke on and aspirate food and have actually choked on AIR, which also easily gets trapped in my digestive tract. 
Despite this, and the fact that I'm allergic to the only food my digestive tract can digest, I am forced to continue to eat and make myself sicker in order to "survive". I struggle every day with nutrition and weight. I hope some day I can get a doctor to listen to me and help because tube feeds alone are not enough for my body to sustain life and oral nutrition is not helping. .
This is my reality with digestive tract paralysis.
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 #digestivetractparalysis #dtpawarenessmonth #severeGP #intestinaldysmotility #jejunostomy #feedingtubelife #seemeGP #chronicovercomer #chronicallyhopeful #Zebrastrong #sickfightsback #warrior #notgivingup #starving4acure #tubiestrong

2018-08-22 20:43   18 0

 

With severe Gastroparesis I have been experiencing not only GP symptoms but nearly all (about 99%) of the symptoms of CIPO and Colonic Inertia as well, complete with intestinal and bowel obstructions. Though doctors refuse anymore testing since my positive GES and the placement of my feeding tube. With neurological issues I also choke on and aspirate food and have actually choked on AIR, which also easily gets trapped in my digestive tract. Despite this, and the fact that I'm allergic to the only food my digestive tract can digest, I am forced to continue to eat and make myself sicker in order to "survive". I struggle every day with nutrition and weight. I hope some day I can get a doctor to listen to me and help because tube feeds alone are not enough for my body to sustain life and oral nutrition is not helping. . This is my reality with digestive tract paralysis. . #digestivetractparalysis #dtpawarenessmonth #severeGP #intestinaldysmotility #jejunostomy #feedingtubelife #seemeGP #chronicovercomer #chronicallyhopeful #Zebrastrong #sickfightsback #warrior #notgivingup #starving4acure #tubiestrong

One year ago today was my jejunostomy surgery and it has been a long, hard year to say the least.
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It was done as an emergency surgery. As I was being prepped one of the nurses noticed my breath was 'off' I had ketoacidosis. They started my feeds almost immediately after the placement and at 400 mls/hr (two things tubies know are not usually done).
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The list of complications I have experienced just about runs the gamut from granulation tissue and clogged feeding tube, to my feeding tube falling out and stoma infections (one of which invaded my bloodstream). I do not tolerate oral nutrition or adult formulas and developed a sudden intolerance to protein so only tolerate EleCare jr at a slow rate. Essentially I am getting less nutrition than a baby through my feeding tube.
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Its not an easy battle but I'd like to think this fight is worth it so here is to another year! πŸ’–πŸ’ͺπŸ™
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 #chronicovercomer #chronicillnesswarrior #jesustakethewheel #Zebrastrong #tubielife #jejunostomytube #gastroparesiswarrior #dtpawarenessmonth #EhlersDanlosSyndrome #lupus #Dysautonomiastrong #Mastcelldisease #allergies #sickfightsback #starving4acure

2018-08-06 20:16   22 0

 

One year ago today was my jejunostomy surgery and it has been a long, hard year to say the least. . . . It was done as an emergency surgery. As I was being prepped one of the nurses noticed my breath was 'off' I had ketoacidosis. They started my feeds almost immediately after the placement and at 400 mls/hr (two things tubies know are not usually done). . . . The list of complications I have experienced just about runs the gamut from granulation tissue and clogged feeding tube, to my feeding tube falling out and stoma infections (one of which invaded my bloodstream). I do not tolerate oral nutrition or adult formulas and developed a sudden intolerance to protein so only tolerate EleCare jr at a slow rate. Essentially I am getting less nutrition than a baby through my feeding tube. . . . Its not an easy battle but I'd like to think this fight is worth it so here is to another year! πŸ’–πŸ’ͺπŸ™ . . . #chronicovercomer #chronicillnesswarrior #jesustakethewheel #Zebrastrong #tubielife #jejunostomytube #gastroparesiswarrior #dtpawarenessmonth #EhlersDanlosSyndrome #lupus #Dysautonomiastrong #Mastcelldisease #allergies #sickfightsback #starving4acure

I have had digestive issues my whole life, as a child it was mostly just pain and bloating, then as a Junior in high school I started experiencing intractable nausea. I had so many pregnancy tests done over the years and the initial thought was pregnancy and morning sickness... I was barely old enough to go on group dates at this point as I was barely 16 years old so I thought, just humor the doctors... Funny, because the only dates I went on in high school were chaperoned by the guys parents (lets just say I was in college before I got past a second date with any guy).
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Due to GP I was bullied and abused, accused of not being able to take care of myself, accused of making myself sick. This isn't a choice. Its not something we seek after or willingly choose. I spent 7 years fighting for a diagnosis of Gastroparesis. My vagus nerve is damaged and gastric muscles weak. Doctors still can't decide what exactly caused it but it seems the cause is an unlucky combination of conditions. -EDS
-Dysautonomia
-Lupus
Just to name a few of the contributing factors...
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 #digestivetractparalysisawareness #thisismystory #humorhelped #Gastroparesis #starving4acure #chronicillnesswarrior #lupus #EDS #Dysautonomia #Zebrastrong #feedingtubelife #chronicovercomer #chronicallyhopeful #ichooselife

2018-08-03 23:14   21 1

 

I have had digestive issues my whole life, as a child it was mostly just pain and bloating, then as a Junior in high school I started experiencing intractable nausea. I had so many pregnancy tests done over the years and the initial thought was pregnancy and morning sickness... I was barely old enough to go on group dates at this point as I was barely 16 years old so I thought, just humor the doctors... Funny, because the only dates I went on in high school were chaperoned by the guys parents (lets just say I was in college before I got past a second date with any guy). .... Due to GP I was bullied and abused, accused of not being able to take care of myself, accused of making myself sick. This isn't a choice. Its not something we seek after or willingly choose. I spent 7 years fighting for a diagnosis of Gastroparesis. My vagus nerve is damaged and gastric muscles weak. Doctors still can't decide what exactly caused it but it seems the cause is an unlucky combination of conditions. -EDS -Dysautonomia -Lupus Just to name a few of the contributing factors... . . . #digestivetractparalysisawareness #thisismystory #humorhelped #Gastroparesis #starving4acure #chronicillnesswarrior #lupus #EDS #Dysautonomia #Zebrastrong #feedingtubelife #chronicovercomer #chronicallyhopeful #ichooselife

This month is kind of a historical month for me. Its not only my birth month, its also the awareness month for #Gastroparesis (paralysis of the stomach) a condition that has had a significantly negative impact on my life. 
I had my first gastric emptying study for my 23rd birthday 2 years ago. Then last August my diagnosis went from mild to severe and I received my J tube. August is also the month I had my first #Ketoacidosis episode (no diabetes) and the month #Mastcelldisease showed its face in my life.
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I lost my gallbladder and my liver almost shut down on me due to GP. My intestines and colon are slowly shutting down.
Gastroparesis has caused not only Malnourishment and severe dehydration in my case but also lead to #Immunodeficiency and severe blood sugar fluctuations.
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 #gastroparesiswarrior #DTP #starving4acure #Zebrastrong #tubiestrong #jejunostomytube #chronicillnesswarrior #lupus #Dysautonomia #hEDS

2018-08-02 02:00   26 2

 

This month is kind of a historical month for me. Its not only my birth month, its also the awareness month for #Gastroparesis (paralysis of the stomach) a condition that has had a significantly negative impact on my life. I had my first gastric emptying study for my 23rd birthday 2 years ago. Then last August my diagnosis went from mild to severe and I received my J tube. August is also the month I had my first #Ketoacidosis episode (no diabetes) and the month #Mastcelldisease showed its face in my life. . I lost my gallbladder and my liver almost shut down on me due to GP. My intestines and colon are slowly shutting down. Gastroparesis has caused not only Malnourishment and severe dehydration in my case but also lead to #Immunodeficiency and severe blood sugar fluctuations. . #gastroparesiswarrior #DTP #starving4acure #Zebrastrong #tubiestrong #jejunostomytube #chronicillnesswarrior #lupus #Dysautonomia #hEDS

 #GivingTuesday #AmazonSmiles #TakeABite4GP #CureGP #GP IS #Gastroparesis is a #DigestiveDisease #Diabetes or #Idiopathic w/without an #AutoImmuneDisease_s or #MitochondrialDisease we seek #Cures #GPreporters #PatientAdvocates #ChronicWarriors seeking #Cures #Awareness better #treatments #research #QOL we are #Starving4ACure #4real no drama it’s #4real #malnutrition #dehydration #fatigue #pain #chronicpain #chronicMigraines #WarriorTag #PassATag @aprilgqg @kloveradio @wreg3 @orlandosentinel @wesh2 @wafb @ktbs3 @wwltv @melissaadamsvanhouten @carolynmcbane @mo_2013_ @steventrotter @gimotility @tippedmug @hesaonlineorg

2017-11-28 16:24   10 1

 
We keep the light on for #Advocacy 24/7/365 not because we are motel 6, but because we have an #Incurable #Invisible #Chronic #ButYouDontLookSick uninvited passenger we do #GPReports as #Patient_Advocates with Campaigns 1) #Worldwide #TakeABite4GP 2) #USA #HR1187 #FGIMD #IBS #Warriors giving thanks daily for our blessings. We have priceless family, friends, & hope you see the positivity and optimism with each of our #PassATag & #buddycheck if you feel alone? You are not #WeWillFindYou #WeWontStop #NEGU #cures #CureGP #Gastroparesis #Starving4ACure is a literal tag not drama. Our bodies do not receive enough nutrients and hydration. A failure to thrive situation occurs from stress over time from repetitive dehydration and chronic malnutrition on our heart, lungs, kidneys, brain creates stress on our organs over time. It cannot be overstated the importance of being hydrated!!! Always sipping on something. A lot of Motility #Warriors are not able to tolerate water and then there are some who can only tolerate water. I am in the carbonated diet drink. I keep a small drink by me at all times and do hydration fluids in an attempt at staying hydrated. Those who have chronic migraines know being dehydrated will increase your pain levels/aggravate your migraine. Help a fellow #Warrior #GPReport

2017-11-06 21:33   16 2

 

We keep the light on for #Advocacy 24/7/365 not because we are motel 6, but because we have an #Incurable #Invisible #Chronic #ButYouDontLookSick uninvited passenger we do #GPReports as #Patient_Advocates with Campaigns 1) #Worldwide #TakeABite4GP 2) #USA #HR1187 #FGIMD #IBS #Warriors giving thanks daily for our blessings. We have priceless family, friends, & hope you see the positivity and optimism with each of our #PassATag & #buddycheck if you feel alone You are not #WeWillFindYou #WeWontStop #NEGU #cures #CureGP #Gastroparesis #Starving4ACure is a literal tag not drama. Our bodies do not receive enough nutrients and hydration. A failure to thrive situation occurs from stress over time from repetitive dehydration and chronic malnutrition on our heart, lungs, kidneys, brain creates stress on our organs over time. It cannot be overstated the importance of being hydrated!!! Always sipping on something. A lot of Motility #Warriors are not able to tolerate water and then there are some who can only tolerate water. I am in the carbonated diet drink. I keep a small drink by me at all times and do hydration fluids in an attempt at staying hydrated. Those who have chronic migraines know being dehydrated will increase your pain levels/aggravate your migraine. Help a fellow #Warrior #GPReport

Happy #ShareAStorySaturday! We are on a #CureGP Journey! #TakeABite4GP GP is #gastroparesis a  #MotilityDisorder #Diabetes #Mito #AutoimmuneDiseases #Raynauds #POTS 
 #PassATag to a #Warrior w/ your #GPReport every #Patient_Advocate has a story & a testimonial of how you manage to battle thru your #Chronic #Invisible #Incurable will you share your #GPReport? 
In an #Empathetic #Worldwide Campaign #TakeABite4GP post a pic, if you can eat, please post a picture with the hashtag #TakeABite4GP to spread empathy. 
If you CANNOT, please share your #GPReport w/ the bite you would like to eat, with the #TakeABite4GP as well our #MotilityBill #FGIMD #IBS 
in the #USA #HR1187 requiring Cosponsors https://goo.gl/goU9Ft https://www.facebook.com/townhall/ 
A few minutes of your time with the provided links to your Representatives would help millions #Starving4ACure πŸ’šπŸ€—πŸ’›πŸ₯„πŸ₯„πŸ₯„

2017-11-04 14:22   28 2

 

Happy #ShareAStorySaturday! We are on a #CureGP Journey! #TakeABite4GP GP is #gastroparesis a #MotilityDisorder #Diabetes #Mito #AutoimmuneDiseases #Raynauds #POTS #PassATag to a #Warrior w/ your #GPReport every #Patient_Advocate has a story & a testimonial of how you manage to battle thru your #Chronic #Invisible #Incurable will you share your #GPReport In an #Empathetic #Worldwide Campaign #TakeABite4GP post a pic, if you can eat, please post a picture with the hashtag #TakeABite4GP to spread empathy. If you CANNOT, please share your #GPReport w/ the bite you would like to eat, with the #TakeABite4GP as well our #MotilityBill #FGIMD #IBS in the #USA #HR1187 requiring Cosponsors https://goo.gl/goU9Ft https://www.facebook.com/townhall/ A few minutes of your time with the provided links to your Representatives would help millions #Starving4ACure πŸ’šπŸ€—πŸ’›πŸ₯„πŸ₯„πŸ₯„

 #memorialdayweekend #Soulful #Sunday #seeing #Blessings #Miracles all around us in the smallest of of moments. Yet they are so very large.. I did not write this number oh no! I did not! I just looked down and there it was and if you are in my thoughts and prayers you are seeing and hearing the same thing. As I share my favorite number is 3 and it's multiples thereof.. so when I share hubby walks up and immediately catches 2 fish with the bow and then gets one more with a bright red bottom (German Carp) but it gets off right at his feet ,,, then he loads the arrow and tries again .. misses right in front of him.. soooo yes if you are in my head... listening.. 1,2,and 3 ... well then .. (🌬✨) enough said. #ForevermoreInOurHeartsAndMinds #HR1187 http://goo.gl/Nl82G7 #USA good knows no boundaries if /when passed our motility bill will benefit #Worldwide #gastroparesis #CureGP #FGIMD #IBS #Incurable to #Cures #Mito #Diabetes #QualityOfCare - #QOC to those #Starving4ACure #malnutrition #dehydration #fatigue #BrainFog = #GPFog = trying to communicate with cooked 🍝 noodles/no sauce. Nor meatballs we - our brains are the noodles.... in the midst of the #GPFog

2017-05-28 15:25   14 0

 

#memorialdayweekend #Soulful #Sunday #seeing #Blessings #Miracles all around us in the smallest of of moments. Yet they are so very large.. I did not write this number oh no! I did not! I just looked down and there it was and if you are in my thoughts and prayers you are seeing and hearing the same thing. As I share my favorite number is 3 and it's multiples thereof.. so when I share hubby walks up and immediately catches 2 fish with the bow and then gets one more with a bright red bottom (German Carp) but it gets off right at his feet ,,, then he loads the arrow and tries again .. misses right in front of him.. soooo yes if you are in my head... listening.. 1,2,and 3 ... well then .. (🌬✨) enough said. #ForevermoreInOurHeartsAndMinds #HR1187 http://goo.gl/Nl82G7 #USA good knows no boundaries if /when passed our motility bill will benefit #Worldwide #gastroparesis #CureGP #FGIMD #IBS #Incurable to #Cures #Mito #Diabetes #QualityOfCare - #QOC to those #Starving4ACure #malnutrition #dehydration #fatigue #BrainFog = #GPFog = trying to communicate with cooked 🍝 noodles/no sauce. Nor meatballs we - our brains are the noodles.... in the midst of the #GPFog

May our #soulful Sunday be #blessed with comfort, healing, and strength. #CureGP #Cures #Gastroparesis #IBS #FGIMD OUR bill for #MotilityDisorders reintroduced by @repjimsensenbrenner #HR1187 http://goo.gl/MK8Koz all #GPReporters on the #GPNetwork in #GPNation in #chronicillness w/ #spoonieproblems #GPMillions can explain to all why the #butyoudontlooksickπŸŽ— bodies do not work & are #Starving4ACure all #GPMillions are #GPReporters no matter the severity of their health situation. We are not a #OneSizeFitsAll type of #Invisibilty #empathize for us -- as all our green candles go up to memorialize a #GPBrother_Sister who has passed on. We say they are flying high now with no pain or suffering --They are in peace. Their family,friends,community in deep condolences & sympathies with prayers for the loss of their loved one. These diseases are very serious-as positive and optimistic as we keep our advocacy? This is never ever taken lightly and nor should any one forget how important this journey of advocacy is ...in which we cast our lights. πŸ•―πŸ•―πŸ•―πŸ•―πŸ’šπŸ’šπŸ’š

2017-03-12 14:55   25 6

 

May our #soulful Sunday be #blessed with comfort, healing, and strength. #CureGP #Cures #Gastroparesis #IBS #FGIMD OUR bill for #MotilityDisorders reintroduced by @repjimsensenbrenner #HR1187 http://goo.gl/MK8Koz all #GPReporters on the #GPNetwork in #GPNation in #chronicillness w/ #spoonieproblems #GPMillions can explain to all why the #butyoudontlooksickπŸŽ— bodies do not work & are #Starving4ACure all #GPMillions are #GPReporters no matter the severity of their health situation. We are not a #OneSizeFitsAll type of #Invisibilty #empathize for us -- as all our green candles go up to memorialize a #GPBrother_Sister who has passed on. We say they are flying high now with no pain or suffering --They are in peace. Their family,friends,community in deep condolences & sympathies with prayers for the loss of their loved one. These diseases are very serious-as positive and optimistic as we keep our advocacy This is never ever taken lightly and nor should any one forget how important this journey of advocacy is ...in which we cast our lights. πŸ•―πŸ•―πŸ•―πŸ•―πŸ’šπŸ’šπŸ’š

 #GPNation needs a slow or quick yes to help #5MillionGPStrong who are #Starving4ACure #Malnutrition #Dehydration #chronicpain #fatigue #GPNation seek #RightCare @lownInstitute has taken up the baton to raise the #Medical community #PatientCare is crucial for everyone at anygiven moment you can be in the position of needing #RightCare  #acute or #Chrinic all #Matter #Humanity w/ #Compassionate #Empathy it all matters #IncurableIllnesses without #Awareness like #MotilityDisorders with a #bill like #HR2311 must be brought out of committee! We thank @repjimsensenbrenner for his introduction of our #motilitydisorder Bill #HR2311 https://goo.gl/rAJXFG ThankYou to all our #Cosponsors please click on the link provided we need more than 15or so than our precious #GP Supermen/Women in congressional Representatives. Please say #yes with us #TakeABite4GP #CureGP

2016-10-11 17:56   10 1

 

#GPNation needs a slow or quick yes to help #5MillionGPStrong who are #Starving4ACure #Malnutrition #Dehydration #chronicpain #fatigue #GPNation seek #RightCare @lownInstitute has taken up the baton to raise the #Medical community #PatientCare is crucial for everyone at anygiven moment you can be in the position of needing #RightCare #acute or #Chrinic all #Matter #Humanity w/ #Compassionate #Empathy it all matters #IncurableIllnesses without #Awareness like #MotilityDisorders with a #bill like #HR2311 must be brought out of committee! We thank @repjimsensenbrenner for his introduction of our #motilitydisorder Bill #HR2311 https://goo.gl/rAJXFG ThankYou to all our #Cosponsors please click on the link provided we need more than 15or so than our precious #GP Supermen/Women in congressional Representatives. Please say #yes with us #TakeABite4GP #CureGP

@lowninstitute @melissaadamsvanhouten #RightCare #IIWK16 we move from @invisibleillnessawareness #GPNation @invisibledisabilities to the upcoming #RightCare w/ @lowninstitute & Ms Mellissa @melissaadamsvanhouten hosting in October the FB event to further give Awareness & provide an opportunity to be seen, heard with Dr's & medical teams at this very crucial time in sooo many lives. We are all at one point or another will have "our story of interaction w/ a #RightCare of interaction -- or a moment of complete opposite of #RightCare share this experience/s please! These moments are how change happens. I repeat my sincere invitation to #TakeABite4GP during #Halloween #thanksgiving #Christmas #hannukah all of the Holidays celebrated over the next several months. Encourage #Empathy in behalf of the ++ #5MillionGPStrong #Starving4ACure #Dying4ACure. Sending or not treating patients due to a lack of knowledge about their #IncurableIllness or #Inability to treat the complex nature of the multiple dx's thereby dismiss you from their care also in part bc you are a nightmare of paperwork. Then, "Coupe de Gras" " We know what you need - We know you are suffering, but if we (The doctor) go any further I will get written up and may lose my license. The doctor can no longer do what his/her Hippocratic oath of "do no harm" says in the realm of best practices for "Complex dx's" ... We do not fit the mold. The only cushion in this scenario is being able to afford your ill health & the energy to fight. Do you see the irony in this? The ones who are trying desperately to find just a #Spoonful of energy to manage a shower - sometimes this is a once a week event taking a couple of hours with rest breaks. Please see us, doing the triathlons in front of you! Behind these sweet smiles, calm personas, because we know our second brains are in our tummy? We are kindly asking you to be disgusted at the the scenario we are describing! We being #everyone to tell their story #RightCare #TakeABite4GP

2016-10-02 15:27   7 0

 

@lowninstitute @melissaadamsvanhouten #RightCare #IIWK16 we move from @invisibleillnessawareness #GPNation @invisibledisabilities to the upcoming #RightCare w/ @lowninstitute & Ms Mellissa @melissaadamsvanhouten hosting in October the FB event to further give Awareness & provide an opportunity to be seen, heard with Dr's & medical teams at this very crucial time in sooo many lives. We are all at one point or another will have "our story of interaction w/ a #RightCare of interaction -- or a moment of complete opposite of #RightCare share this experience/s please! These moments are how change happens. I repeat my sincere invitation to #TakeABite4GP during #Halloween #thanksgiving #Christmas #hannukah all of the Holidays celebrated over the next several months. Encourage #Empathy in behalf of the ++ #5MillionGPStrong #Starving4ACure #Dying4ACure. Sending or not treating patients due to a lack of knowledge about their #IncurableIllness or #Inability to treat the complex nature of the multiple dx's thereby dismiss you from their care also in part bc you are a nightmare of paperwork. Then, "Coupe de Gras" " We know what you need - We know you are suffering, but if we (The doctor) go any further I will get written up and may lose my license. The doctor can no longer do what his/her Hippocratic oath of "do no harm" says in the realm of best practices for "Complex dx's" ... We do not fit the mold. The only cushion in this scenario is being able to afford your ill health & the energy to fight. Do you see the irony in this The ones who are trying desperately to find just a #Spoonful of energy to manage a shower - sometimes this is a once a week event taking a couple of hours with rest breaks. Please see us, doing the triathlons in front of you! Behind these sweet smiles, calm personas, because we know our second brains are in our tummy We are kindly asking you to be disgusted at the the scenario we are describing! We being #everyone to tell their story #RightCare #TakeABite4GP

PLEASE, take 30 Seconds and sign in support of the Bill #HR2311! https://buildquorum.com/act/Tell-Congress-to-Support-HR-2311!-_WC

We need your help! This bill would expand research, increase funding, and promote awareness and understanding of devastating functional gastrointestinal and motility disorders that greatly impact the lives of millions of sufferers. 
Your signature will send a message to your legislators in YOUR state to support #HR2311. Help me and 5 Million other Americans have access to safe, meds that actually help and a cure. We NEED YOUR HELP! Thank you from the bottom of my stomach and I know 5 Million others will be as grateful as well. Support the cause to end GP! NO ONE should have to SUFFER like this. 
 #starving4acure #gastroparesisawareness #nauseaandgp #gp #dtp #hr2311 #paralyzedstomach #chronicfatigue #motilitydisorders #safetreatments πŸ’š, Me

2016-08-24 09:13   6 0

 

PLEASE, take 30 Seconds and sign in support of the Bill #HR2311! https://buildquorum.com/act/Tell-Congress-to-Support-HR-2311!-_WC We need your help! This bill would expand research, increase funding, and promote awareness and understanding of devastating functional gastrointestinal and motility disorders that greatly impact the lives of millions of sufferers. Your signature will send a message to your legislators in YOUR state to support #HR2311. Help me and 5 Million other Americans have access to safe, meds that actually help and a cure. We NEED YOUR HELP! Thank you from the bottom of my stomach and I know 5 Million others will be as grateful as well. Support the cause to end GP! NO ONE should have to SUFFER like this. #starving4acure #gastroparesisawareness #nauseaandgp #gp #dtp #HR2311 #paralyzedstomach #chronicfatigue #motilitydisorders #safetreatments πŸ’š, Me

Half way through my 3rd day back to work. I'm looking forward to the weekend so I can vegetate and relax. On the upside, I don't feel like a fat heifer today like I have been. My TPN rate was lowered from 2100mLs to 1850mLs and that seems to have made a difference in...water retention(?). I am wearing GREEN for GASTROPARESIS AWARENESS today because, not only is it Friday, but it is still August, GASTROPARESIS AWARENESS MONTH! #Gastroparesis #GastroparesisAwareness #GastroparesisAwarenessMonth #Starving4ACure #GoGreen4Gastroparesis

2016-08-12 20:30   14 0

 

Half way through my 3rd day back to work. I'm looking forward to the weekend so I can vegetate and relax. On the upside, I don't feel like a fat heifer today like I have been. My TPN rate was lowered from 2100mLs to 1850mLs and that seems to have made a difference in...water retention(). I am wearing GREEN for GASTROPARESIS AWARENESS today because, not only is it Friday, but it is still August, GASTROPARESIS AWARENESS MONTH! #Gastroparesis #GastroparesisAwareness #GastroparesisAwarenessMonth #Starving4ACure #GoGreen4Gastroparesis

I'm half way through my second day at work and I do not feel good at all. It was hard for me to come this morning but I did. My dad said "The second day is always harder than the first". I almost cried. He just thinks I'm lazy or not pushing myself. My PICC practically didn't flush last night. It took A LOT of effort on my mom's part to get it to work, but never mind that. I'm a warrior. Or trying to be. #Gastroparesis #GastroparesisSucks #GastroparesisAwarenessMonth #Starving4ACure #PiccLinePretty

2016-08-11 19:19   20 20

 

I'm half way through my second day at work and I do not feel good at all. It was hard for me to come this morning but I did. My dad said "The second day is always harder than the first". I almost cried. He just thinks I'm lazy or not pushing myself. My PICC practically didn't flush last night. It took A LOT of effort on my mom's part to get it to work, but never mind that. I'm a warrior. Or trying to be. #Gastroparesis #GastroparesisSucks #GastroparesisAwarenessMonth #Starving4ACure #PiccLinePretty

 #GastroparesisAwarenessMonth Day 11 
Gastroparesis can occur, along with other types of autonomic dysregulation, in the later stages of Lyme Disease. Unfortunately, many physicians are not up to date on the most relevant Lyme information and fail to consider this disease in the absence of a bullseye rash. Over time, Lyme can penetrate virtually every system of the body leaving the patient with an exhausting list of unexplained symptoms. 
Patients diagnosed with idiopathic Gastroparesis along with other symptoms of unknown cause should be evaluated by a "Lyme Literate MD (LLMD)." These physicians specialize in identifying and treating both acute and chronic Lyme infection. 
 #GastroparesisAwareness #Gastroparesis #starvingforacure #starving4acure #stomachparalysis #digestivetractparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #lyme #lymedisease #chroniclyme #gastro #dysautonomia

2016-08-11 14:12   54 1

 

#GastroparesisAwarenessMonth Day 11 Gastroparesis can occur, along with other types of autonomic dysregulation, in the later stages of Lyme Disease. Unfortunately, many physicians are not up to date on the most relevant Lyme information and fail to consider this disease in the absence of a bullseye rash. Over time, Lyme can penetrate virtually every system of the body leaving the patient with an exhausting list of unexplained symptoms. Patients diagnosed with idiopathic Gastroparesis along with other symptoms of unknown cause should be evaluated by a "Lyme Literate MD (LLMD)." These physicians specialize in identifying and treating both acute and chronic Lyme infection. #GastroparesisAwareness #Gastroparesis #starvingforacure #starving4acure #stomachparalysis #digestivetractparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #lyme #lymedisease #chroniclyme #gastro #dysautonomia

 #GastroparesisAwarenessMonth Day 10 
In some cases, Gastroparesis is associated with with eating disorders. Long-term unhealthy behaviors like restricting, binging and purging can lead to Gastroparesis. 
Conversely, some patients may develop disordered eating as a result of their Gastroparesis. The pain, nausea and vomiting over time may leave the patient afraid of eating even if they now have a medication regiment that is working well to control their GP. The psychological aspect of being surrounded by foods they cannot eat may lead to binge eating, followed by the inevitable vomiting from the Gastroparesis. 
The significant weight changes associated with Gastroparesis can create body dysmorphia and a sense of having no control. 
The mental health of Gastroparesis patients should not be ignored, and any problems that arise should be treated appropriately. 
 #Gastroparesisawareness #gastroparesis #stomachparalysis #digestivetractparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #starvingforacure #starving4acure #ehlersdanlossyndrome #mitochondrialdisease #gastro

2016-08-10 19:13   74 2

 

#GastroparesisAwarenessMonth Day 10 In some cases, Gastroparesis is associated with with eating disorders. Long-term unhealthy behaviors like restricting, binging and purging can lead to Gastroparesis. Conversely, some patients may develop disordered eating as a result of their Gastroparesis. The pain, nausea and vomiting over time may leave the patient afraid of eating even if they now have a medication regiment that is working well to control their GP. The psychological aspect of being surrounded by foods they cannot eat may lead to binge eating, followed by the inevitable vomiting from the Gastroparesis. The significant weight changes associated with Gastroparesis can create body dysmorphia and a sense of having no control. The mental health of Gastroparesis patients should not be ignored, and any problems that arise should be treated appropriately. #Gastroparesisawareness #gastroparesis #stomachparalysis #digestivetractparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #starvingforacure #starving4acure #ehlersdanlossyndrome #mitochondrialdisease #gastro

 #GastroparesisAwarenessMonth Day 9

Gastroparesis may occur alone, or alongside other digestive diseases including Gastro-Esophageal Reflux Disease, chronic Gastritis, hiatal hernia, Crohn's disease, Ulcerative Colitis, Celiac disease, and Irritable Bowel Syndrome. 
The conditions may share a common underlying cause, or one disease may develop as a complication of another. 
For these and other reasons, Gastroparesis patients can be very complex cases for physicians to manage. Many gastroenterologists are not comfortable managing the care of these patients because there are so many symptoms, conflicting treatment protocols, and potential adverse effects to consider. It is beneficial for these patients to be evaluated by specialty Motility clinics, but this is not always possible due to restrictions with insurance coverage, costs, travel distance and more. 
 #GastroparesisAwareness #Gastroparesis #starvingforacure #starving4acure #stomachparalysis #digestivetractparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleilless #gastritis #inflammatoryboweldisease #celiac #gastro #ehlersdanlossyndrome #mitochondrialdisease

2016-08-09 13:02   66 2

 

#GastroparesisAwarenessMonth Day 9 Gastroparesis may occur alone, or alongside other digestive diseases including Gastro-Esophageal Reflux Disease, chronic Gastritis, hiatal hernia, Crohn's disease, Ulcerative Colitis, Celiac disease, and Irritable Bowel Syndrome. The conditions may share a common underlying cause, or one disease may develop as a complication of another. For these and other reasons, Gastroparesis patients can be very complex cases for physicians to manage. Many gastroenterologists are not comfortable managing the care of these patients because there are so many symptoms, conflicting treatment protocols, and potential adverse effects to consider. It is beneficial for these patients to be evaluated by specialty Motility clinics, but this is not always possible due to restrictions with insurance coverage, costs, travel distance and more. #GastroparesisAwareness #Gastroparesis #starvingforacure #starving4acure #stomachparalysis #digestivetractparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleilless #gastritis #inflammatoryboweldisease #celiac #gastro #ehlersdanlossyndrome #mitochondrialdisease

 #GastroparesisAwarenessMonth Day 8

Gastroparesis patients may experience chronic constipation due to the long term low-fiber diet. Some may rely on daily laxatives for the rest of their lives.
GP patients may also experience episodes of dumping syndrome, where food moves too quickly through the small bowel. This causes abdominal pain, cramping, gas, and green diarrhea. This happens because when the stomach does empty, all of the food passes through the pylorus and into the bowel suddenly and all at once. The bowel does not have the capacity to store that volume of food or liquids, so it gets rushed through without being properly digested. This just adds to the malnutrition problem. 
Many Gastroparesis patients never experience normal bowel movements, with alternating episodes of severe constipation/impaction, and severe diarrhea. Some may also experience fecal incontinence. 
 #gastroparesisawareness #gastroparesis #stomachparalysis #digestivetractparalysis #starvingforacure #starving4acure #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #dysautonomia #ehlersdanlossyndrome #mitochondrialdisease #gastro

2016-08-08 20:35   76 2

 

#GastroparesisAwarenessMonth Day 8 Gastroparesis patients may experience chronic constipation due to the long term low-fiber diet. Some may rely on daily laxatives for the rest of their lives. GP patients may also experience episodes of dumping syndrome, where food moves too quickly through the small bowel. This causes abdominal pain, cramping, gas, and green diarrhea. This happens because when the stomach does empty, all of the food passes through the pylorus and into the bowel suddenly and all at once. The bowel does not have the capacity to store that volume of food or liquids, so it gets rushed through without being properly digested. This just adds to the malnutrition problem. Many Gastroparesis patients never experience normal bowel movements, with alternating episodes of severe constipation/impaction, and severe diarrhea. Some may also experience fecal incontinence. #gastroparesisawareness #gastroparesis #stomachparalysis #digestivetractparalysis #starvingforacure #starving4acure #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #dysautonomia #ehlersdanlossyndrome #mitochondrialdisease #gastro

 #GastroparesisAwarenessMonth Day 6 
The most common treatment for Gastroparesis is prokinetic medication. These include Reglan (metaclopramide), Motilium (domperidone), and erythromycin. All of these medications have possible adverse effects, there is no perfectly safe gastroprokinetic medication. These medications are controversial, with the possibility of neurological and cardiac adverse events. 
Gastroparesis patients are usually also on an antiemetic medication to treat the nausea and vomiting. These include Zofran (ondansetron), Phenergan (promethazine), and Compazine (prochlorperazine.) These medications are traditionally prescribed for chemotherapy induced nausea. Patients may also use non-pharmaceutical treatments to ease these symptoms, including herbal supplements, Ayurvedic preparations, acupuncture, essential oils, ginger and peppermint teas, medical marijuana and Sea Bands. 
None of these remedies can cure Gastroparesis, but they can help ease the symptoms. These medications may become less effective over time. Also, adverse reactions may occur spontaneously even after years of successful drug therapy. 
 #Gastroparesis #gastroparesisawareness #starvingforacure #starving4acure #digestivetractparalysis #diabeticgastroparesis #idiopathicgastroparesis #spoonie #spoonielife #chronicilless #butyoudontlooksick #invisibleillness #ehlersdanlossyndrome #mitochondrialdisease #gastro

2016-08-06 12:00   56 4

 

#GastroparesisAwarenessMonth Day 6 The most common treatment for Gastroparesis is prokinetic medication. These include Reglan (metaclopramide), Motilium (domperidone), and erythromycin. All of these medications have possible adverse effects, there is no perfectly safe gastroprokinetic medication. These medications are controversial, with the possibility of neurological and cardiac adverse events. Gastroparesis patients are usually also on an antiemetic medication to treat the nausea and vomiting. These include Zofran (ondansetron), Phenergan (promethazine), and Compazine (prochlorperazine.) These medications are traditionally prescribed for chemotherapy induced nausea. Patients may also use non-pharmaceutical treatments to ease these symptoms, including herbal supplements, Ayurvedic preparations, acupuncture, essential oils, ginger and peppermint teas, medical marijuana and Sea Bands. None of these remedies can cure Gastroparesis, but they can help ease the symptoms. These medications may become less effective over time. Also, adverse reactions may occur spontaneously even after years of successful drug therapy. #Gastroparesis #gastroparesisawareness #starvingforacure #starving4acure #digestivetractparalysis #diabeticgastroparesis #idiopathicgastroparesis #spoonie #spoonielife #chronicilless #butyoudontlooksick #invisibleillness #ehlersdanlossyndrome #mitochondrialdisease #gastro

 #GastroparesisAwarenessMonth Day 5 
For Gastroparesis patients that are able to eat, the list of foods tolerated is very short. As a general rule, fiber, fats and meat must be avoided. This means that most of the foods generally considered healthy are the worst possible thing for a Gastroparesis patient to try to eat. Fruits, vegetables and grains are packed full of fiber. Meat and dairy products often have a lot of fats. This makes it extremely challenging for a GP patient to have adequate nutritional intake, with many subsisting only on protein shakes and soups. For some patients, even liquids are delayed in the stomach and so even drinking broth will make them very full and nauseated. 
 #Gastroparesis #GastroparesisAwareness #digestivetractparalysis #stomachparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #dysautonomia #ehlersdanlossyndrome #mitochondrialdisease #diabeticgastroparesis #idiopathicgastroparesis #starvingforacure #starving4acure #gastro

2016-08-05 18:46   73 4

 

#GastroparesisAwarenessMonth Day 5 For Gastroparesis patients that are able to eat, the list of foods tolerated is very short. As a general rule, fiber, fats and meat must be avoided. This means that most of the foods generally considered healthy are the worst possible thing for a Gastroparesis patient to try to eat. Fruits, vegetables and grains are packed full of fiber. Meat and dairy products often have a lot of fats. This makes it extremely challenging for a GP patient to have adequate nutritional intake, with many subsisting only on protein shakes and soups. For some patients, even liquids are delayed in the stomach and so even drinking broth will make them very full and nauseated. #Gastroparesis #GastroparesisAwareness #digestivetractparalysis #stomachparalysis #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #dysautonomia #ehlersdanlossyndrome #mitochondrialdisease #diabeticgastroparesis #idiopathicgastroparesis #starvingforacure #starving4acure #gastro

 #GastroparesisAwarenessMonth Day 4 
Gastroparesis is only one type of Digestive Tract Paralysis, "Gastro" means "stomach". Patients may also suffer from esophageal dysmotility, chronic intestinal pseudo-obstruction, and colonic inertia. Patients may experience difficulty swallowing, eating, and passing bowel movements. What starts out as paralysis of one portion of the digestive tract may progress to other parts over time. 
 #Gastroparesis #gastroparesisawareness #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #dysautonomia #digestivetractparalysis #stomachparalysis #dysmotility #starvingforacure #starving4acure #diabeticgastroparesis #idiopathicgastroparesis #autoimmune #mitochondrialdisease

2016-08-04 19:15   57 0

 

#GastroparesisAwarenessMonth Day 4 Gastroparesis is only one type of Digestive Tract Paralysis, "Gastro" means "stomach". Patients may also suffer from esophageal dysmotility, chronic intestinal pseudo-obstruction, and colonic inertia. Patients may experience difficulty swallowing, eating, and passing bowel movements. What starts out as paralysis of one portion of the digestive tract may progress to other parts over time. #Gastroparesis #gastroparesisawareness #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #dysautonomia #digestivetractparalysis #stomachparalysis #dysmotility #starvingforacure #starving4acure #diabeticgastroparesis #idiopathicgastroparesis #autoimmune #mitochondrialdisease

 #GastroparesisAwarenessMonth Day 3.

The most common cause of Gastroparesis is diabetic nerve damage, which accounts for approximately 50% of cases. Many of the remainder are classified as idiopathic, meaning of unknown cause. Gastroparesis is seen in autoimmune disorders such as Lupus, in connective tissue disorders such as Ehlers-Danlos Syndrome, in late-stage Lyme Disease, in mitochondrial diseases, in demyelinating nerve diseases, and alongside other disorders affecting the autonomic nervous system- Dysautonomia, Postural Orthostatic Tachycardia Syndrome, Neurocardiogenic Syncope, Autoimmune Autonomic Ganglionopathy and more. 
Depending on the underlying cause, the symptoms may come and go, or get progressively worse over time. Sometimes, treating the underlying cause can improve the Gastroparesis symptoms. It also complicates treating the other condition(s), since medication may not be absorbed properly, and special diets may be impossible to follow.

 #Gastroparesisawareness #gastroparesis #starvingforacure #starving4acure #gpwarriors #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #diabeticgastroparesis #diabetes #ehlersdanlossyndrome #dysautonomia #mitochondrialdisease #digestivetractparalysis #stomachparalysis

2016-08-03 20:55   74 3

 

#GastroparesisAwarenessMonth Day 3. The most common cause of Gastroparesis is diabetic nerve damage, which accounts for approximately 50% of cases. Many of the remainder are classified as idiopathic, meaning of unknown cause. Gastroparesis is seen in autoimmune disorders such as Lupus, in connective tissue disorders such as Ehlers-Danlos Syndrome, in late-stage Lyme Disease, in mitochondrial diseases, in demyelinating nerve diseases, and alongside other disorders affecting the autonomic nervous system- Dysautonomia, Postural Orthostatic Tachycardia Syndrome, Neurocardiogenic Syncope, Autoimmune Autonomic Ganglionopathy and more. Depending on the underlying cause, the symptoms may come and go, or get progressively worse over time. Sometimes, treating the underlying cause can improve the Gastroparesis symptoms. It also complicates treating the other condition(s), since medication may not be absorbed properly, and special diets may be impossible to follow. #Gastroparesisawareness #gastroparesis #starvingforacure #starving4acure #gpwarriors #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #diabeticgastroparesis #diabetes #ehlersdanlossyndrome #dysautonomia #mitochondrialdisease #digestivetractparalysis #stomachparalysis

 #GastroparesisAwarenessMonth Day 2 
Gastroparesis needs more awareness. Many gastrointestinal diagnostic tests will not identify Gastroparesis, which leads to frustrated patients and physicians that doubt the symptoms reported. Usually, a Gastric Emptying Study is the best way to diagnose delayed gastric emptying. However, even this is problematic because symptoms can be intermittent. Symptoms like bloating and nausea can be nonspecific and offer little clue into the diagnosis. The presence of food in the stomach long after it was eaten is the biggest indicator of Gastroparesis. 
 #Gastroparesis #gastroparesisawareness #starvingforacure #starving4acure #spoonie #spoonielife #butyoudontlooksick #invisibleillness #digestivetractparalysis #stomachparalysis #dysautonomia #awareness #gastro

2016-08-02 22:33   80 4

 

#GastroparesisAwarenessMonth Day 2 Gastroparesis needs more awareness. Many gastrointestinal diagnostic tests will not identify Gastroparesis, which leads to frustrated patients and physicians that doubt the symptoms reported. Usually, a Gastric Emptying Study is the best way to diagnose delayed gastric emptying. However, even this is problematic because symptoms can be intermittent. Symptoms like bloating and nausea can be nonspecific and offer little clue into the diagnosis. The presence of food in the stomach long after it was eaten is the biggest indicator of Gastroparesis. #Gastroparesis #gastroparesisawareness #starvingforacure #starving4acure #spoonie #spoonielife #butyoudontlooksick #invisibleillness #digestivetractparalysis #stomachparalysis #dysautonomia #awareness #gastro

 #GastroparesisAwarenessMonth Day 1: 
Gastroparesis is a functional digestive disorder wherein the stomach is paralyzed. It is underdiagnosed, difficult to treat, and has no known cure. It is not a problem with the stomach itself, but rather the vagus nerve that controls unconscious functions of the autonomic nervous system. Thus there is no special diet or supplement that can cure this disease. 
In Gastroparesis, food stays in the stomach for too long. In a healthy person, foods leave the stomach and enter the small bowel around 90 minutes after eating. In Gastroparesis, the food remains for hours or days. Since most nutrients are absorbed in the small bowel, the patient is effectively starving but unable to eat because the stomach is already full. 
Symptoms of Gastroparesis include bloating, abdominal distention, early satiety, pain, belching, nausea, vomiting, dry heaving, reflux, unwanted weight loss or weight gain, malnutrition, erratic blood sugars, electrolyte imbalances, changes in bowel movements and more. 
I will be posting every day for the month of August with more facts about Gastroparesis. 
 #spoonie #spoonielife #butyoudontlooksick #invisibleillness #gastroparesis #stomachparalysis #delayedgastricemptying #digestivetractparalysis #starvingforacure #starving4acure #gastroparesisawareness #august #ehlersdanlossyndrome #diabeticgastroparesis #idiopathicgastroparesis #chronicillness

2016-08-01 14:51   90 1

 

#GastroparesisAwarenessMonth Day 1: Gastroparesis is a functional digestive disorder wherein the stomach is paralyzed. It is underdiagnosed, difficult to treat, and has no known cure. It is not a problem with the stomach itself, but rather the vagus nerve that controls unconscious functions of the autonomic nervous system. Thus there is no special diet or supplement that can cure this disease. In Gastroparesis, food stays in the stomach for too long. In a healthy person, foods leave the stomach and enter the small bowel around 90 minutes after eating. In Gastroparesis, the food remains for hours or days. Since most nutrients are absorbed in the small bowel, the patient is effectively starving but unable to eat because the stomach is already full. Symptoms of Gastroparesis include bloating, abdominal distention, early satiety, pain, belching, nausea, vomiting, dry heaving, reflux, unwanted weight loss or weight gain, malnutrition, erratic blood sugars, electrolyte imbalances, changes in bowel movements and more. I will be posting every day for the month of August with more facts about Gastroparesis. #spoonie #spoonielife #butyoudontlooksick #invisibleillness #gastroparesis #stomachparalysis #delayedgastricemptying #digestivetractparalysis #starvingforacure #starving4acure #gastroparesisawareness #august #ehlersdanlossyndrome #diabeticgastroparesis #idiopathicgastroparesis #chronicillness

Hey guys, important question- 
July is almost over, and August is #gastroparesisawarenessmonth 
Last year, I made an informative post about digestive tract paralysis/Gastroparesis every day for the entire month of August. Is this something that you guys would like to see again? How well would you rate your understanding of this disease, it's symptoms, it's treatments, it's complications? What would you like to understand a little bit better? Would you like to see me repost my infographics from last year, or use a different format this time? Let me know in the comments. If you click the tag #gastroparesisawarenessmonth, you'll probably find some of my old posts. I haven't checked. If you stumble upon the sparkly green circles with GP info, those are mine from last summer πŸ˜‰ 
 #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #ehlersdanlossyndrome #dysautonomia #posturalorthostatictachycardiasyndrome #gastroparesis #starvingforacure #starving4acure #gpwarriors #dtp #digestivetractparalysis #stomachparalysis #diabetes

2016-07-29 05:02   72 7

 

Hey guys, important question- July is almost over, and August is #gastroparesisawarenessmonth Last year, I made an informative post about digestive tract paralysis/Gastroparesis every day for the entire month of August. Is this something that you guys would like to see again How well would you rate your understanding of this disease, it's symptoms, it's treatments, it's complications What would you like to understand a little bit better Would you like to see me repost my infographics from last year, or use a different format this time Let me know in the comments. If you click the tag #gastroparesisawarenessmonth, you'll probably find some of my old posts. I haven't checked. If you stumble upon the sparkly green circles with GP info, those are mine from last summer πŸ˜‰ #spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #ehlersdanlossyndrome #dysautonomia #posturalorthostatictachycardiasyndrome #gastroparesis #starvingforacure #starving4acure #gpwarriors #dtp #digestivetractparalysis #stomachparalysis #diabetes

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